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Lightning Process
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===SMILE trial=== In a joint statement in August 2010, the [[ME Association]] and [[the Young ME Sufferers Trust]] called the [[SMILE trial]] "unethical" saying, "The ME Association and The Young ME Sufferers Trust do not believe that it is ethically right to use children in trialling an unproven and controversial process such as the Lightning Process."<ref name="unethical">{{Cite web|url = http://www.meassociation.org.uk/study-involving-children-and-the-lightning-process-is-unethical-says-joint-charity-statement/| title = Statement of ME Association and Young Sufferers Trust on SMILE | date = Aug 2010 | website = ME Association}}</ref> [[Invest in ME Research]], in a letter to the UK's National Research Ethics Committee (NRES), described the process as "rather like [[CBT]] but with bullying and risks of harm."<ref name="IiMER">{{Cite web|url = http://www.investinme.org/Article-501%20Childrens%20Study.htm| title = Letter to National Research Ethics Committee | last = Invest in ME Research | authorlink = Invest in ME Research | date =Oct 2010|access-date=|website=|first = |archive-url=|archive-date=|url-status=}}</ref> Professor Robin Gill, a member of the [[British Medical Association]] medical ethics committee, wrote to the Church Times about the LP and the SMILE trial. He expressed concern about the issue of coercion of children in the trial.<ref name="Gill">{{Cite web|url = https://meagenda.wordpress.com/2010/10/14/children-should-not-be-used-as-guinea-pigs-prof-robin-gill-church-times-lp-pilot-study/ | title = Children should not be used as Guinea Pigs | last = Church Times | date = Oct 8, 2010}}</ref> '''[[The BMJ]] Archives of Disease in Childhood,''' Dr. Nick Brown, Editor-in-Chief Archives of Disease in Childhood, published by the BMJ, added an Editor's Note to the trial article 'Clinical and cost-effectiveness of the Lightning Process in addition to specialist medical care for paediatric chronic fatigue syndrome: randomised controlled trial'. :Editor's note :This study was published online in Archives of Disease in Childhood after peer review in September 2017. The trial tested the effectiveness of a neurolinguistic programming intervention (used widely but never formally tested) in children and young people with chronic fatigue recruited between 2010 and 2013. Though the number of participants was small, analysis suggested a benefit in terms of physical function (measured by the standard SF 36 scale) at both 6 and 12 months after intervention. :Since publication, the study has been criticised for failing to meet ICMJE and BMJ policy on trial registration and for not fully adhering to CONSORT guidance on trial reporting. The journal has been criticised for not detecting these issues during editorial and peer review. We have acknowledged these comments and reviewed our processes in relation to this paper and relating to EQUATOR guidance in general. In addition, we have received clarifications from the authors which are under editorial consideration.<ref name="ADC" /> '''[[Trial By Error]] by [[David Tuller]], DrPH via [[Virology blog]]''' *Dec 13, 2017, [http://www.virology.ws/2017/12/13/trial-by-error-the-smile-trials-undisclosed-outcomes/ The SMILE Trial's Undisclosed Outcome-Swapping] *Jan 17, 2018, [http://www.virology.ws/2018/01/17/trial-by-error-professor-crawleys-bogus-buzzfeed-claims/ Professor Crawley’s Bogus BuzzFeed Claims] *Jan 30, 2018, [http://www.virology.ws/2018/01/30/trial-by-error-a-letter-to-archives-of-disease-in-childhood/ A Letter to Archives of Disease in Childhood] *Feb 19, 2018, [http://www.virology.ws/2018/02/19/trial-by-error-a-letter-to-bmj-open/ A Letter to BMJ Open] *March 7, 2018, [http://www.virology.ws/2018/03/07/trial-by-error-my-exchange-with-archives-of-disease-in-childhood/ My Exchange With Archives of Disease in Childhood] *May 28, 2018, [http://www.virology.ws/2018/05/28/trial-by-error-nices-consideration-of-the-lightning-process/ NICE’s Consideration of the Lightning Process] *Jun 4, 2018,[http://www.virology.ws/2018/06/04/trial-by-error-bmj-still-looking-into-lightning-process-paper/ BMJ Still “Looking Into” Lightning Process Paper] *Jun 11, 1018, [http://www.virology.ws/2018/06/11/trial-by-error-more-letters-about-bmjs-flawed-pediatric-studies/ More Letters About BMJ's Flawed Pediatric Studies] *Jul 11, 2018, [http://www.virology.ws/2018/07/11/trial-by-error-waiting-for-godlee/ Waiting for Godlee] *Jul 11, 2018, [http://www.virology.ws/2018/07/11/trial-by-error-my-letter-to-the-science-and-technology-committee/ Trial By Error: My Letter to Parliament’s Science and Technology Committee] *Aug 21, 2019, Trial By Error: [https://www.virology.ws/2019/08/21/trial-by-error-joan-mcparlands-lightning-process-experience/ Joan Parland's Lightning Process Experience]
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