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Angela Kennedy
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{{NeedsImage}} '''Angela Kennedy''' was an advocate for the rights of the [[myalgic encephalomyelitis|ME]] community from 2003-2015. She is a carer to her daughter who was given an ME diagnosis two years into her illness. She is a sociologist primarily researching in sociology of science, medicine, disability and health. Kennedy was active with the advocacy group [[The One Click Group]] from 2004-2006. She has written extensively on the [[PACE trial]] and its flaws, on psychogenic explanations for physical impairments, and on research methodology in the literature on [[ME/CFS]] and other conditions. ==Book== Angela is the author of the book [[Authors of our Own Misfortune? The Problems with Psychogenic Explanations for Physical Illnesses]]. ==Notable articles== * [http://www.bmj.com/rapid-response/2011/10/30/social-myth-mind-over-matter 'The social myth of mind over matter'] in response to Chalder et al ('Epidemiology of chronic fatigue syndrome and self reported myalgic encephalomyelitis in 5-15 year olds: cross sectional study' BMJ 2003; 327: 654-655) 26 Sep 2003.<ref name="KennedyAP2003socialmyth" /> * [http://www.bmj.com/rapid-response/2011/10/30/doctor-must-not-close-his-or-her-mind-all-possible-factors-regard-treatmen 'The Doctor must not close his or her mind to all possible factors in regard to treatment'] in response to Chalder et al ('Epidemiology of chronic fatigue syndrome and self reported myalgic encephalomyelitis in 5-15 year olds: cross sectional study' BMJ 2003; 327: 654-655) 28 Sep 2003.<ref name="KennedyAP2003drclosemind" /> * [http://www.bmj.com/rapid-response/2011/10/30/re-your-own-worst-enemy 'Re: your own worst enemy'] in response to Thomas Szasz ('The psychiatric protection order for the "battered mental patient"' BMJ 2003; 327: 1449-1451) 29 December 2003.<ref name="KennedyAP20031229" /> * [http://www.mefmaction.com/images/stories/quest_newsletters/Quest66fall2004.pdf 'When Doctors say 'Psychosomatic', What do they Mean?'] Quest (Magazine of the Canadian National ME/FM Action Network) No. 66, Fall 2004.<ref name="KennedyAP2004Quest" /> * [http://www.bmj.com/content/328/7452/1354/rapid-responses 'Some serious problems in Doctors' attitudes towards ME/CFS sufferers uncovered' (and other comments)] in response to Raine et al ('General practitioners' perceptions of chronic fatigue syndrome and beliefs about its management, compared with irritable bowel syndrome: qualitative study BMJ 2004; 328: 1354-1357) Jun 2004.<ref name="KennedyAP2004Raine1" /><ref name="KennedyAP2004Raine2" /><ref name="KennedyAP2004Raine3" /><ref name="KennedyAP2004Raine4" /><ref name="KennedyAP2004Raine5" /><ref name="KennedyAP2004Raine6" /> * 'The term 'heartsink' is an insult to patients' in response to Scott Pereira (Immunology BMJ Career Focus 2004; 329: 113-a-114-a). * [http://www.bmj.com/rapid-response/2011/10/30/failure-consider-issue-differential-diagnosis-now-inexcusable 'Failure to consider the issue of differential diagnosis now inexcusable'] in response to Viner and Christie ('Fatigue and somatic symptoms' BMJ 2005; 330: 1012-1015) 3 May 2005.<ref name="KennedyAP20050503" /> * [http://bmcfampract.biomedcentral.com/articles/10.1186/1471-2296-6-49/comments 'Some key issues neglected in this paper'] in response to Thomas and Smith ("Primary healthcare provision and Chronic Fatigue Syndrome: a survey of patients' and General Practitioners' beliefs" BMC Family Practice 2005, 6:49 doi:10.1186/1471-2296-6-49) 22 August 2006.<ref name="KennedyAP2006thomas" /> * [http://bmcneurol.biomedcentral.com/articles/10.1186/1471-2377-7-6/comments 'Problems in the Pace trial'] in response to White et al ('Protocol for the PACE trial: A randomised controlled trial of adaptive pacing, cognitive behaviour therapy, and graded exercise as supplements to standardised specialist medical care versus standardised specialist medical care alone for patients with the chronic fatigue syndrome/myalgic encephalomyelitis or encephalopathy' BMC Neurology 2007, 7:6) 13 November 2007.<ref name="KennedyAP20071113paceprot" /> * [http://bmcneurol.biomedcentral.com/articles/10.1186/1471-2377-7-6/comments 'Some problems with the London Criteria'] in response to White et al ('Protocol for the PACE trial: A randomised controlled trial of adaptive pacing, cognitive behaviour therapy, and graded exercise as supplements to standardised specialist medical care versus standardised specialist medical care alone for patients with the chronic fatigue syndrome/myalgic encephalomyelitis or encephalopathy' BMC Neurology 2007, 7:6) Oct 1, 2008.<ref name="KennedyAP20081001paceprot" /> The information on these criteria in this article was later shown to be inaccurate. There were no real problems with the criteria, revised in 2009 and published, and the arguments were irrelevant as they were not used in the trial. | * [http://www.plosone.org/annotation/listThread.action?root=1669 Response] to Wessely et al ('Failure to Detect the Novel Retrovirus XMRV in Chronic Fatigue Syndrome', PLoS ONE, 6 January 2010) 13 Jan 2010.<ref name="KennedyAP2010xmrv" /> * [http://bmcpublichealth.biomedcentral.com/articles/10.1186/1471-2458-9-458/comments "The 'validity' of patient needs in 'CFS'?"] in response to Drachler et al ('The expressed needs of people with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A systematic review' BMC Public Health 2009, 9:458) 1 February 2010.<ref name="KennedyAP2010drachler" /> * [http://retrovirology.biomedcentral.com/articles/10.1186/1742-4690-7-10/comments 'What were the characteristics of the patient cohort?'] in response to Groom et al ('Absence of xenotropic murine leukaemia virus-related virus in UK patients with chronic fatigue syndrome' Retrovirology 2010, 7:10) 22 February 2010.<ref name="KennedyAP20100222" /> * [http://www.plosone.org/annotation/listThread.action?root=3801 'Questions about 'CFS' and 'ICF' selection criteria of cohort'] in response to Byrnes et al ('Expression in Peripheral Blood Leukocytes in Monozygotic Twins Discordant for Chronic Fatigue: No Evidence of a Biomarker' PLoS ONE 4(6): e5805 2009) 3 January 2011.<ref name="KennedyAP20110103" /> * Stakeholder Submission to the American Psychiatric Association on the proposed DSM-5 Criteria made January 2011. http://dxrevisionwatch.com/dsm-5-proposals/dsm-5-submissions-2011/2/ * "Authors of our Own Misfortune? The Problems with Psychogenic Explanations for Physical Illnesses" (2012) Market Rasen, The Village Digital Press.<ref name="KennedyAP2012book" /> * [http://www.plosone.org/annotation/listThread.action?root=52481 'Cost-effectiveness is irrelevant when safety has not even been addressed in the PACE trial'] in response to McCrone et al ('Adaptive Pacing, Cognitive Behaviour Therapy, Graded Exercise, and Specialist Medical Care for Chronic Fatigue Syndrome: A Cost-Effectiveness Analysis' PLoS One, August 01, 2012) 2 Aug 2012.<ref name="KennedyAP20120802" /> * [http://www.bmj.com/content/346/bmj.f1580/rr/637165 '"SSD" reifies and rejiggles already unsound concepts of 'psychogenic illness'] in response to Frances ('The new somatic symptom disorder in DSM-5 risks mislabelling many people as mentally ill', BMJ 2013;346:f1580) 21 March 2013.<ref name="KennedyAP20130321" /> * [https://aeon.co/opinions/bad-thoughts-can-t-make-you-sick-that-s-just-magical-thinking 'Bad thoughts can’t make you sick, that’s just magical thinking'] Aeon Opinions, 18 November 2015.<ref name="KennedyAP20151118" /> * [http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html Summary of my specific concerns about PACE with annotated bibliography] 10 Feb 2016.<ref name="KennedyAP20160210" /> (see also [[PACE trial]]) ==Online presence== *[https://twitter.com/AcademicAnge Twitter] ==Learn more== ==See also== *[[PACE trial]] ==References== <references> <ref name="KennedyAP2003socialmyth">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = The social myth of mind over matter | type = response | journal = BMJ | volume = 327 | issue = 654 | date = 26 Sep 2003 | url = http://www.bmj.com/rapid-response/2011/10/30/social-myth-mind-over-matter }}</ref> <ref name="KennedyAP2003drclosemind">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = The Doctor must not close his or her mind to all possible factors in regard to treatment | type = response | journal = BMJ | volume = 327 | issue = 654 | date = 28 Sep 2003 | url = http://www.bmj.com/rapid-response/2011/10/30/doctor-must-not-close-his-or-her-mind-all-possible-factors-regard-treatmen }}</ref> <ref name="KennedyAP20031229">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Re: your own worst enemy | type = response | journal = BMJ | volume = 327 | page = 1449-1451 | date = 29 Dec 2003 | url = http://www.bmj.com/rapid-response/2011/10/30/re-your-own-worst-enemy }}</ref> <ref name="KennedyAP2004Quest">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = When Doctors say 'Psychosomatic', What do they Mean? | journal = Quest (Canadian National ME/FM Action Network) | issue = 66 | date =Fall 2004 | url = http://www.mefmaction.com/images/stories/quest_newsletters/Quest66fall2004.pdf }}</ref> <ref name="KennedyAP2004Raine1">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Some serious problems in Doctors' attitudes towards ME/CFS sufferers uncovered | type = response | journal = BMJ | volume = 328 | page = 1354 | date = May 28, 2004 | url = http://www.bmj.com/rapid-response/2011/10/30/some-serious-problems-doctors-attitudes-towards-mecfs-sufferers-uncovered }}</ref> <ref name="KennedyAP2004Raine2">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Some worrying doctor's attitudes towards ME/CFS sufferers uncovered | type = response | journal = BMJ | volume = 328 | page = 1354 | date =4 Jun 2004 | url = http://www.bmj.com/rapid-response/2011/10/30/some-worrying-doctors-attitudes-towards-mecfs-sufferers-uncovered }}</ref> <ref name="KennedyAP2004Raine3">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Re: Medical Correctness | type = response | journal = BMJ | volume = 328 | page = 1354 | date =4 Jun 2004 | url = http://www.bmj.com/rapid-response/2011/10/30/re-medical-correctness-0 }}</ref> <ref name="KennedyAP2004Raine4">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Re: Medical correctness and evidence based medicine | type = response | journal = BMJ | volume = 328 | page = 1354 | date =8 Jun 2004 | url = http://www.bmj.com/rapid-response/2011/10/30/re-medical-correctness-and-evidence-based-medicine }}</ref> <ref name="KennedyAP2004Raine5">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Re: Grey areas at the interface of psychiatry and medicine? | type = response | journal = BMJ | volume = 328 | page = 1354 | date =8 Jun 2004 | url = http://www.bmj.com/rapid-response/2011/10/30/re-grey-areas-interface-psychiatry-and-medicine }}</ref> <ref name="KennedyAP2004Raine6">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = GPs are powerless without better models | type = response | journal = BMJ | volume = 328 | page = 1354 | date = Jun 16, 2004 | url = http://www.bmj.com/rapid-response/2011/10/30/re-gps-are-powerless-without-better-models }}</ref> <ref name="KennedyAP20050503">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Failure to consider the issue of differential diagnosis now inexcusable | type = response | journal = BMJ | volume = 330 | page = 1012-1015 | date =3 May 2005 | url = http://www.bmj.com/rapid-response/2011/10/30/failure-consider-issue-differential-diagnosis-now-inexcusable }}</ref> <ref name="KennedyAP2006thomas">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Some key issues neglected in this paper | type = response | journal = BMC Family Practice | volume = 6 | issue = 49 | date = 22 Aug 2006 | url = http://bmcfampract.biomedcentral.com/articles/10.1186/1471-2296-6-49/comments }}</ref> <ref name="KennedyAP20071113paceprot">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Problems in the PACE Trial | type = response | journal = BMC Neurology | volume = 7 | issue = 6 | date = Nov 13, 2007 | url = http://bmcneurol.biomedcentral.com/articles/10.1186/1471-2377-7-6/comments }}</ref> <ref name="KennedyAP20081001paceprot">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Some problems with the 'London Criteria' | type = response | journal = BMC Neurology | volume = 7 | issue = 6 | date = Oct 1, 2008 | url = http://bmcneurol.biomedcentral.com/articles/10.1186/1471-2377-7-6/comments }}</ref> <ref name="KennedyAP2010xmrv">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Failure to Detect the Novel Retrovirus XMRV in Chronic Fatigue Syndrome | type = response | journal = PLoS One | date = 13 Jan 2010 | url = http://www.plosone.org/annotation/listThread.action?root=1669 }}</ref> <ref name="KennedyAP2010drachler">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = The 'validity' of patient needs in 'CFS'? | type = response | journal = BMC Public Health |volume = 9 | issue = 458 | date = 1 Feb 2010 | url = http://bmcpublichealth.biomedcentral.com/articles/10.1186/1471-2458-9-458/comments }}</ref> <ref name="KennedyAP20100222">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = What were the characteristics of the patient cohort? | type = response | journal = Retrovirology |volume = 7 | issue = 10 | date = 22 Feb 2010 | url = http://retrovirology.biomedcentral.com/articles/10.1186/1742-4690-7-10/comments }}</ref> <ref name="KennedyAP20110103">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Questions about 'CFS' and 'ICF' selection criteria of cohort | type = response | journal = PLoS One | date =3 Jan 2011 | url = http://www.plosone.org/annotation/listThread.action?root=3801 }}</ref> <ref name="KennedyAP20120802">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Cost-effectiveness is irrelevant when safety has not even been addressed in the PACE trial | type = response | journal = PLoS One | date = 2 Aug 2012 | url = http://www.plosone.org/annotation/listThread.action?root=52481 }}</ref> <ref name="KennedyAP2012book">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Authors of our own misfortune?: The problems with psychogenic explanations for physical illnesses | type = book | date =4 Sep 2012 | isbn = 978-1-4792-5395-1 | publisher = CreateSpace Independent Publishing Platform }}</ref> <ref name="KennedyAP20130321">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = 'SSD' reifies and rejiggles already unsound concepts of 'psychogenic illness' | type = response | journal = BMJ |volume = 346 | issue = f1580 | date = Mar 21, 2013 | url = http://www.bmj.com/content/346/bmj.f1580/rr/637165 }}</ref> <ref name="KennedyAP20151118">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Bad thoughts can’t make you sick, that’s just magical thinking | journal = Aeon | date = Nov 18, 2015 | url = https://aeon.co/opinions/bad-thoughts-can-t-make-you-sick-that-s-just-magical-thinking }}</ref> <ref name="KennedyAP20160210">{{citation | last1 = Kennedy | first1 = Angela P | author-link1 = Angela Kennedy | title = Summary of my specific concerns about PACE with annotated bibliography | journal = PACE Documents BlogSpot | date = Feb 10, 2016 | url = http://pacedocuments.blogspot.co.uk/2016/02/summary-of-my-specific-concerns-about.html }}</ref> </references> [[Category:Advocates or allies]] [[Category:British advocates or allies]] [[Category:Psychological paradigm critics]] [[Category:Authors]] [[Category:PACE trial critics]]
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