Deutsche Gesellschaft für ME/CFS
The Deutsche Gesellschaft für ME/CFS (German Association for ME/CFS) is a non-profit organization. It was founded in 2016 and is located in Hamburg.[1] The German Association is run by dedicated volunteers.
Aims[edit | edit source]
Its goals are rising awareness, educating and to gain medical and social recognition of ME/CFS in Germany.[2] The organization works closely together with the university hospital Charité in Berlin, the Lost Voices Foundation in Hannover and is official partner and supporter of MillionsMissing Germany. The German Association publishes monthly updates about international news and scientific studies about ME/CFS.[3]
Events[edit | edit source]
The German Association organized the German #MillionsMissing events in 2016[4], 2017[5] and partnered with MillionsMissing Germany for the protests in 2018[6] and 2019[7]. It also hosts Unrest screenings in Germany.[8]
It organized an ME/CFS conference (accredited for CME) 2019 in Hamburg.[9]
Notable projects[edit | edit source]
The German Association was among the best 25 of 100 projects in the 13th "startsocial" competition for social commitment 2016.[10] It was invited to the Bundeskanzleramt and honored by Federal Chancellor Angela Merkel.[11]
The organization successfully lodged a complaint against the methodological shortcomings[12] of the German "guideline tiredness" that includes a chapter on ME/CFS. It was able to prevent the guideline from issuing binding treatment recommendations with no scientific evidence (GET and CBT) for ME/CFS.[13]
Interviews and articles[edit | edit source]
- May 2019, ARD: "Mit 19 Jahren Pflegefall"
- May 2019, Tagesschau: "Fragen und Antworten: Permanent erschöpft – warum?"
- September 2018, WDR: "CFS: Keine eingebildete Krankheit"
- June 2018, BR: "Myalgische Enzephalomyelitis: Wenn die Grippe einfach nicht weggeht"
Videos[edit | edit source]
- May 2019, Talk by chairman Daniel Hattesohl at #MillionsMissing in Berlin
- May 2019, Talk by chairman Sebastian Musch at #MillionsMissing in Berlin
- May 2019, Talk by chairman Sebastian Musch at #MillionsMissing in Munich
- May 2018, Talk by chairman Daniel Hattesohl at #MillionsMissing in Berlin
- May 2018, Talk by chairman Sebastian Musch at #MillionsMissing in Berlin
- September 2016, #MillionsMissing in Hamburg
Photos[edit | edit source]
- June 2019, ME/CFS conference in Hamburg
- September 2016, #MillionsMissing in Hamburg
Online presence[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
- ↑ "Kontakt". Deutsche Gesellschaft für ME/CFS. Retrieved July 21, 2019.
- ↑ "Wir über uns". Deutsche Gesellschaft für ME/CFS. Retrieved July 21, 2019.
- ↑ "Aktuelles". Deutsche Gesellschaft für ME/CFS. Retrieved July 21, 2019.
- ↑ "#MillionsMissing". Deutsche Gesellschaft für ME/CFS. Retrieved July 21, 2019.
- ↑ "Internationaler ME/CFS-Tag 2017". Deutsche Gesellschaft für ME/CFS. May 12, 2017. Retrieved July 22, 2019.
- ↑ "ME/CFS – News Update 04/18". Deutsche Gesellschaft für ME/CFS. May 20, 2018. Retrieved July 21, 2019.
- ↑ "Int. ME/CFS-Tag | #MillionsMissing 2019". Deutsche Gesellschaft für ME/CFS. May 12, 2019. Retrieved July 21, 2019.
- ↑ "UNREST". Deutsche Gesellschaft für ME/CFS. Retrieved July 21, 2019.
- ↑ "ME/CFS-Forum 2019 in Hamburg". Deutsche Gesellschaft für ME/CFS. Retrieved July 21, 2019.
- ↑ "Projekte 2016 | startsocial". startsocial.de. Retrieved August 13, 2019.
- ↑ "Dt. Ges. für ME/CFS im Bundeskanzleramt ausgezeichnet". Deutsche Gesellschaft für ME/CFS. June 7, 2017. Retrieved August 13, 2019.
- ↑ "Stellungnahme zur »Leitlinie Müdigkeit«". Deutsche Gesellschaft für ME/CFS. February 1, 2018. Retrieved July 21, 2019.
- ↑ "DEGAM veröffentlicht revidierte Fassung der Leitlinie »Müdigkeit«". Deutsche Gesellschaft für ME/CFS. May 22, 2018. Retrieved July 21, 2019.
