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Kenneth Friedman
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[[File:Kenneth Friedman.png|200px|thumb|right]] '''Kenneth J. Friedman''', PhD, is a retired Associate Professor of Pharmacology and Physiology, New Jersey Medical School, University of Medicine and Dentistry of NJ, Newark, New Jersey. He was a trainer of the [[Centers for Disease Control and Prevention]]’s [[Chronic Fatigue Syndrome]] Continuing Medical Education Course and delivered continuing medical education courses to physicians and other healthcare professionals throughout the United States. After the [[Centers for Disease Control and Prevention|CDC]] discontinued its continuing medical education course for Chronic Fatigue Syndrome, he developed his own continuing medical education course for Chronic Fatigue Syndrome, approved by the American Academy of Family Physicians, and delivered that program to physicians around the U.S.<ref name=":1">{{Cite web | url = http://immunedysfunction.org/images/51215friedman.pdf | title=A Researcher’s Review of the IOM Report: Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness | last = Friedman | first = Kenneth J. | authorlink = Kenneth Friedman | date = March 17, 2015 | website = immunedysfunction.org|archive-url=|archive-date=|url-status=|access-date=}}</ref> He retired after he was denied promotion, officially reprimanded, and subjected to an ethics investigation, merely for researching ME/CFS at a medical school that did not include ME/CFS in its curriculum.<ref name=":0">{{Cite web | url = http://immunedysfunction.org/images/Elephants%20in%20the%20Room%20As%20Delivered.pdf | title=Elephants in the Room: Acknowledging Impediments to ME-CFS Research, Education, and Clinical Care | last = Friedman | first = Kenneth J. | authorlink = Kenneth Friedman | date = April 8, 2011 | website = immunedysfunction.org|archive-url=|archive-date=|url-status=|access-date=}}</ref> His passion for [[ME/CFS]] advocacy is fueled by the fact that his daughter has [[Chronic fatigue syndrome|CFS]] and [[fibromyalgia]] after getting mononucleosis her freshman year in college.<ref name=":2">{{Cite web | url = https://phoenixrising.me/interviews-3/an-interview-with-researcher-advocate-and-author-ken-friedman-ph-d-part-i-the-federal-response-to-mecfs-and-the-chronic-fatigue-syndrome-advisory-committee-by-cort-johnson | title = An Interview With Researcher, Advocate and Author Ken Friedman Ph.D. Part I: The Federal Response to ME/CFS and the Chronic Fatigue Syndrome Advisory Committee. By Cort Johnson. | last = Johnson | first =Cort | authorlink=Cort Johnson | date = | website = Phoenix Rising|language=en-US|archive-url=|archive-date=|url-status=|access-date=2019-09-03}}</ref> ==Advocacy == === Boards === Dr. Friedman has served on the Board of the [[International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]] (IACFS/ME) and is a Trustee of the [[New Jersey ME/CFS Association|New Jersey ME/CFS Association (NJMECFSA)]]. Dr. Friedman was, also, the Secretary and Chair of Public Policy for [http://www.pandoraorg.net/ PANDORA Org] and an advisor to the website [http://www.cfsknowledgecenter.com/ cfsKnowledgebase].<ref>{{Cite web | url = https://www.healthrising.org/authors/kenneth-friedman-p-hd/ | title = Kenneth Friedman P.hD | website = Health Rising|language=en-GB|access-date=2019-09-03}}</ref> He is currently serving as a Board member of both the [[New Jersey ME/CFS Association]] and the [[The Vermont CFIDS Association]].<ref name=":1" /> ===CFSAC=== From 2003-2006, he served on the [[Chronic Fatigue Syndrome Advisory Committee]] (CFSAC) for the [[U.S. Department of Health and Human Services]], as a member of the Research Committee. During his term, he wrote a Research Committee minority report entitled, “[http://immunedysfunction.org/fishorwar.html Fish Or War]." In it he argues that the [[National Institutes of Health]] had not solved CFS in the past 15 or 20 years, so new "more aggressive funding elements should be incorporated into the United States’ future funding of CFS research."<ref>{{Cite web | url = http://immunedysfunction.org/fishorwar.html | title = Fish or War?|website=immunedysfunction.org|access-date=2019-09-03}}</ref> In 2014, he was the Sub-group Chair of the [[CFSAC]] Working Group justifying the establishment and funding of ME/CFS Centers of Excellence by the [[U.S. Department of Health and Human Services]].<ref>http://www.hhs.gov/advcomcfs/meetings/minutes/cfsac-dec3-2014-meeting-minutes-rev-3-02-2015.pdf</ref><ref name=":2" /> ===Open letter to ''The Lancet''=== Two [[open letter to the Lancet | open letters to the editor of ''The Lancet'']] urged the editor to commission a fully independent review of the [[PACE trial]], which the journal had published in 2011. In 2016, Dr. Friedman, along with 41 colleagues in the [[ME/CFS]] field, signed the second letter. *10 February 2016, [http://www.virology.ws/2016/02/10/open-letter-lancet-again/ An open letter to The Lancet, again - Virology blog] ==Writing committees== Dr. Friedman was a member of the writing committee for several primers and manuals, including: *2002, ''Consensus Manual for the Primary Care and Management of Chronic Fatigue Syndrome'' sponsored by The Academy of Medicine of New Jersey and the New Jersey Department of Health and Senior Services. The authored the first chapter "Pathophysiology in CFS" and co-authored chapter 3, "Infections in CFS," and chapter 10, "Gastrointestinal Symptoms in CFS."<ref>Oleske JJ. A Consensus Manual for the Primary Care and Management of Chronic Fatigue Syndrome. The Academy of Medicine of New Jersey, The New Jersey Department of Health & Senior Services; 2002.</ref> *2006, ''Chronic Fatigue Syndrome in Children and Adolescents''<ref name="Oleske, 2006">{{Citation | last1 = Oleske | first1 = James M. | authorlink1 = James Oleske | last2 = Friedman | first2 = Kenneth J. | authorlink2 = Kenneth Friedman | last3 = Kaufman | first3 = Kenneth R. | authorlink3 = | last4 = Palumbo | first4 = Donna| authorlink4 = | last5 = Sterling|first5 = Jonathan | authorlink5 = | last6 = Evans | first6 = Terri Lynn | authorlink6 = | title = Chronic Fatigue Syndrome in Children and Adolescents| journal = Journal of Chronic Fatigue Syndrome| volume = 13 | issue = 2-3|page = | date = 2006| pmid= |doi= 10.1300/J092v13n02_07}}</ref> *2012 and 2014 editions of ''ME/CFS: A Primer for Clinical Practitioners'' sponsored by the [[International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]]<ref>{{Cite web | url = https://www.iacfsme.org/primer_post_2014_conference/ | title = ME/CFS: A Primer for Clinical Practitioners | last = Members of the IACFS/ME | first = Primer Writing Committee| authorlink = | date = | website = IACFS/ME|archive-url=|archive-date=|url-status=|access-date=2019-09-03}}</ref>- [https://www.iacfsme.org/primer_post_2014_conference/ (Full text)] *2017, ''Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer'' by [[Peter Rowe|Peter C. Rowe]], [[Rosemary Underhill|Rosemary A. Underhill]], Kenneth J. Friedman, [[Alan Gurwitt]], [[Marvin Medow|Marvin S. Medow]], [[Malcolm Schwartz|Malcolm S. Schwartz]], [[Nigel Speight]], [[Julian Stewart|Julian M. Stewart]], [[Rosamund Vallings]] and [[Katherine Rowe|Katherine S. Rowe]]<ref name="Rowe, et al, 2017" /> - [http://journal.frontiersin.org/article/10.3389/fped.2017.00121/full (Full Text)] ==Speaking engagements== * May 12, 2007 - Dr. Friedman presented the keynote speech at [[The Vermont CFIDS Association]] CFS Awareness Day held in Burlington, VT.<ref name=":2" /> * April 28, 2011 - The [[National Institutes of Health]] invited Dr. Friedman to the [[NIH]]-Sponsored ME/CFS State of Knowledge Workshop, where he delivered a speech: [http://immunedysfunction.org/images/Elephants%20in%20the%20Room%20As%20Delivered.pdf "Elephants in the Room: Acknowledging Impediments to ME-CFS Research, Education, and Clinical Care"]<ref name=":0" /> * March 21, 2014 - Dr. Friedman presented a talk entitled "Home-Based Self-Management for Severe CFS/ME: A Randomized Trial" at the [[International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis|IACFSME]] conference in San Francisco. * Oct 3, 2019 - "[https://www.youtube.com/watch?v=6pFGi4Q_Icg Advances in ME CFS Research and Clinical Care]" sponsored by [[Solve ME/CFS Initiative]]<ref>{{Citation | title = Solve M.E. Webinar: Advances in ME CFS Research and Clinical Care | url = https://www.youtube.com/watch?v=6pFGi4Q_Icg|language=en|access-date=2019-10-21}}</ref> ==Articles== * After the [[Institute of Medicine report]] was released, Dr. Friedman wrote a [http://immunedysfunction.org/images/51215friedman.pdf review] in which he states: <blockquote> "The report was written to develop a series of recommendations to assist in the development of policies that will guide future ME/CFS research, education and patient support. The IOM report needs to be placed in the broader ME/CFS environment. Additional input regarding the historical, medical, social and research environment of ME/CFS needs to be received by the Department of Health and Human Services prior to the development of new ME/CFS policies and initiatives. That input should be provided by responsible ME/CFS researchers, clinicians, healthcare educators, patient advocacy organizations, patients, social scientists and social services organizations. Only then can the correct path forward for ME/CFS be projected."<ref name=":1" /></blockquote> * On Oct 13, 2016, Dr. Friedman wrote a position paper, [http://solvecfs.org/wp-content/uploads/2016/12/MECFS-As-A-Stigmatixed-Illness.pdf "Increasing Efficacy of the CDC’s ME/CFS Educational Program"] about the [[Centers for Disease Control]] (CDC) fourth attempt of revising and creating meaningful educational materials for its Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) educational program so as to not contain illness stigmatizing elements.<ref>{{Cite web | url = https://www.meaction.net/2016/10/13/efficacy-of-the-cdcs-mecfs-educational-program/ | title = Increasing Efficacy of the CDC’s ME/CFS Educational Program | date = 2016-10-13 | website = #MEAction|language=en-US|access-date=2019-09-03}}</ref> * Aug 2019, Editorial: Advances in ME/CFS Research and Clinical Care<ref>{{Cite journal | last = Friedman | first = Kenneth | authorlink = Kenneth Friedman | last2 = Bateman | first2 = Lucinda | authorlink2 = Lucinda Bateman | last3 = Bested | first3 = Alison C. | authorlink3 = Alison Bested | last4 = Nahle | first4 = Zaher | authorlink4 = Zaher Nahle | date = Aug 2019 | title = Editorial: Advances in ME/CFS Research and Clinical Care | url = https://www.frontiersin.org/articles/10.3389/fped.2019.00370/full|journal=Frontiers in Pediatrics|volume=|issue=|pages=|doi=10.3389/fped.2019.00370|pmc=|pmid=|access-date=|quote=|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6482157/ (Full text)] ==Notable studies== *2017, Access to Medical Care for Individuals with [[Myalgic encephalomyelitis|Myalgic Encephalomyelitis]] and [[Chronic fatigue syndrome|Chronic Fatigue Syndrome]]: A Call for Centers of Excellence<ref>{{Cite journal | last = Sunnquist | first = Madison | authorlink = Madison Sunnquist | last2 = Nicholson | first2 = Laura | last3 = Jason | first3 = Leonard A. | authorlink3 = Leonard Jason | last4 = Friedman | first4 = Kenneth J. | authorlink4 = Kenneth Friedman | date = Apr 2017 | title = Access to Medical Care for Individuals with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome: A Call for Centers of Excellence | url = http://www.isaacpub.org/images/PaperPDF/MCMR_100008_2017052511044178152.pdf | journal=Modern Clinical Medicine Research|volume=1|issue=1|pages=|doi=10.22606/mcmr.2017.11005|issn=2521-0637|pmc=|pmid=28713878|via=}}</ref> - [https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5510655/ (Full Text)] ==Talks and interviews== *2011, [http://sacfs.asn.au/news/2011/10/10_11_radio_interview_with_dr_ken_friedman.htm Radio interview with Dr. Ken Friedman] *2014, [https://www.youtube.com/watch?v=NpLair0epYM Rituximab & ME/CFS] *2014, [https://www.youtube.com/watch?v=Uj9Z2bSbB1Q ME/CFS: Why Do I Feel This Way] *2014, [https://www.youtube.com/watch?v=5DudFQnESJ4 ME/CFS What We Know About Causes] *2014, [https://www.youtube.com/watch?v=qFZkqhvpRq4ME/CFS Biomarkers] *2016, [https://www.cctv.org/watch-tv/programs/immune-dysfunction-mecfs-awareness-panel-2016 Immune Dysfunction (ME/CFS) Awareness Panel 2016] *2021, [https://youtu.be/HIDZZZqYtjU Physical & Occupational Therapy for ME/CFS and Similar Chronic Illnesses] ==See also== *[[Chronic Fatigue Syndrome Advisory Committee]] *[http://njcfsa.org/ New Jersey Chronic Fatigue Syndrome Association (NJCFSA)] *[http://immunedysfunction.org/ Vermont CFIDS Association] *[[Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer]] ==Learn more== *[http://phoenixrising.me/interviews-3/an-interview-with-researcher-advocate-and-author-ken-friedman-ph-d-part-i-the-federal-response-to-mecfs-and-the-chronic-fatigue-syndrome-advisory-committee-by-cort-johnson Interview with Cort Johnson] *[http://immunedysfunction.org/fishorwar.html "Fish Or War"] ==References== <references> <ref name="Rowe, et al, 2017">{{Citation | last1 = Rowe | first1 = Peter C. | authorlink1 = Peter Rowe | last2 = Underhill | first2 = Rosemary A. | authorlink2 = Rosemary Underhill | last3 =Friedman | first3 = Kenneth J. | authorlink3 = Kenneth Friedman | last4 = Gurwitt | first4 = Alan | authorlink4 = Alan Gurwitt | last5 = Medow | first5 = Marvin S. | authorlink5 = Marvin Medow | last6 = Schwartz | first6 = Malcolm S. | authorlink6 = Malcolm Schwartz | last7 = Speight | first7 = Nigel | authorlink7 = Nigel Speight | last8 = Stewart | first8 = Julian M. | authorlink8 = Julian Stewart | last9 = Vallings | first9 = Rosamund | authorlink9 = Rosamund Vallings | last10 = Rowe | first10 = Katherine S. | authorlink10 = Katherine Rowe | title = Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer | journal = Frontiers in Pediatrics | volume = 5 | issue = 121 | page = | date = 2017 | pmid = | doi = 10.3389/fped.2017.00121 }}</ref> </references> [[Category:Advocates or allies]] [[Category:American advocates or allies]] [[Category:Authors]] [[Category:Psychological paradigm critics]] [[Category:PACE trial critics]] [[Category:CFSAC members]]
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