Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Ean Proctor
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit
Edit source
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
'''Ean Proctor''' is an information systems manager and a sport photographer<ref>https://www.linkedin.com/in/ean-proctor-7315b227</ref> from the Isle of Man, [[United Kingdom|UK]], who developed a severe case of [[myalgic encephalomyelitis]] (ME) as a child. His [[misdiagnosis of myalgic encephalomyelitis and chronic fatigue syndrome|misdiagnosis]] and [[medical neglect and abuse|mistreatment]] by psychiatrists made international news. In 1986, when he was eleven years old, Proctor developed a [[flu-like illness]] that presented with fever, [[sore throat]], [[headache]], [[abdominal pain|stomach ache]], [[swollen lymph nodes|swollen glands]], malaise, and a prolonged course. It later progressed to include severe [[muscle fatigability|muscle weakness]], loss of balance, [[brain fog|inability to concentrate]], difficulty speaking and reading, and [[photophobia]]. His parents took him to many doctors, both local and in Liverpool and London, but when they were unable to agree on a diagnosis, he was told he had "[[school phobia]]" and an "over-protective mother." When he was 13-years-old, he was removed from his home against his parents' wishes and hospitalized under a "Place of Safety Order."<ref name="ahmf">{{Cite web | archive-date=2017-02-22|archive-url=http://web.archive.org/web/20170222013527/http://www.ahmf.org/ww-ean.html | title = Ean's Story|work=Interaction|issue=3 | date = Autumn 1989| first = Barbara | last = Proctor| publisher = Alison Hunter Memorial Foundation | url =http://www.ahmf.org/ww-ean.html}}</ref> While in the hospital his health deteriorated as he was subjected to inhumane treatments: being placed into a therapy pool to force him to use his arms to swim, although he was unable to and would sink underwater; being left in urine soaked clothes from wetting himself as no one would help him to the bathroom; only being allowed visits from his family for a half hour a day; and confiscating his dark glasses despite having [[photophobia]].<ref name="ahmf"/> After a lengthy court battle and confirmation of his [[myalgic encephalomyelitis|ME]] diagnosis from other physicians, he was discharged back to home after nearly six months in the hospital. He remained a Ward of Court but was allowed to see doctors who treated his physical symptoms.<ref name="ahmf"/> Sir [[Simon Wessely]], a British psychiatrist, who is a psychological paradigm proponent, was one of the consulting psychiatrists who recommended to the Principal Social Worker on the Isle of Man that Ean be removed from his family. Later, [[Simon Wessely|Wessely]] defended the paediatricians on the Isle of Man for that action and denied knowing anything about Ean's case, stating to an TV interviewer, βYou know very well I know nothing about these cases. I think itβs so rare [to remove a child from his home]. I mean, itβs never happened to me.β Despite claiming to "know nothing" about Ean's removal from his home, [[Simon Wessely|Wessely]]'s letter to Ean's paediatricians dated June 3, 1988, shows otherwise and was one of the main reasons the forced removal happened: <blockquote>"Ean presented with a history of an ability [sic] to use any muscle group which amounted to a paraplegia, together with elective mutatism [sic]. I did not perform a physical examination but was told that there was no evidence of any physical pathology...I was in no doubt that the primary problem was psychiatric [and] that his apparent illness was out of all proportion to the original cause. I feel that Ean's parents are very over involved in his care. I have considerable experience in the subject of '[[myalgic encephalomyelitis]]' and am absolutely certain that it did not apply to Ean. I feel that Ean needs a long period of rehabilitation [which] will involve separation from his parent. For this reason, I support the application made by your department for wardship.β<ref name="setstraight">{{Cite web | title = To set the record straight about Ean Proctor from the Isle of Man | first = Margaret | last = Williams | authorlink = Margaret Williams | date = 2005| url = http://www.margaretwilliams.me/2005/to-set-the-record-straight-about-ean-proctor-from-isle-of-man.pdf}}</ref></blockquote> Complaints and controversy about Ean's treatment continued for years as different health care providers gave widely different accounts of Ean's reaction to treatment, such as one who said "he had a transparent look and the aroma of death. A cold would have taken him" and others saying he fared better under hospitalization.<ref name="PMC1485798">{{Cite journal | first = Caroline | last = Richmond|journal=CMAJ | date = Jan 1994 |volume=150|issue=1 | pages = 66β67. | pmc= PMC1485798|pmid= 8275411 | title = Isle of Man provides unique forum for presenting health care grievances |url =https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1485798/}}</ref> [[Simon Wessely]] refuses to discuss Ean's case any further.<ref name="CFS Central">{{cite web|website=CFS Central | date = June 21, 2010 | title = ME/CFS patients do hard time in mental wards and foster care | url=http://www.cfscentral.com/2010/06/hard-cell.html|access-date=2022-03-30}}</ref> ==Talks and interviews== *Jul 25, 1993 - [https://www.youtube.com/watch?v=cDeu_OlMivU Video - "ME is still not taken seriously"] - Ean Proctor is interviewed by Dr. Anne McIntyre for the BBC4 program, ''Frontline.'' (Interview with Ean starts at the 2:45 minutes mark.) :*[http://www.blogistan.co.uk/blog/articles/transcript_of_frontline_documentary_on_me_from_1993 Transcript of ''Frontline'' documentary on ME from 1993] ==Media Coverage== *1989, [http://web.archive.org/web/20170222013527/http://www.ahmf.org/ww-ean.html Ean's Story - Interaction, Issue 3 Autumn 1989 - Barbara Proctor, Mother] - Alison Hunter Memorial Foundation *1994, [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1485798/pdf/cmaj00281-0068.pdf "Isle of Man provides unique forum for presenting health care grievances"] *2003, [[The Mental Health Movement: Persecution of Patients?]] - [[Malcolm Hooper]] *2005, [http://www.margaretwilliams.me/2005/to-set-the-record-straight-about-ean-proctor-from-isle-of-man.pdf To set the record straight about Ean Proctor from the Isle of Man] - [[Margaret Williams]] *2010, [http://www.cfscentral.com/2010/06/hard-cell.html ME/CFS patients do hard time in mental wards and foster care] - CFS Central ==Online presence== *[https://www.facebook.com/ean.proctor Facebook - personal page] *[https://www.facebook.com/Ean-Proctor-Photography-132283336851920/ Facebook - photography page] *[https://www.linkedin.com/in/ean-proctor-7315b227 LinkedIn] ==See also== *[[Severe and very severe ME]] *[[Simon Wessely]] *[[Medical Abuse In ME Sufferers (MAIMES)]] *[[Sophia Mirza]] *[[Karina Hansen]] ==References== {{Reflist}} [[Category:People with ME, CFS, and/or FMS]]
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Templates used on this page:
Template:Cite journal
(
edit
)
Template:Cite web
(
edit
)
Template:Main other
(
edit
)
Template:Reflist
(
edit
)
Module:Check for unknown parameters
(
edit
)
Module:Citation/CS1
(
edit
)
Module:Citation/CS1/COinS
(
edit
)
Module:Citation/CS1/Configuration
(
edit
)
Module:Citation/CS1/Date validation
(
edit
)
Module:Citation/CS1/Identifiers
(
edit
)
Module:Citation/CS1/Utilities
(
edit
)
Module:Citation/CS1/Whitelist
(
edit
)
Module:No globals
(
edit
)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs