ME/CFS: Difference between revisions
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'''Persons living with ME/CFS'''<gallery widths="200" heights="200" class="center"> | '''Persons living with ME/CFS'''<gallery widths="200" heights="200" class="center"> | ||
File:Keith Geraghty.png|thumb|right|Dr. [[Keith Geraghty]] is a [[UK]] researcher and an ME/CFS patient. He helped analyze the [[PACE trial]] data and found the results published in ''[[The Lancet]]'' were untrue | File:Keith Geraghty.png|thumb|right|Dr. [[Keith Geraghty]] is a [[UK]] researcher and an ME/CFS patient. He helped analyze the [[PACE trial]] data and found the results published in ''[[The Lancet]]'' were untrue | ||
File:Carol Head.png|thumb|[[Carol Head]] is an [[American]] and CEO of the [[Solve ME/CFS Initiative]]. Although she has ME/CFS she did improve greatly; she believes she dodged a bullet and is 95% recovered | File:Carol Head.png|thumb|[[Carol Head]] is an [[American]] and former CEO of the [[Solve ME/CFS Initiative]]. Although she has ME/CFS she did improve greatly; she believes she dodged a bullet and is 95% recovered | ||
File:Brian vastag.png|thumb|right|[[Brian Vastag]] is an American and award-winning journalist and an ME/CFS patient that won a disability case against Prudential, proving that [[PEM]] is a severe symptom that keeps him from gainful employment | File:Brian vastag.png|thumb|right|[[Brian Vastag]] is an American and award-winning journalist and an ME/CFS patient that won a disability case against Prudential, proving that [[PEM]] is a severe symptom that keeps him from gainful employment | ||
File:Cort Johnson.jpg|thumb|right|[[Cort Johnson]] is an American and an advocate, blogger, and online reporter for ME/CFS. He became ill with [[CFS]] and [[Fibromyalgia]] in 1980. He founded ''[[Phoenix Rising]]'' and ''[[Health Rising]]'', both being "Citizen Science" blogs and forums. He works for [[Simmaron Research]] | File:Cort Johnson.jpg|thumb|right|[[Cort Johnson]] is an American and an advocate, blogger, and online reporter for ME/CFS. He became ill with [[CFS]] and [[Fibromyalgia]] in 1980. He founded ''[[Phoenix Rising]]'' and ''[[Health Rising]]'', both being "Citizen Science" blogs and forums. He works for [[Simmaron Research]] | ||
Revision as of 18:48, October 10, 2019
The acronym ME/CFS is commonly used as an umbrella term to cover the various case definitions employed to describe myalgic encephalomyelitis (ME) and/or chronic fatigue syndrome (CFS). Case definitions vary widely, with some being so broad as to cover numerous unrelated illnesses.[1] Even among the narrower case definitions, it is unclear if ME is equivalent to CFS, is a specific form of it, or something entirely different. In ME/CFS research, the terms are often used synonymously, though there is no clear evidence to support either equating them or separating them.
ME was the original name for CFS; the names are used interchangeably or with the acronym ME/CFS.[2] United States (US) government bodies now use the acronym.[3] The US Centers for Disease Control and Prevention's (CDC) website page is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).[4] The acronym CFS/ME is used by the National Health Service (NHS) in the United Kingdom.[5] The CDC recognizes ME/CFS as a "disabling and complex disease"[6]
"The most common overlapping condition with ME/CFS is fibromyalgia."[7][8] While some have posited ME/CFS and fibromyalgia are variants of the same illness, Benjamin Natelson, MD summoned considerable amounts of data that suggest the two illnesses differ with different pathophysiologic processes leading to different treatments.[9]
See also[edit | edit source]
- Myalgic encephalomyelitis
- Pediatric myalgic encephalomyelitis and chronic fatigue syndrome
- Prognosis for myalgic encephalomyelitis and chronic fatigue syndrome
- Severe and very severe ME
Case definitions for ME/CFS
- Canadian Consensus Criteria (CCC)[10] A diagnosis of moderate and severe forms of ME/CFS are accurately made using this criterion. Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.
- Systemic Exertion Intolerance Disease (SEID)[11] ME/CFS (SEID) is accurately diagnosed when the core symptoms are met. The Institute of Medicine report as a whole is a comprehensive review of the medical literature available at time of publication (2015). Adults can be diagnosed at 6 months while pediatric cases are diagnosed at three months.
Case definition for ME
- International Consensus Criteria (ICC)[12] This criterion will accurately diagnose myalgic encephalomyelitis (ME). There is no requirement that the individual have symptoms for a specified period of time for diagnosis, as opposed to CCC, Fukuda, and SEID, which all require 6 months in adults.
Learn more[edit | edit source]
Persons living with ME/CFS
Dr. Keith Geraghty is a UK researcher and an ME/CFS patient. He helped analyze the PACE trial data and found the results published in The Lancet were untrue
Carol Head is an American and former CEO of the Solve ME/CFS Initiative. Although she has ME/CFS she did improve greatly; she believes she dodged a bullet and is 95% recovered
Brian Vastag is an American and award-winning journalist and an ME/CFS patient that won a disability case against Prudential, proving that PEM is a severe symptom that keeps him from gainful employment
Cort Johnson is an American and an advocate, blogger, and online reporter for ME/CFS. He became ill with CFS and Fibromyalgia in 1980. He founded Phoenix Rising and Health Rising, both being "Citizen Science" blogs and forums. He works for Simmaron Research
Ryan Prior was a healthy, athletic American high school student when he became ill with ME/CFS in 2006. Prior wrote an article for USA Today: College Viewpoint: The real story of chronic fatigue syndrome. Ryan and his then-girlfriend, Nicole Castillo, co-directed Forgotten Plague
Laura Hillenbrand is an American and an award-winning author having two books made into acclaimed movies. She became ill in 1987 and has said about the illness “Fatigue is what we experience, but it is what a match is to an atomic bomb.”
References[edit | edit source]
- ↑ "What is Chronic Fatigue Syndrome & Myalgic Encephalomyelitis? - Prohealth". Prohealth. Retrieved August 11, 2018.
- ↑ Dellwo, Adrienne (November 24, 2018). "Myalgic Encephalomyelitis or Chronic Fatigue Syndrome". Verywell Health. Retrieved November 28, 2018. Cite has empty unknown parameter:
|dead-url=(help) - ↑ "Biomarker Research Advances in 'Chronic Fatigue Syndrome". Medscape.com. November 8, 2016. Retrieved February 7, 2019.
The condition, now called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) by US government bodies,
Cite has empty unknown parameter:|dead-url=(help) - ↑ "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) | CDC". www.cdc.gov. July 3, 2018. Retrieved September 7, 2018.
- ↑ "Chronic fatigue syndrome (CFS/ME)". nhs.uk. Retrieved August 13, 2018.
- ↑ "What is ME/CFS? | Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) | CDC". www.cdc.gov. January 18, 2019. Retrieved April 12, 2019.
- ↑ "Overlapping Conditions - American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society". ammes.org. Retrieved August 12, 2018. Cite has empty unknown parameter:
|dead-url=(help) - ↑ Jason, Leonard; Taylor, R.R.; Kennedy, C.L.; Song, S; Johnson, D; Torres, S.R. (January 1, 2001). "Chronic fatigue syndrome: Comorbidity with fibromyalgia and psychiatric illness". Medicine and Psychiatry. 4: 29–34.
- ↑ Natelson, Benjamin H. (February 19, 2019). "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Fibromyalgia: Definitions, Similarities, and Differences". Clinical Therapeutics. 0 (0). doi:10.1016/j.clinthera.2018.12.016. ISSN 0149-2918. PMID 30795933.
- ↑ Carruthers, Bruce M.; Jain, Anil Kumar; De Meirleir, Kenny L.; Peterson, Daniel L.; Klimas, Nancy G.; Lerner, A. Martin; Bested, Alison C.; Flor-Henry, Pierre; Joshi, Pradip; Powles, A C Peter; Sherkey, Jeffrey A.; van de Sande, Marjorie I. (2003), "Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Clinical Working Case Definition, Diagnostic and Treatment Protocols" (PDF), Journal of Chronic Fatigue Syndrome, 11 (2): 7-115, doi:10.1300/J092v11n01_02
- ↑ Clayton, Ellen Wright; Alegria, Margarita; Bateman, Lucinda; Chu, Lily; Cleeland, Charles; Davis, Ronald; Diamond, Betty; Ganiats, Theodore; Keller, Betsy; Klimas, Nancy; Lerner, A Martin; Mulrow, Cynthia; Natelson, Benjamin; Rowe, Peter; Shelanski, Michael (2015). "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining an Illness" (PDF). nationacademies.org. Cite has empty unknown parameter:
|dead-url=(help) - ↑ Carruthers, Bruce M.; van de Sande, Marjorie I.; De Meirleir, Kenny L.; Klimas, Nancy G.; Broderick, Gordon; Mitchell, Terry; Staines, Donald; Powles, A. C. Peter; Speight, Nigel; Vallings, Rosamund; Bateman, Lucinda; Baumgarten-Austrheim, Barbara; Bell, David; Carlo-Stella, Nicoletta; Chia, John; Darragh, Austin; Jo, Daehyun; Lewis, Donald; Light, Alan; Marshall-Gradisnik, Sonya; Mena, Ismael; Mikovits, Judy; Miwa, Kunihisa; Murovska, Modra; Pall, Martin; Stevens, Staci (August 22, 2011). "Myalgic encephalomyelitis: International Consensus Criteria". Journal of Internal Medicine. 270 (4): 327–338. doi:10.1111/j.1365-2796.2011.02428.x. ISSN 0954-6820. PMC 3427890. PMID 21777306.
