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===Funding research by Esther Crawley === AfME obtained money from a private corporate donor and announced that this anonymous corporate donation would fund the work of the researcher [[Esther Crawley]] and her Severe Pediatric Study via the charity.<ref>{{Cite web | url = https://www.actionforme.org.uk/resources/questions-and-answers/ | title = Questions and answers | last = Action for ME | first = | author-link = Action for ME | website = Action for ME | access-date = 2019-08-19|url-status=dead}}</ref> This was questioned and criticized by ME sufferers in forums but AfME removed many posts as they claimed they were defamatory for asking such questions and stated the donation was from "private corporate donor with a specific interest in seeing the alleviation of childhood suffering."<ref name="fundingCrawley">{{Cite web | url = https://www.actionforme.org.uk/resources/questions-and-answers/what-is-the-severe-paediatric-me-surveillance-study-youre-funding-about/ | date = 2017 | url-status=dead|archive-url=https://forums.phoenixrising.me/threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/ | title = Esther Crawley Paediatric Prevalence Study Funded by Action for ME | website = Action for ME|language=en|archive-date=2016-05-15}}</ref> In 2018, AfME announced that it would not be funding that research, but did not provide a full explanation of the sources of the money and the reasons for doing so.<ref>{{Cite web | date = Jan 11, 2018|archive-date=Jan 11, 2018|archive-url=https://www.s4me.info/threads/action-for-me-terminates-by-mutual-agreement-with-the-university-of-bristol-contract-to-fund-crawley-study.1872/ | url = https://www.actionforme.org.uk/news/%E2%80%8Bpaediatric-me-research-study-update-new-funding-found/ | title = Action for ME terminates, by mutual agreement with the University of Bristol, contract to fund Crawley study | website = Action for ME|language=en | access-date = 2019-08-31}}</ref> AfME stated the donation would be used directly to support children instead, and that this had been agreed with the donor. AfME have created and organised the "[[M.E./CFS International Alliance]]", a group involving M.E. advocates and charity representatives from six countries. However some organisations stated they weren't aware of their membership and ME patients have expressed concerns due to its history.<ref>{{Cite web | url = https://forums.phoenixrising.me/threads/new-org-me-cfs-international-alliance.47920/ | title = New Org!: ME/CFS International Alliance | website = Phoenix Rising ME / CFS Forums|language=en-US | access-date = 2019-08-31}}</ref> AfME have been protesting at the [[World Health Organization]] (WHO) in Geneva, Switzerland, under the [[Millions Missing]] campaign however patients have expressed concerns due to the WHO accepting ME as a [[:Category:Neurological diseases and disorders|neurological disease]] since 1969.<ref name=":3">{{Cite book | url = https://apps.who.int/iris/bitstream/handle/10665/70934/ICD_10_1969_eng_v2a.pdf?sequence=3&isAllowed=y | title = International Classification of Diseases | last = World Health Organization | first = | publisher = WHO| year = 1969|isbn=|editor-link = |edition=Eighth revision | volume = 2|location=Geneva | pages = 173|chapter=|quote=Encephalomyelitis (chronic),<br>(myalgic, benign) 323|editor-last2 = |editor-link2 = }}</ref>
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