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Derek Pheby
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[[File:Derek Pheby.png|200px|thumb|right|Source:Invest in ME]] Dr. '''Derek F. H. Pheby''', BSc, MB, BS, LLM, MPhil, FFPH, is a Visiting Professor of Epidemiology, Buckinghamshire New University, Wycombe, England, United Kingdom. He served as the Project Coordinator of the [[National ME Observatory]], a collaborative project involving three universities, aiming to fill gaps in research knowledge.<ref>https://www.linkedin.com/in/derek-pheby-98440a14</ref> He was a former member of the Chief Medical Officer’s Working Group on CFS/ME and former trustee of [[Action for ME]].<ref>http://www.positivehealth.com/author/dr-derek-pheby</ref> Pheby initiated the establishment of the [[ME/CFS]] Disease Register in the UK by using a READ-code based algorithm on Electronic Medical Records which conformed to certain case definitions for ME/CFS. The [[ME/CFS]] Disease Register is used to recruit participants with ME/CFS in an unbiased way from a large population base.<ref>Pheby D, Lacerda E, Nacul L, Drachler Mde L, Campion P, Howe A, Poland F, Curran M, Featherstone V, Fayyaz S, Sakellariou D, Leite JC. (2011). A Disease Register for ME/CFS: Report of a Pilot Study. ''BMC Res Notes, 9''4:139. doi: 10.1186/1756-0500-4-139. http://www.ncbi.nlm.nih.gov/pubmed/21554673</ref> Likewise, he is establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome.<ref name="Nacul, 2014" /> ==EUROMENE== In 2001, Dr. Pheby was responsible for the establishment of the European [[ME/CFS]] research network ([[EUROMENE]]), a European Union COST Action CA15111 not-for-profit research organization committed to tackling the cause and treatment for [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]]<ref>http://www.euromene.eu/workinggroups/COST_CV%20and%20Biosketch_Derek%20Pheby.pdf</ref> He now leads the [[EUROMENE]] Socio-economics working group, whose objective is to estimate the burden of [[ME/CFS]] to society and provide long-term trend estimates for societal impact.<ref>http://www.euromene.eu/workinggroups/socioeconomics.html</ref> ==Studies related to ME/CFS== *2004, Risk Factors for the Development of Severe [[ME/CFS]] — A Pilot Study<ref>William Wernham, Derek Pheby & Lisa Saffron. (2004). Risk Factors for the Development of Severe ME/CFS — A Pilot Study. ''Journal of Chronic Fatigue Syndrome'', Vol. 12, Iss. 2, pp. 47-50. doi:10.1300/J092v12n02_05</ref> [http://dx.doi.org/10.1300/J092v12n02_05 (Abstract)] *2005, [[Chronic Fatigue Syndrome]]: a survey of GPs' attitudes and knowledge<ref>Bowen J, Pheby D, Charlett A, McNulty C. (2005). Chronic Fatigue Syndrome: a survey of GPs' attitudes and knowledge.''Family Practice, 22'' (4):389-93</ref> [https://academic.oup.com/fampra/article/22/4/389/662664 (Full Text)] *2007, The Development of an Epidemiological Definition for [[ME/CFS|Myalgic Encephalomyelitis/Chronic Fatigue Syndrome]]<ref name="Osoba, 2007" /> [https://www.tandfonline.com/doi/abs/10.3109/10573320802092112 (Abstract)] *2009, Risk factors for severe [[ME/CFS]]<ref name="Pheby, 2009" /> [http://www.meassociation.org.uk/wp-content/uploads/2013/04/Biology-and-Medicine_Published-paper_vol1_4_50-74.pdf (Full Text)] *2010, Severe [[ME/CFS]] in Adults-A report from the CHROME Database<ref name="Pheby, 2010" /> [https://www.researchgate.net/publication/228502135_Severe_MECFS_in_Adults-A_report_from_the_CHROME_Database (Full Text)] *2011, A Disease Register for ME/CFS: Report of a Pilot Study<ref>{{Cite journal | last = Pheby|first = Derek | authorlink = Derek Pheby | last2 = Lacerda | first2 = Eliana | authorlink2 = Eliana Lacerda | last3 = Nacul | first3 = Luis | authorlink3 = Luis Nacul | last4 = Drachler | first4 = Maria de Lourdes | authorlink4 = | last5 = Campion | first5 = Peter | author-link5 = | last6 = Howe | first6 = Amanda | last7 = Poland | first7 = Fiona | last8 = Curran | first8 = Monica | last9 = Featherstone | first9 = Valerie | date = Dec 2011 | title = A Disease Register for ME/CFS: Report of a Pilot Study | url = https://bmcresnotes.biomedcentral.com/articles/10.1186/1756-0500-4-139|journal=BMC Research Notes|language=en|volume=4|issue=1 | pages = |doi=10.1186/1756-0500-4-139|issn=1756-0500|pmc=3118997|pmid=21554673|quote=|via=}}</ref> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3118997/ (Full Text)] *2011, Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care<ref>Nacul, L. C., Lacerda, E. M., Pheby,D., Campion, P., Molokhia, M., Fayyaz, S., Leite, JCDC, Poland F, Howe, A and Drachler, M. L. (2011). Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care. BMC Medicine, 9, 91. http://doi.org/10.1186/1741-7015-9-91</ref> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3170215/ (Full Text)] *2011, Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis<ref name="de Carvalho Leite, 2011" /> [https://equityhealthj.biomedcentral.com/articles/10.1186/1475-9276-10-46 (Full Text)] *2011, The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers<ref name="Nacul, 2011" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3123211/ (Full Text)] *2012, Severe [[ME/CFS]] in Adults - A report from the [[CHROME]] Database<ref>Pheby, Derek & Sneddon, Peter & Heinrich, Inge & Peter A Sneddon, M. (2012). Severe ME/CFS in Adults-A report from the CHROME Database. Medical Statistician.</ref> [https://www.researchgate.net/publication/228502135_Severe_MECFS_in_Adults-A_report_from_the_CHROME_Database (Full Text)] *2014, Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol<ref name="Nacul, 2014" /> [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4076507/ (Full Text)] *2014, Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME<ref>Gladwell PW, Pheby D, Rodriguez T, Poland F. (2014). Use of an online survey to explore positive and negative outcomes of rehabilitation for people with CFS/ME. ''Disability and Rehabilitation, 36'' (5):387-94. doi: 10.3109/09638288.2013.797508</ref> [https://www.ncbi.nlm.nih.gov/pubmed/23735013 (Abstract)] * 2018, Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network [[EUROMENE]]: a protocol for a systematic review<ref>{{Cite journal | last = Estévez-López|first = Fernando | authorlink = Fernando Estévez-López | last2 = Castro-Marrero | first2 = Jesus | authorlink2 = Jesús Castro-Marrero | last3 = Wang | first3 = Xia | authorlink3 = Xia Wang-Steverding | last4 = Bakken | first4 = Inger Johanne | authorlink4 = Inger Johanne Bakken | last5 = Ivanovs | first5 = Andrejs | author-link5 = Andrejs Ivanovs | last6 = Nacul | first6 = Luis | author-link6 = Luis Nacul | last7 = Sepúlveda | first7 = Nuno | author-link8 = Nuno Sepulveda | last8 = Strand | first8 = Elin B. | author-link8 = Elin Strand | last9 = Pheby | first9 = Derek | author-link9 = Derek Pheby | last10 = Alegre | first10 = José | author-link10 = José Alegre | last11 = Scheibenbogen | first11 = Carmen | author-link11 = Carmen Scheibenbogen | last12 = Shikova | first12 = Evelina | author-link12 = Evelina Shikova | last13 = Lorusso | first13 = Lorenzo | author-link13 = Lorenzo Lorusso | last14 = Capelli | first14 = Enrica | author-link14 = Enrica Capelli | last15 = Sekulic | first15 = Slobodan | author-link15 = Slobodan Sekulic | last16 = Lacerda | first16 = Eliana | author-link16 = Eliana Lacerda | last17 = Murovska | first17 = Modra | author-link17 = Modra Murovska | date = 2018-09-01 | title = Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review | url =https://bmjopen.bmj.com/content/8/9/e020817|journal=BMJ Open|language=en|volume=8|issue=9| pages = e020817|doi=10.1136/bmjopen-2017-020817|issn=2044-6055|pmc=|pmid=30181183|via=}}</ref> [https://bmjopen.bmj.com/content/8/9/e020817 (Full text)] *2020, The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE)<ref>{{Cite journal | last = Pheby|first = Derek F.H. | authorlink = Derek Pheby | last2 = Araja | first2 = Diana | authorlink2 = | last3 = Berkis | first3 = Uldis | authorlink3 = | last4 = Brenna | first4 = Elenka | authorlink4 = Elenka Brenna | last5 = Cullinan | first5 = John | author-link5 = John Cullinan | last6 = de Korwin | first6 = Jean-Dominique | author-link6 = Jean-Dominique de Korwin | last7 = Gitto | first7 = Lara | author-link8 = Lara Gitto | last8 = Hughes | first8 = Dyfrig A | author-link8 = | last9 = Hunter | first9 = Rachael M | author-link9 = | last10 = Trepel | first10 = Dominic | author-link10 = | last11 = Wang-Steverding | first11 = Xia | author-link11 = Xia Wang-Steverding | date = 2020-04-07 | title = The Development of a Consistent Europe-Wide Approach to Investigating the Economic Impact of Myalgic Encephalomyelitis (ME/CFS): A Report from the European Network on ME/CFS (EUROMENE) | url = https://www.mdpi.com/2227-9032/8/2/88|journal=Healthcare|language=en|volume=8|issue=2 | pages = 88|doi=10.3390/healthcare8020088|issn=2227-9032|pmc=|pmid=|access-date=|quote=|via=}}</ref> - [https://www.mdpi.com/2227-9032/8/2/88/htm (Full text)] * 2020, Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology <ref>{{Cite journal | last = Estévez-López|first = Fernando | authorlink = Fernando Estévez-López | last2 = Mudie | first2 = Kathleen | authorlink2 = | last3 = Wang-Steverding | first3 = Xia | authorlink3 = Xia Wang-Steverding | last4 = Bakken | first4 = Inger Johanne | authorlink4 = Inger Johanne Bakken | last5 = Ivanovs | first5 = Andrejs | author-link5 = | last6 = Castro-Marrero | first6 = Jesús | author-link6 = Jesús Castro-Marrero | last7 = Nacul | first7 = Luis | author-link8 = Luis Nacul | last8 = Alegre | first8 = Jose | author-link8 = José Alegre | last9 = Zalewski | first9 = Paweł | last10 = Słomko | first10 = Joanna | author-link10 = | last11 = Bolle Strand | first11 = Elin | author-link11 = Elin Bolle Strand | last12 = Pheby | first12 = Derek | author-link12 = Derek Pheby | last13 = Shikova | first13 = Evelina | author-link13 = Evelina Shikova | last14 = Lorusso | first14 = Lorenzo | author-link14 = Lorenzo Lorusso | last15 = Capelli | first15 = Enrica | author-link15 = Enrica Capelli | last16 = Sekulic | first16 = Slobodan | author-link16 = Slobodan Sekulic | last17 = Scheibenbogen | first17 = Carmen | author-link17 = Carmen Scheibenbogen | last18 = Sepúlveda | first18 = Nuno | author-link18 = Nuno Sepúlveda | last19 = Murovska | first19 = Modra | author-link19 = Modra Murovska | last20 = Lacerda | first20 = Eliana | authorlink20 = Eliana Lacerda | date = May 2020 | title = Systematic Review of the Epidemiological Burden of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Across Europe: Current Evidence and EUROMENE Research Recommendations for Epidemiology | url = https://www.mdpi.com/2077-0383/9/5/1557|journal=Journal of Clinical Medicine|language=en|volume=9|issue=5 | pages = 1557|doi=10.3390/jcm9051557|pmc=|pmid=|quote=|access-date=|via=}}</ref> - [https://www.mdpi.com/2077-0383/9/5/1557/htm (Full text)] ==Talks and interviews== *2007, Speaker at the 2nd [[Invest in ME International ME Conference]] - ''Epidemiology of ME/CFS''<ref>http://www.investinme.org/IIMEC2.shtml</ref> - [http://www.investinme.org/IIMEC2.shtml#dvd DVD available] *2013, [https://www.youtube.com/watch?v=a_fPLSKnTCU][[Action for ME]] AGM 2013 part three - Research<ref>https://www.youtube.com/watch?v=a_fPLSKnTCU Action for M.E. AGM 2013 part three - Research</ref> ==Online Presense== *[https://www.linkedin.com/in/derek-pheby-98440a14 Derek Pheby Linkedin] *[http://www.euromene.eu/workinggroups/COST_CV%20and%20Biosketch_Derek%20Pheby.pdf EUROMENE CV] ==See also== *[[EUROMENE]] *[[National ME Observatory]] ==References== <references> <ref name="de Carvalho Leite, 2011">{{Citation | last1 = de Carvalho Leite | first1 = JC | author-link1 = | last2 = de L Drachler | first2 = M | authorlink2 = | last3 = Killett | first3 = A | authorlink3 = | last4 = Kale | first4 = S | authorlink4 = | last5 =Nacul | first5 = L | author-link5 = Luis Nacul | last6 = McArthur | first6 = M | author-link6 = | last7 = Hong | first7 = CS | author-link7 = | last8 = O'Driscoll | first8 = L | author-link8 = | last9 =Pheby | first9 = D | author-link9 = Derek Pheby | last10 = Campion | first10 = P | author-link10 = | last11 = Lacerda | first11 = E | author-link11 = Eliana Lacerda | last12 = Poland | first12 = F | author-link12 = | title = Social support needs for equity in health and social care: a thematic analysis of experiences of people with chronic fatigue syndrome/myalgic encephalomyelitis | journal = International Journal for Equity in Health | volume = 2 | issue = 10 | page = 46 | date = 2011 | pmid = | doi = 10.1186/1475-9276-10-46 }}</ref> <ref name="Nacul, 2011">{{Citation | last1 = Nacul | first1 = LC | author-link1 = Luis Nacul | last2 = Lacerda | first2 = EM | authorlink2 = Eliana Lacerda | last3 =Campion | first3 = P | authorlink3 = | last4 =Pheby | first4 = D | authorlink4 = Derek Pheby | last5 =Drachler | first5 = M de L | author-link5 = | last6 = Leite | first6 = JC | author-link6 = | last7 = Poland | first7 = F | author-link7 = | last8 = Howe | first8 = A | author-link8 = | last9 =Fayyaz | first9 = S | author-link9 = | last10 = Molokhia | first10 = M | author-link10 = | title = The functional status and well being of people with myalgic encephalomyelitis/chronic fatigue syndrome and their carers | journal = BMC Public Health | volume = 11 | issue = 402 | page = | date = 2011 | pmid = | doi = 10.1186/1471-2458-11-402 }}</ref> <ref name="Nacul, 2014">{{Citation | last1 = Nacul | first1 = L | author-link1 = Luis Nacul | last2 = O'Donovan | first2 = DG | authorlink2 = | last3 =Lacerda | first3 = EM | authorlink3 = Eliana Lacerda | last4 = Gveric | first4 = D | authorlink4 = | last5 = Goldring | first5 = K | author-link5 = | last6 = Hall | first6 = A | author-link6 = | last7 = Bowman | first7 = E | author-link7 = | last8 = Pheby | first8 = D | author-link8 = Derek Pheby | title = Considerations in establishing a post-mortem brain and tissue bank for the study of myalgic encephalomyelitis/chronic fatigue syndrome: A proposed protocol | journal = BMC Research Notes | volume = 18 | issue = 10 | page = 370 | date = 2014 | pmid = | doi = 10.1186/1756-0500-7-370 }}</ref> <ref name="Osoba, 2007">{{Citation | last1 = Osoba | first1 = Tolu | author-link1 = | last2 = Pheby | first2 = Derek | authorlink2 = Derek Pheby | last3 = Gray | first3 = Selena| authorlink3 = | last4 =Nacul | first4 = Luis | authorlink4 = Luis Nacul | title = The Development of an Epidemiological Definition for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | journal = Journal of Chronic Fatigue Syndrome | volume = 14 | issue = 4 | page = 61-84 | date = 2007 | pmid = | doi = 10.3109/10573320802092112 }}</ref> <ref name="Pheby, 2009">{{Citation | last1 = Pheby | first1 = Derek | author-link1 = Derek Pheby | last2 = Saffron | first2 = Lisa | authorlink2 = | title = Risk factors for severe ME/CFS | journal = Biology and Medicine | volume =1 | issue = 4 | page = 50-74 | date = 2009 | url = http://www.meassociation.org.uk/wp-content/uploads/2013/04/Biology-and-Medicine_Published-paper_vol1_4_50-74.pdf }}</ref> <ref name="Pheby, 2010">{{Citation | last1 = Pheby | first1 = Derek | author-link1 = Derek Pheby | last2 = Sneddon | first2 = Peter | authorlink2 = | last3 =Heinrich | first3 = Inge | authorlink3 = | last4 = Sneddon | first4 = M Peter A | authorlink4 = | title = Severe ME/CFS in Adults-A report from the CHROME Database | journal = Bulletin of the IACFS/ME | volume =17 | issue = 4 | page = 143-167 | date = 2010 | url = https://www.researchgate.net/publication/228502135_Severe_MECFS_in_Adults-A_report_from_the_CHROME_Database }}</ref> </references> [[Category:Researchers]] [[Category:UK researchers]] [[Category:Clinicians]] [[Category:British clinicians]]
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