Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Emily Collingridge
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit
Edit source
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
{{NeedsImage}} '''Emily Collingridge''' (1981-2012) was notable for her advocacy work despite having had severe [[myalgic encephalomyelitis]] (ME) since childhood. ==Illness== Emily contracted mumps in 1987 at the age of six, developing [[myalgic encephalomyelitis|ME]] as a result, although it would be nine years until she received a diagnosis of [[myalgic encephalomyelitis|ME]] in 1996. By this time she had become wheelchair-bound and her education had suffered as a result.<ref>[http://www.meassociation.org.uk/2012/03/emily-collingridge-1981-2012-such-a-short-life-such-a-huge-legacy/ ME Association - Emily Collingridge, 1981-2012: such a short life, such a huge legacy]</ref> Despite her compromised health, she started a job as the Public Relations and Fundraising Manager for the [[Association of Young People with ME]] (AYME). She then worked as a project adviser for several other charities. Emily's teens were painfully restricted and her twenties destroyed by her disease. She suffered greatly and came close to dying on more than one occasion. Emily suffered greatly from sensory stimulation which left her with surging pain, on the verge of vomiting, struggling with each breath. She could not be touched to be washed, was unable to raise her head and could not be lifted from her bed. Emily could not look out a window, watch television or listen to music. Although on a cocktail of medications, her suffering was incomprehensible. She suffered transient paralysis and at times she was blind and mute. Emotionally she was in fear of a medical crisis that would drive her to the hospital. Unsuitable hospital environments, with lights, sound and other stimulation contributed to her relapse in 2009/10.<ref>[http://www.blogistan.co.uk/blog/mt.php/2011/05/28/me-awareness-emily-collingridges-appeal ME Awareness: Emily Collingridge’s appeal]</ref> ===Death=== Emily died in hospital in 2012.<ref name=":0" /> An inquest into her death recorded a narrative verdict, stating the cause of death as "respiratory arrest in an individual with clinically diagnosed ME due to the possible side effects of prescription drugs and aspiration of gastric contents." ==Advocacy== Charity Public Relations had been Emily's career choice in school and when her disease remitted enough to campaign for [[myalgic encephalomyelitis|ME]] she did so even though often it was from her bed. She worked for Home-Start. She wrote a guide book "Severe ME/CFS: A Guide to Living".<ref>[http://www.meassociation.org.uk/2012/10/emily-collingridge-1981-2012-her-funeral-will-be-held-on-6-november-2012/ Emily Collingridge, 1981-2012: her funeral will be held on 6 November 2012 - ME Association]</ref><ref>[https://www.facebook.com/groups/114380158590669/ Severe ME/CFS: A Guide to Living Face Book Page]</ref> She wrote "Emily's Appeal," a history of her devastated life from a horrible disease and navigating an ignorant healthcare system. She wrote about the lack of research as being scandalous and the lack of necessary support for those who are suffering from [[myalgic encephalomyelitis|ME]].<ref>[http://www.meassociation.org.uk/2012/03/emily-collingridge-1981-2012-such-a-short-life-such-a-huge-legacy/ Emily Collingridge, 1981-2012: such a short life, such a huge legacy - See: Emily's Appeal - ME Association]</ref> ===Book=== Emily had periods of her [[myalgic encephalomyelitis|ME]] remitting when she could write. The book [[Severe ME/CFS: A Guide to Living]] was written during one of these time periods. This book is for patients, caregivers, friends or relatives of [[myalgic encephalomyelitis|ME]] patients or anyone interested in severe ME. It is being sold at cost. *[[Severe ME/CFS: A Guide to Living]] '''Synopsis:''' "This book provides help to patients with severe ME (Myalgic Encephalomyelitis) as well as the loved ones and professionals caring for them."<ref>[https://www.goodreads.com/book/show/11922103-severe-me-cfs Emily's Book: Severe ME/CFS: A Guide to Living]</ref> ===ME Awareness: Emily Collingridge’s appeal=== "This article is an open letter by Emily Collingridge, who is best known as the author of [[Severe ME/CFS: A Guide to Living]], a guide for patients and those involved in caring for them to the various aspects of life with severe [[myalgic encephalomyelitis|ME]]. Emily has had [[myalgic encephalomyelitis|ME]] for 24 years, since she was just six years old, and in the last few years has been bedridden and suffered numerous major health crises; she is probably one of the worst-affected people right now."<ref>[http://www.blogistan.co.uk/blog/mt.php/2011/05/28/me-awareness-emily-collingridges-appeal This article is an open letter by Emily Collingridge, who is best known as the author of Severe] [[ME/CFS]]: A Guide to Living - ME Awareness</ref> ==Articles and interviews== '''The Guardian''' '''[[myalgic encephalomyelitis|ME]] is often dismissed – but sufferers like Emily Collingridge are dying''' "On Sunday 18 March, Emily Collingridge, a beautiful 30-year-old activist and author, died after she was apparently no longer able to struggle against the chronic illness that had afflicted her since she was six."<ref>{{Cite web | url = http://www.theguardian.com/commentisfree/2012/mar/30/me-emily-collingridge-chronic-fatigue-syndrome | title = ME is often dismissed – but sufferers like Emily Collingridge are dying | last = Harris | first = Scott Jordan | authorlink = | date = 2012-03-30 | website = The Guardian|language=en|archive-url=|archive-date=|url-status=|access-date=2020-06-30}}</ref> '''The Telegraph''' '''Emily didn’t 'only’ have ME''' "Exactly a month ago today, an inquest ruled that Emily Collingridge, an ME (Myalgic encephalomyelitis) sufferer, died from the side-effects of prescription drugs she was taking to alleviate her terrible pain."<ref name=":0">{{Cite news |url = https://www.telegraph.co.uk/news/health/10137694/Emily-didnt-only-have-ME.html | title = Emily didn’t 'only’ have ME | last = Whittingham | first = Naomi | date = 2013-06-23|work=The Telegraph|access-date=2020-06-30|archive-url=|archive-date=|url-status=|language=en-GB|issn=0307-1235|quote= | author-link = Naomi Whittingham}}</ref> ===Obituaries=== [[ME Association]] '''Emily Collingridge, 1981-2012: such a short life, such a huge legacy''' "Emily Collingridge, who died in hospital on Sunday at the age of 30, had hardly lived – but she leaves a huge legacy. It will endure in the form of ‘[[Severe ME/CFS: A Guide to Living]]’, the 140-page book which she researched and compiled when all the health odds were stacked against her. It’s been on the ME Association’s highly recommended list since it was first published two years ago."<ref>[http://www.meassociation.org.uk/2012/03/emily-collingridge-1981-2012-such-a-short-life-such-a-huge-legacy/ Emily Collingridge, 1981-2012: such a short life, such a huge legacy - ME Association]</ref> '''ME/CFS Australia''' '''Emily Rose Collingridge, 1981-2012''' "Today I heard the very sad news that Emily Collingridge, the author of the book Severe ME/CFS: A Guide to Living, had died. She passed away in hospital last Sunday afternoon, after a long admission. She was 30 years old and had been bedridden since her late teens, during which she had worked in a voluntary capacity for AYME ([[Association of Young People with ME]]) and the family support charity, Home-Start. She did both of these jobs from her bed, but was forced to stop when she suffered a devastating relapse in 2005."<ref>[http://sacfs.asn.au/news/2012/03/03_30_emily_rose_collingridge.htm Emily Rose Collingridge, 1981-2012 - SACFS]</ref> ===Remembrance=== [[Invest in ME Research]] '''In Remembrance: Emily Rose Collingridge, 17th April 1981 - 18th March 2012''' [https://www.25megroup.org/wp-content/uploads/2018/07/A-Day-for-Remembrance-Emily.pdf In Remembrance: Emily Rose Collingridge] was published by the 25% ME Group shortly before the 4th annual day for [[Severe ME Awareness Day|understanding and awareness of severe ME]].<ref name=IMER2016>{{Cite web | url = https://www.25megroup.org/wp-content/uploads/2018/07/A-Day-for-Remembrance-Emily.pdf | title=In Remembrance: Emily Rose Collingridge | date = Jul 2017 | website = [[Invest in ME Research]]}}</ref> It includes several articles written by Emily before her death, and a description of Emily's last hospital admission, written by her mother who stayed at the hospital with her.<ref name=IMER2016 /> ==Learn more== *2016, [http://forums.phoenixrising.me/index.php?threads/for-severe-me-day-august-8th-mother-of-the-late-campaigner-emily-collingridge-writes-article.46074/ For severe ME day, August 8th, mother of the late campaigner Emily Collingridge writes article] *2016, [http://www.shoutoutaboutme.com/about-me/severity/body-count-the-tragic-stories-of-severe-me/ "Body Count: the tragic stories of severe ME" by Russell Logan] ==References== {{Reflist}} [[Category:People with ME, CFS, and/or FMS]] [[Category:Advocates or allies]] [[Category:British advocates or allies]] [[Category:Authors]] [[Category:Deceased people with ME, CFS, and/or FMS]]
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Templates used on this page:
Template:Cite news
(
edit
)
Template:Cite web
(
edit
)
Template:Main other
(
edit
)
Template:NeedsImage
(
edit
)
Template:Reflist
(
edit
)
Module:Check for unknown parameters
(
edit
)
Module:Citation/CS1
(
edit
)
Module:Citation/CS1/COinS
(
edit
)
Module:Citation/CS1/Configuration
(
edit
)
Module:Citation/CS1/Date validation
(
edit
)
Module:Citation/CS1/Identifiers
(
edit
)
Module:Citation/CS1/Utilities
(
edit
)
Module:Citation/CS1/Whitelist
(
edit
)
Module:No globals
(
edit
)
This page is a member of a hidden category:
Category:Articles that need an image or photo
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs