MEpedia:Suggested tasks

This page lists suggestions for improvements to MEpedia.

Please feel encouraged to consider making the relevant page or edit yourself (see How to contribute to get started!), as many editors of MEpedia are sick and working hard to improve the content in particular areas. We need your help!

But if you can't make the improvement yourself, add your suggestion to the end of the appropriate section. Please briefly detail your suggestion, including the name of the MEpedia page(s) that need creating or editing, and web links to sources/citations (e.g., the published study, a source for a quote, etc.) Then sign your suggestion with your name and the date.

Tip: If you'd just like to keep track of your own goals on site (but make them visible to others), instead of adding suggestions here you can add a subpage to your user page (add a "/" and subpage, e.g., User:Brettz9/To-dos).

Priority pages for expansion

• Update List of abnormal findings in chronic fatigue syndrome and myalgic encephalomyelitis - see suggestions on Talk page and List of systematic reviews about ME/CFS (added May 26, 2020 by User:Notjusttired)
• Update Epidemiology, see new CDC info and others (added May 26, 2020 by User:Notjusttired)
• Check if updates needed for Prognosis - see new CDC info (added May 26, 2020 by User:Notjusttired)
• Science: add Rekeland (2020) trial results to CycloME and Cyclophosphamide and associated genes HLA-DPB1 and HLA-C, Mestinon and Kynurenine trials by OMF, start page for OMF COVID-19 study, Kynurenine pathway hypothesis, Citric acid cycle, Central nervous system, Nitric oxide hypothesis, Brain (imaging section), Microbiome hypothesis, PACE trial, and Hypothalamic-pituitary-gonadal axis (HPG axis)
• News: add any cyclophosphamide trial news, plus HHV-6 reactivation news. Add recent news to list on Portal:Treatments/Recent news and events eg funding / grants, study results, citizen science or non-profit news. Links should go to the MEpedia page that's been recently updated (no blog links, no petition - keep neutral).
• Portals: Portal:Treatments, Portal:Cardiovascular system

High priority

When a task is complete move it to the COMPLETED section at the bottom of the page

• [[Creating remaining symptom pages eg substantial reduction in activity for ICC, CCC, NICE criteria
• Category:Wearable devices
• Non-drug fibromyalgia treatments and management strategies
• Female predominant diseases: complete this table of gender ratio + prevalence for chronic illness: Female predominant diseases#List of diseases (will likely be used in advocacy and outreach efforts)
• High usage page Esther Crawley needs a cleanup including neutrality improving citations, adding missing citations, and marking any extra citations needed.notjusttired (talk) 18:57, May 24, 2019 (EDT) - add neutrality Aug 12, 2019 - Njt
• Add photos of ALL the May (and Belfast in June) Millions Missing protests to the MM page http://me-pedia.org/wiki/Millions_Missing_protests
• Add the Stats.org editorial & 7,000 word criticism to the PACE page :
  • Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already
• (IN PROGRESS) Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264
• CREATE AND POPULATE PAGES FOR genitourinary impairment (ICC requirement) and Ion, part of the Ion transportation page which could use more work (ICC requirement).
• Energy metabolism portal needs more work. Should Metabolic and Metabolomics be included and explained, as a selected article? How about Metabolic features of chronic fatigue syndrome? And exactly what is being defined on the ICC page with the Energy metabolism portal? I can figure out how they correlate and if I can't, how can a patient, caregiver, and even doctors?
• Bacterial disease onset is a stub that needs to be populated and Viral onset hypothesis is in need of citations.
• Create pages for all UK politicians on the new All-Party Parliamentary Group on ME, suggested by Notjusttired Feb 14, 2019 - MP info out of date - 2021

Admin suggestions

When a task is complete move it to the COMPLETED section at the bottom of the page

• Review/update the MEpedia:Admin guide to keep track of what a new admin needs to know. Consider making the Admin guide protected so that only admins can edit it. Also review/protect MEpedia:Developer guide. (Requested by Pyrrhus April 2019)
• Add Special:Interwiki shortcuts for the staging server (called staging) and pmc - which will be similar to the pubmed one but using the PMC path, this would allow links like pmc:1234567 to go to PMC1234567

In 2020

• test plan and #Snag list
• IN PROGRESS: Extensions for MediaWiki 1.39 to check/test
  • Any extension with a “compatibility policy” of “release branches” must be updated with any new version of MediaWiki. These include, Citoid, Thanks, DiscussionThreading (if in use?), OneColumnAllPages, DynamicPageList, Lingo, SmiteSpam, AddThis, Disambiguator, DismissableSiteNotice, NewUserMessage, GeoData, Graph, PageNotice, Popups (Peviews), WikimediaMessages, QuestyCaptchaStructuredDiscussions, PageTriage, (AbuseFilter, CategoryTree, Cite, CodeEditor, InputBox, Interwiki, PageImages, ParserFunctions, RenameUser, Scribunto, SyntaxHighlight, TextExtracts, VisualEditor, WikiEditor updates not needed - comes with MW 1.39+). AddThis is a defunct service.

• • Monobook skin update (unless we decide to disable it)
  • We should also update the HitCounters extension to resolve some minor bugs including the Popular Pages link being in German.
• The Linux package Parsoid must also be updated every time VisualEditor is updated.
• We should also update the DismissableSiteNotice extension so that the dismissals last longer than a week.
• We should also update the Form extension to get security updates.
• SecureLinkFixer and TemplateData are bundled. They force https on your wiki, and add a tag and an api to allow editors to specify how templates should be invoked.
  • The following PHP libraries are required for MW1.35: ctype, dom, fileinfo, iconv, json, mbstring, xml
  • other requirements - MySQL version doesn't need updating
  • Changes can be tested on the staging server before being implemented on the production server. See MEpedia:Developer guide. ( ~Njt September 29, 2020)

• In year 2020, we will need to do “performance tuning” of the MySQL(MariaDB) database and “performance tuning” of the MediaWiki software as described in https://www.mediawiki.org/wiki/Manual:Performance_tuning (Added by Pyrrhus May, 2019)

1.39 upgrade tasks done and checked

• Upgraded to MW1.39, which is a future long-term support release. The new version of MediaWiki software includes important security fixes. The new versions of the extensions include important fixes and improvements. (Added by Pyrrhus, May 2019) (I suggest doing this later in the year to get a newer version, but to update compatible extensions / skins etc to the newest versions that work with our existing MW version early in the year - Notjusttired, Aug 2019).
  • Extensions tested: Echo, Gadgets, Replace Text (now in core)
  • Skins tested: Timeless (bugs T197057, T287132, T182389 layout mobile patches available), Vector-2022, Vector (legacy)
• PHP 7.4.33 now in use- update to at least version PHP 7.3.19 for MediaWiki 1.35
• MediaWiki 1.39 bundled the VisualEditor extension. It will not be necessary to setup a seperate instance of Parsoid, as it is built into MediaWiki core.
• Pivot skin - may no longer be supported by creator - upgraded to https://github.com/Hutchy68/pivot v2.3.0) and include any MW 1.35 to 1.39 fixes - needs css changes for echo notifications, but no skin updates since 2020, need to check bug reports - may be better to configure newly installed Chameleon to replace Pivot

(User:Notjusttired Jun 2023)

Staging server testing

Versions of everything to check

Special:Version

• changed extensions - some might be bundled in with new MW version

AddThis	1.2.0 (29fd389) 03:49, May 8, 2021
CategoryTree	–
Citoid	0.3.0 (2a02d68) 04:21, May 16, 2021
CodeEditor	–
ConfirmEdit	1.6.0
Disambiguator	1.3 (06cae54) 17:13, May 9, 2021
DiscussionThreading	1.6.0 (5e01d02) 17:25, May 9, 2021
DismissableSiteNotice	1.0.1 (ad3a780) 05:51, May 16, 2021
DynamicPageList	1.7.0 (9acf000) 21:28, September 17, 2017
Echo	– (a3dedc0) 06:18, May 16, 2021
EditAccount	1.3.3 (2eaac4a) 16:59, June 4, 2021
Form	0.6.0 (e55e1aa) 06:13, May 10, 2021
GeoData	– (7d4e889) 09:29, May 10, 2021
Graph	– (ae2cc41) 08:20, May 16, 2021
Hit Counter	0.3 (2e51259) 01:46, May 11, 2021
InputBox	0.3.0
Interwiki	3.2
Lingo	3.1.1
NewUserMessage	3.6.0, 2016-10-31 (0927afe) 00:45, May 12, 2021
PageImages	–
PageNotice	– (2bd5103) 12:39, May 12, 2021
Previews	– (dccd607) 12:58, July 13, 2020
Replace Text	1.4.1
Scribunto	–
SmiteSpam	0.3 (91f2697) 19:54, May 13, 2021
TemplateData	0.1.2
TextExtracts	–
Thanks	1.2.0 (e28a16d) 06:25, May 14, 2021
VisualEditor	0.1.2
WikiEditor	0.5.3
WikimediaMessages	– (0313613) 02:53, May 15, 2021

<s>Popups	– (7da6cff) 22:05, September 19, 2017</s> - now called Previews 
*unchanged extensions:
<pre>
OneColumnAllPages	1.0.1
Renameuser	–
Cite	–
EmbedVideo	2.8.0
ParserFunctions	1.6.0
SyntaxHighlight	2.0
Spam prevention
QuestyCaptcha	–
Slack	1.0.1

• new staging Parser extension tags-

<facebook><microsoftstream><mixer><spotifyalbum><spotifyartist><spotifytrack>

• Parser extension tags or Parser hooks all present  Done
• new extensions requested but not installed: AbuseFilter - which is a later task

Editing

• source editor  Done checked for (main), User_talk and MediaWiki
• visual editor - including checking menu optionsveg Cite tweet and Insert menu
• home page
• upload images  Done
• add uploaded image to a page as thumb
• graphs
• resize images
• table layouts
• top 10 pages - MediaWiki:Sidebar menu links to wrong PopularPage

Citation tools

• generate citation from link  Done but Module:Citation/CS1/Configuration out of date causing PMC/ PMID errors
• manual cite journal
• cite web and cite news
• cite book

Skins

MediaWiki	1.35.3
PHP	7.4.21 (apache2handler)
MySQL	5.7.28-log

Added -
ICU	65.1

Unchanged -
MySQL	5.7.28-log
Lua	5.1.5

Entry point URL - missing 
load.php	/load.php

Skins
MonoBook
Pivot	2.3.0	- upgraded
Timeless	0.8.9 - upgraded 
Vector

Extensions

• do videos play

Admin rights needed to test

• Special:AbuseFilter - how to configure?
• Special:PageLanguage - visit from List of news articles on ME and CFS/de then set language

Sync important content and settings

• Sync skin customizations from live OR reapply our changes to new code
  • css eg from MediaWiki timeless.css, common.css, gadgets css
  • js eg MediaWiki, check Category js for Potential treatments / Medical hypothesis / etc, Gadgets js
• Namespace updates to import: Portal, MediaWiki (including MediaWiki:Gadget, Gadget_definition) and MediaWiki_talk, MediaWiki, Template, Module, Categories, MEpedia (aliased to Project) eg using Special:Export  Done except for a few css, js etc ones
  • Do NOT try to sync Gadget and Gadget_definition namespaces - both are empty, all code is in MediaWiki:Gadgetxxx files
• A few Files eg icons used in the interface may need copying over, check Special:ListFiles for new files that are icons or interface files eg for portals or Help namespaces and Icons category - can't be done by xml
• Sync page content model changes (eg changing pages to css from wiki text)  Done
• Sync page language model changes (eg changing Glossary/de, Myalgic Encephalomyelitis/he)  Done
• Sync Special:Interwiki table page by checking Interwiki logs  Done
• Do protection levels need sync for pages not in (main) or for key pages eg Template, Module, Myalgic Encephalomyelitis?
• Check other Special:Logs for changes needing sync  Done

Snag list

1. Email not installed as stated on staging:special:PasswordReset and staging:Special:ConfirmEmail links don't work, this should be linked to in Special:Preferences for logged on users. Special:SpecialPages is missing ConfirmEmail and PasswordReset. The Enotif extension is part of core MW, which may or may not be linked to the issue.
2. Thumbnails error on both live and staging stops SVGs working
3. Special:WantedPages is not being updated and contains pages that already exist. ALSO: New issue - links to pages that exist are shown as if they are wanted page.
4. mw:Extension:Previews (previously called mw:Extension:Popups doesn't display images - TextExtracts extension must be loaded before Popups, in staging LocalSettings.php (requested 3 Sep). It seems to work on main namespace - download linked file no longer shows a page preview image

Potentially do after upgrade

• Special:Version throws a Lingo extension error on staging, but works antibody and membrane from glossary are looked up. May be an issue with Lingo.
• Performance - much slower to load pages - is this because less resources are allocated to the staging server by hosting company / at the server end? If not then investigation is needed.
• Investigate vector logo when legacy unticked

Minor changes after upgrade

• Njt: MediaWiki Timeless skin improvements eg Timeless no longer has visible left hand menu or settings cog for preferences
• Njt: Investigate vector font-size change - is it just on bullets? Portal bullets?
• Njt: Monobook.css, Pivot improvements if needed

After upgrade goes live

Update MediaWiki:Sidebar and Portal:Contents to fix Hitcounters extension page name Popular pages (copy staging server code).

• Abuse Filter to test - packaged with later MW1.38 release

Languages

• German, French, Dutch, Spanish, Italian, Norwegian (nb, no, but nn usually inappropriate)
• Check Popular pages link eg from List of Portals or main menu for German Beliebteste_Seiten, and not sure for French. (Hitcounters extension configuration)

Namespaces

• Main  Done
• Talk
• User
• User talk -  Done
• MEpedia and MEpedia_talk -  Done
• MediaWiki and MediaWiki_talk updated  Done
• File and File_talk - thumbnail error means newly uploaded files don't show on (Main) - now affecting SVG only, and live
• Special - works fine
• Template and template_talk -  Done
• Help -  Done
• Module -  Done
• Gadget and Gadget_definition - not needed since code in MEpedia:Gadget- files -  Done and tested
• Category -  Done
• Portals - more testing / checks needed

Code

• MediaWiki:Common.js Javascript for Category:Medical hypotheses banner color (ok for vector)
• Php
• Lua
• Modules
• Menus
• Gadgets
• Templates with substitution
• Complex templates
• Languages / translations eg on Citation needed template

Screenshot size and layout

• Landscape vs portrait
• Desktop, tablet, mobiles

Defaults

• Date formats

Known (pre-existing) bugs

Check which have been resolved from MEpedia:Known_bugs

Fixed

• links to namespaces broken: MEpedia namespace, MediaWiki namespace e.g. this ~Njt (talk) 21:59, July 18, 2021 (UTC) - sorted by adding alias in LocalSettings.php
• Thumbnails not created when using newly uploaded files eg on https://staging.me-pedia.org/wiki/Chronic_illness, also missing thumbnail see https://staging.me-pedia.org/wiki/Special:ListFiles - fixed by LocalSettings.php ImageMagick change

Image resizing and thumbnail tests

• See Suggested code and file names to speed up the tests below
• Test resizing images to uncommon sizes for: jpg, png, svg, gif
• Test main image types work as thumbnails (thumb property): jpg, png, svg, gif
• Upload a new file and test resizing works eg to 85px w

Images needed

Suggest an image and mark the page it's needed on with {{NeedsImage}}. See Category:Articles_that_need_an_image_or_photo.

• If this image from the Commons https://commons.wikimedia.org/wiki/File:Bayes_theorem.png could please be added to Bayesian_reasoning#Bayes_Theorum, I'd much appreciate it! Canele (talk) 23:42, 25 February 2019 (EST)

Small tasks

When a task is complete move it to the COMPLETED section at the bottom of the page

• Add Talk:Individual_Quotes#Quotes_to_add Simon Wessely quotes and others eg Charles Shepherd to Individual_Quotes
• PACE trial
  • Add PACE letter from David Clark https://twitter.com/LouCorsius/status/719993266876391424/photo/1
  • Add Trudie ChalderICO FOIA source p36-37 "no direct threats", p30 "activists" as a disparaging term confirming no PACE researchers were threatened to Stigma, Simon Wessely, Trudie Chalder, Esther Crawley and PACE trial pages
  • Add PACE didn't receive 150 FOI act requests https://twitter.com/TomKindlon/status/677173627532402688
  • Add https://web.archive.org/web/20160508230150/http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm - Letter from Malcolm Hooper on PACE trial
  • Add PACE trial theft info https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf
  • Add Jonathan Edwards letter to a Prof. Gundersen on PACE trial http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234
  • Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641
  • Add to Peter White page Lewith 2016 Complementary and alternative healthcare use by participants in the PACE trial of treatments for chronic fatigue syndrome http://www.jpsychores.com/article/S0022-3999(16)30327-0/abstract

• Add to Brain and Basal ganglia Acute Changes in Striatal Microstructure Predict the Development of Interferon-Alpha Induced Fatigue Dowell 2016 http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/
• Lactate add
  • Shungu 2012 Increased ventricular lactate in chronic fatigue syndrome. III. Relationships to cortical glutathione and clinical symptoms implicate oxidative stress in disorder pathophysiology
  • Effect of Milnacipran Treatment on Ventricular Lactate in Fibromyalgia: A Randomized, Double-Blind, Placebo-Controlled Trial Natelson 2015 https://pubmed.ncbi.nlm.nih.gov/26335989/
  • 2014 Chronic widespread pain: increased glutamate and lactate concentrations in the trapezius muscle and plasma Björn Gerdle https://pubmed.ncbi.nlm.nih.gov/23887335/
  • plus many others
• http://www.freezepage.com/1374761286EFCHIYENBE - SwissRE insurer - Managing claims for chronic fatigue the active way
• Amolak Bansal:
  
  • Add Bansal's presentation - related research by Banash - Extended B cell phenotype in patients with myalgic encephalomyelitis/chronic fatigue syndrome: a cross‐sectional study source-Clin Exp Immunol. 2016 May; 184(2): 237–247. 2016 Feb 22. doi: 10.1111/cei.12749 PMCID: PMC4837232 PMID: 26646713 License: Fair Usage PMC4837232 ***plus***
  • Mensah, F.K.F., Bansal, A.S., Ford, B. and Cambridge, G., 2017. Chronic fatigue syndrome and the immune system: Where are we now?. Neurophysiologie Clinique/Clinical Neurophysiology, 47(2), pp.131-138. http://dx.doi.org/10.1016/j.neucli.2017.02.002 Immune system where are we now **https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1440524/

• Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/
• Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/
• Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/
• Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/
• Add https://www.ncbi.nlm.nih.gov/pubmed/27165859 Reversal of Refractory Ulcerative Colitis and Severe Chronic Fatigue Syndrome Symptoms Arising from Immune Disturbance in an HLA-DR/DQ Genetically Susceptible Individual with Multiple Biotoxin Exposures Shelly R Gunn 2016
• Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/
• Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/
• Add sources only to Magnesium page https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/
• Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php 2016, Exploring the gut-brain connection for insights into multiple sclerosis, describes Rothhammer 2016, Type I interferons and microbial metabolites of tryptophan modulate astrocyte activity and central nervous system inflammation via the aryl hydrocarbon receptor Nature Medicine https://www.nature.com/articles/nm.4106
• Add Blackwood 1998 https://www.ncbi.nlm.nih.gov/pubmed/9771781 Effects of exercise on cognitive and motor function in chronic fatigue syndrome and depression
• Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/
• Add Michiels 1998 Attention and verbal learning in patients with chronic fatigue syndrome https://www.ncbi.nlm.nih.gov/pubmed/9745235
• Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence
• Add Wyller 2016 Altered neuroendocrine control and association to clinical symptoms in adolescent chronic fatigue syndrome: a cross-sectional study http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1
• Add Shan 2016 Progressive brain changes in patients with chronic fatigue syndrome: A longitudinal MRI study https://pubmed.ncbi.nlm.nih.gov/27123773/
• Add matrix metalloproteinase-9 (MMP9) page - unreliable selfhacked source removed

• Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html
• Add 1997 Clinical Trial- Pathogenesis and management of delayed orthostatic hypotension in patients with chronic fatigue syndrome by Lorenzo https://www.ncbi.nlm.nih.gov/pubmed/9292244
• Add Wilson 2001 https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study
• Add systematic review Cho 2005 The placebo response in the treatment of chronic fatigue syndrome: a systematic review and meta-analysis https://www.ncbi.nlm.nih.gov/pubmed/15784798
• Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/
• Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/
• Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/
• Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/ - comments on Hickie 2006 Post-infective and chronic fatigue syndromes precipitated by viral and non-viral pathogens: prospective cohort study
• Add Galbraith 1997 Evidence for enteroviral persistence in humans https://www.ncbi.nlm.nih.gov/pubmed/9018051
• Add Leighton 2016 Autonomic correlations with MRI are abnormal in the brainstem vasomotor centre in Chronic Fatigue Syndrome https://www.ncbi.nlm.nih.gov/pubmed/27114901
• Add RCT 2016 Graded versus Intermittent Exercise Effects on Lymphocytes in Chronic Fatigue Syndrome Broadbent https://www.ncbi.nlm.nih.gov/pubmed/27116645
• Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/ - AYME no longer exists
• RituxME, Rituximab
  • Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati
  • Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305 - a commentary on Extended B cell phenotype in patients with myalgic encephalomyelitis/chronic fatigue syndrome: a cross‐sectional study (2015) https://doi.org/10.1111/cei.12749
  • Add to Ritux page https://forums.phoenixrising.me/threads/update-from-haukeland-about-the-rituxme-study.44540/ - Update from Haukeland about the RituxME study
• Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/
• Add Huth 2016 ERK1/2, MEK1/2 and p38 downstream signalling molecules impaired in CD56dimCD16+ and CD56brightCD16dim/− natural killer cells in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis patients http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z
• Add Kidd 2016 The Relationship between Age and Illness Duration in Chronic Fatigue Syndrome http://www.mdpi.com/2075-4418/6/2/16
• Add Band 2016 Assessing the reliability of the five minute speech sample against the Camberwell family interview in a chronic fatigue syndrome sample https://www.ncbi.nlm.nih.gov/pubmed/27095328
• Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html
• Add Joyce 1996 Memory, attention, and executive function in chronic fatigue syndrome. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8
• Add letter from 1995 addressing Sharpe's research - unsure which was intended - Cognitive behaviour therapy should be compared with placebo treatments OR Patients beliefs about their illness were probably not a major factor https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf
• Add Sukocheva 2016 http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z 'Coxiella burnetii' dormancy in a fatal ten-year multisystem dysfunctional illness: case report

• Make sure this article is linked to on the ME page, maybe elsewhere too - citation: Ed BMJ 1978;(3 June):1436-7  Epidemic Myalgic Encephalomyelitis https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf
• Add this study on cytokines to the cytokines page (and pages for the specific ones affected) Phillip Peterson 1994 Effects of Mild Exercise on Cytokines and Cerebral Blood Flow in Chronic Fatigue Syndrome Patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf
• Add Chronic Fatigue Syndrome: Have Flawed Assumptions Been Derived from Treatment-Based Studies? Rickman 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf
• Add to the ketogenic diet page Gano 2014 Ketogenic diets, mitochondria, and neurological diseases https://www.ncbi.nlm.nih.gov/pubmed/24847102
• Create a basic outline page about UK ME support http://www.mesupport.co.uk/index.php?page=anniversary-statement - dead link, ME Support page could be created - it's no longer a group though
• Make sure this video about Klimas' gene study is included on her page, and ME/CFS Gene Study https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0
• Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study
• Add to MRI pages Schwartz 1994 - Detection of intracranial abnormalities in patients with chronic fatigue syndrome: comparison of MR imaging and SPECT https://www.ncbi.nlm.nih.gov/pubmed/8141020
• Add Guardian article to list of news articles on ME and CFS http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.
• Add study Demitrack 1992 Plasma and cerebrospinal fluid monoamine metabolism in patients with chronic fatigue syndrome: preliminary findings https://www.ncbi.nlm.nih.gov/pubmed/1282370
• Add study Wong 1992 Skeletal muscle metabolism in the chronic fatigue syndrome. In vivo assessment by 31P nuclear magnetic resonance spectroscopy https://www.ncbi.nlm.nih.gov/pubmed/1446478
• Add review 1992 [Symptoms, signs and laboratory findings in patients with chronic fatigue syndrome] [in Japanese] Kuratsune 1992 https://www.ncbi.nlm.nih.gov/pubmed/1337562
• Add NK study - review Uchida 1992 [Chronic fatigue immune dysfunction syndrome] [in Japanese] https://www.ncbi.nlm.nih.gov/pubmed/1287238
• Add ProHealth Announces Its 2015 ME/CFS Advocate Of The Year – Cort Johnson to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684
• Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/
• Add McCrone 2012 Adaptive pacing, cognitive behaviour therapy, graded exercise, and specialist medical care for chronic fatigue syndrome: a cost-effectiveness analysis https://pubpeer.com/publications/22870204
• Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract
• Add IiME funded B cell study by UCL published Mensah 2015 Extended B cell phenotype in patients with myalgic encephalomyelitis/chronic fatigue syndrome: a cross‐sectional study http://www.investinme.org/IIME%20Newsletter%20December%202015.htm
• Add to Peter White or NICE guidelines 2007 page http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/
• Add ME and Vaccinations 1997 article or sources http://www.investinme.org/InfoCentre-vaccines-popup-1.htm
• Add 160 Victims at Lake Tahoe : Chronic Flu-Like Illness a Medical Mystery Story ROBERT STEINBROOK JUNE 7, 1986 http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe
• Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx

• NIH Post-Infectious ME/CFS Study page:
  • Add to Brian Walitt and NIH_Post-Infectious ME/CFS Study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/
• Article to add to Fibromyalgia, Younger and LDN pages https://web.archive.org/web/20190103130948/http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html - just discussion of future study
• Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/
• Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf - just a discussion piece
• Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm
• Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.
• Add to NIH page http://www.healthrising.org/blog/2016/05/26/proposal-vastly-increase-funding-mecfs-nih-passes-first-test/
• Make sure this crucial chart of ME quality of life and related study are included and study referenced Hvidberg 2015 The Health-Related Quality of Life for Patients with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421
• Add to NAC page *the sources only * from https://selfhacked.com/2016/05/27/top-25-science-based-health-benefits-n-acetyl-cysteine-nac/
• Add to mitochondria and Eric Gordon pages http://www.gordonmedical.com/unravelling-complex-chronic-illness/gordon-medical-research-center-now-funding-replication-study-on-cfidsme-findings/
• Add to fatigue page http://www.healthrising.org/blog/2016/05/31/fatigue-japanese-way/
• Add to NK cell and b cell pages and key author pages http://forums.phoenixrising.me/index.php?threads/novel-identification-and-characterisation-of-transient-receptor-potential-melastatin-3-ion-channels.44932/
• Add to Davis page and severely ill study page http://www.meaction.net/2016/06/04/davis-at-invest-in-me-new-severe-patients-data/
• Add to page on Fisetin https://selfhacked.com/2016/06/04/15-science-based-health-benefits-fisetin-1-favorite/ - does not meet science guidelines
• Add to Alison Wearden page, maybe others Bayliss 2016 Implementing resources to support the diagnosis and management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in primary care: A qualitative study http://bmcfampract.biomedcentral.com/articles/10.1186/s12875-016-0453-8
• Add to Ronald Davis page and list of news articles on ME and CFS Living with 'one of the last major diseases we know nothing about' Sean O'Brian Dec 22nd 2016 https://www.thejournal.ie/readme/me-invisible-illness-2792636-Jun2016/
• Add Review to microbiome page and Simon Carding page Navaneetharaja 2016 A Role for the Intestinal Microbiota and Virome in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)? https://www.ncbi.nlm.nih.gov/pubmed/27275835
• Add to cognitive dysfunction page https://www.healthrising.org/forums/resources/cognition-and-chronic-fatigue-syndrome-me-cfs-key-findings-and-seminal-papers.348/
  • Neuropsychological performance in persons with chronic fatigue syndrome: results from a population-based study. Majer 2008 https://journals.lww.com/psychosomaticmedicine/FullText/2008/09000/Neuropsychological_Performance_in_Persons_With.11.aspx
  • Cvejic 2016 Cognitive Dysfunction in Chronic Fatigue Syndrome: a Review of Recent Evidence. May;18(5):24 http://www.ncbi.nlm.nih.gov/pubmed/27032787
  • Capuron 2006 Cognitive dysfunction relates to subjective report of mental fatigue in patients with chronic fatigue syndrome. https://pubmed.ncbi.nlm.nih.gov/16395303/
  • Constant 2011 Cognitive deficits in patients with chronic fatigue syndrome compared to those with major depressive disorder and healthy controls https://pubmed.ncbi.nlm.nih.gov/21255911/
  • Objective evidence of cognitive complaints in Chronic Fatigue Syndrome: a BOLD fMRI study of verbal working memory. Neuroimage Lange 2005 https://www.ncbi.nlm.nih.gov/pubmed/15907308
  • Less efficient and costly processes of frontal cortex in childhood chronic fatigue syndrom Mikuno 2015 https://pubmed.ncbi.nlm.nih.gov/26594619/
  • Functional neuroimaging correlates of mental fatigue induced by cognition among chronic fatigue syndrome patients and controls Cook 2007 http://www.ncbi.nlm.nih.gov/pubmed/17408973
  • Vagus nerve Beaumont 2012 Reduced cardiac vagal modulation impacts on cognitive performance in chronic fatigue syndrome https://www.ncbi.nlm.nih.gov/pubmed/23166694
• National Institute of Health
  • Add to National Institute of Health page http://www.occupycfs.com/2016/06/14/responding-to-the-nih-rfi/
  • Add to National Institute of Health page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/
• Add to chronic fatigue page, maybe also primer(s)? self.com/wellness/2016/06/the-difference-between-chronic-fatigue-syndrome-and-extreme-tiredness/ - better sources needed
• Add to mtDNA page Why Do We Inherit Mitochondrial DNA Only From Our Mothers? - Steph Yin 2016 http://www.nytimes.com/2016/06/24/science/mitochondrial-dna-mothers.html comments on
  • Zhou 2016 Mitochondrial endonuclease G mediates breakdown of paternal mitochondria upon fertilization https://science.sciencemag.org/content/353/6297/394.full
  • Mitochondrial Adam and Eve suggested 2013 https://www.nytimes.com/2013/08/13/science/new-studies-suggest-an-adam-and-eve-link.html
• This appears to be Kew UK Gov archive, add to relevant page for easy access https://valerieeliotsmith.files.wordpress.com/2015/01/natarchbn141dss.pdf

Other suggestions

• Add a portal on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here

Can this task be removed? Wikipedia tasks should not be in the MEpedia list. If it's a task for MEpedia then also suggest removing since many Portals already need extra work and several comorbidities still don't have pages which is a greater priority (Removal requested by User:Notjusttired Aug 2019, moved out of high priority tasks on Aug 2020 by Njt)

When a task is complete move it to the COMPLETED section at the bottom of the page

• Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm
• Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation
• Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.(please note the page# where she discusses the change in fingerprints, add here http://me-pedia.org/wiki/Fingerprint_change)
• Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.
• Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/

Historical articles

Add these articles:

• http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf
• http://jama.jamanetwork.com/article.aspx?articleid=311962
• http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/
• https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false
• https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false
• https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false

There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/

Stem cell treatments

Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. Brettz9 (talk) 11:37, 19 January 2016 (PST)

Treatments

A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the List of treatments page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --JenB (talk) 09:24, 11 December 2015 (PST)

Basic biochemistry

• Cross reference with CFS research to all Vitamin and Mineral pages Also choline and essential fatty acid --JenB (talk) 11:47, 10 December 2015 (PST)

Infectious disease

New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the Herpesvirus page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both CFS and other diseases, especially those involving B cells and the possible infection of nervous tissue. --JenB (talk) 08:38, 16 March 2016 (PDT)

Completed

When a task is complete move it HERE

Withdrawn developer tasks

Tasks no longer needed since either another solution was found or they don't seem worthwhile given the work involved.

• pivot not showing Potential treatments banner - fixed by User:Notjusttired with Common.js changes as suggested by User:Pyrrhus
• all editors to see visitor stats eg popular pages or searched for terms - it's hard to know what topics to work on

Is this necessary? Popular pages are visible via the link in lefthand sidebar. I don’t know of any way to find “searched for” terms without a custom database query. Pyrrhus (talk) 19:21, 16 May 2019 (EDT) - withdrawn by Notjusttired - Google analytics is the best solution but no way to link it here

• Debug Special:OrphanedPages which appears not to be populating correctly - details at MEpedia_talk:Orphaned_pages#List_not_populating_correctly. Canele (talk) 03:32, 6 April 2019 (EDT)

Could it be that this page list is updated daily or weekly rather than immediately? The example given is now sorted - I presume without any intervention. notjusttired (talk) 19:04, May 24, 2019 (EDT)

(hide)

(read more)

Developer Completed 2022

MW1.35 upgrade tasks

• EditAccount extension was fixed for MW1.35+won't work after MW upgrade, consider EditUser instead)

Developer Completed 2021

Use https not http

• Currently, http and https are both being used in the URLs throughout the website. This means that some users will land on non-secure pages (http w/out "s").
• All pages need automatically redirect from http to https. This will keep everything secure, and improve SEO and organic search traffic.
• It looks like it's covered on https://www.mediawiki.org/wiki/Manual:HTTPS

(suggested by Fireballsky, added by Njt (Oct 2020)

Confirmed done and working ~Njt (talk) (Feb 2021)

Developer Completed 2018-2019

content hidden

Add EmbedVideo extension from https://www.mediawiki.org/wiki/Extension:EmbedVideo to allow us to embed YouTube or Vimeo clips, eg Linda Crowhurst's on Severe M.E., videos for symptoms like muscle twitches, myclonus, and advocacy clips/explanations - the MEAnalysis PACE video for instance - this would help those with photophobia WikimediaMessages added Skins: Add a stable dark/dark grey skin that's mobile friendly (and migraine friendly) eg Timeless DarkCSS as custom CSS on Timeless skin - requested by User:Notjusttired Skins: Add Pivot and Foreground (both mobile friendly), consider defaulting to Pivot for all mobile devices requested by User:Notjusttired Add the Visual Editor to the “MEpedia:” and “Help:” namespaces so new contributors don’t need to learn wikitext to edit a page. To do this, first verify that "MEpedia" is listed in $wgExtraNamespaces in LocalSettings.php, then add the following to the LocalSettings.php file: $wgVisualEditorAvailableNamespaces = [ "Help" => true, "MEpedia" => true ]; (Requested by Pyrrhus, Feb 2019) allow search engines to crawl the Files namespace eg http://me-pedia.org/wiki/File:example.jpg so images come up when doing Google search on images for reuse requested by User:Notjusttired Install AddThis extension for sharing - if poss with Facebook, Twitter and pinterest links showing - requested by [[User: Turn on setting to autofix redirects in LocalSettings.php - as per Mediawiki configuration info - requested by User:Notjusttired Can Citation bot be set up for all new users - see Wikipedia for link & institutions (Requester unknown) This task has been abandoned because the required PHP compilation, template setup, and bot registration is beyond the capabilities of our developers. See https://github.com/ms609/citation-bot for more details. Pyrrhus (talk) 22:01, 22 May 2019 (EDT) Add the following to LocalSettings.php, as requested by our hosting company at https://help.dreamhost.com/hc/en-us/articles/217292577-MediaWiki-overview (requested by Pyrrhus, May 2019) $wgMaxShellMemory = 524288; $wgUserEmailUseReplyTo = true; Add the following to LocalSettings.php, as described in https://www.mediawiki.org/wiki/VisualEditor/Diffs (requested by Pyrrhus, May 2019) $wgVisualEditorEnableDiffPage = true; Add the following to the end of LocalSettings.php to disable email on the staging server (staging.me-pedia.org): (Requested by Pyrrhus May 2019) /* CHECK IF STAGING SERVER DETECTED */ if ((strpos($wgServer, 'staging') !== false) or (strpos($IP, 'staging') !== false)) { $wgLogo = 'https://upload.wikimedia.org/wikipedia/commons/5/5e/Commons-emblem-Under_construction-green.svg'; $wgEnableEmail = false; } Fix the wiki emailer so that new users can receive the “confirm your email account” email and so that established users can receive email notifications of changes, etc. (Requested by Pyrrhus, Feb 2019) Edit pivot skin's Pivot.skin.php to set autocomplete to on for mobile devices only. notjusttired (talk) 18:52, May 24, 2019 (EDT) Fix email sending from MEpedia. Either configure sendmail properly on the production server or configure $wgSMTP properly in the LocalSettings.php file. If we are going to use $wgSMTP, here are some links that provide the exact SMTP information to use: configuration and protocols. For $wgSMTP, one can set up a new email account called "donotreply@me-pedia.org" using the DreamHost dashboard: https://panel.dreamhost.com/index.cgi?tree=cloud.compute& This new email account can either reject all incoming mail or forward all incoming mail to mepedia @ meaction.net (requested by Pyrrhus May 2019) Add $wgDismissableSiteNoticeForAnons=true; to LocalSettings.php file. (Requested by Pyrrhus May 2019) Consider making the members of the "emailconfirmed" group visible only to administrators. There is a theoretical risk of email spam when anyone can see who has confirmed their email and who hasn't. To do this, simply add $wgImplicitGroups[] = 'emailconfirmed'; to LocalSettings.php. I am not advocating for this action, merely documenting this if it is ever needed. (Removed, since the members of emailconfirmed are already mostly invisible to the public.) consider adding a "thanks" button if it can be easily adopted from the WMF software (see: https://en.wikipedia.org/wiki/Help:Notifications/Thanks) -- really nice way for editors to communicate appreciation to one another that costs many fewer "spoons" than writing/reading a note (suggested by Canele, June 2019) I like this idea but can't see any instructions for doing installing this on those pages. I have copied both the {{Thank}} and {{Thank you}} across notjusttired (talk) 14:25, July 17, 2019 (EDT) There is a Thanks extension that will probably do the trick, but we can't install it until after we update the MediaWiki software, unfortunately. Pyrrhus (talk) 22:31, July 17, 2019 (EDT) I didn't think to look there! We can install it, but need a previous version that matches what we have - REL_1_30 I think, and will need to upgrade it once MediaWiki is upgraded. The code is on github, linked to the page. I think this is worth requesting notjusttired (talk) 15:04, July 19, 2019 (EDT) Oh super! Thank you both, Pyrrhus and Njt! Canele (talk) 16:42, July 20, 2019 (EDT) Remove the following from LocalSettings.php. Our new policy is that people need to make 50 edits before they skip the CAPTCHA, regardless of whether they are emailconfirmed or not. (Requested by Pyrrhus May 2019) $wgGroupPermissions['emailconfirmed']['skipcaptcha'] = true; $ceAllowConfirmedEmail = true; Add the following to https://www.me-pedia.org/robots.txt, under "User-agent: *": (requested by Pyrrhus June 2019) Disallow: /wiki/MEpedia talk: Disallow: /wiki/File talk: Disallow: /wiki/Help talk: Disallow: /wiki/Category talk: Disallow: /wiki/Portal talk: Disallow: /wiki/User: Disallow: /wiki/User talk: Disallow: /wiki/MediaWiki: Disallow: /wiki/MediaWiki talk: Disallow: /wiki/Template: Disallow: /wiki/Template talk: Is this done now? notjusttired (talk) 17:46, August 6, 2019 (EDT) Yes! Pyrrhus (talk) 21:38, August 7, 2019 (EDT) updating the DynamicPageList (Wikimedia) extension so that one can order results by popularity. Add Files name space to sitemap in LocalSettings.php requested by User:Notjusttired See AddThis extension documentation - publisher ID to add to LocalSettings.php ra-5cdfe8dacb9028fa - requested by User:Notjusttired - to show sharing options in left menu Add ReplaceText extension with access for bureaucrats, admins - for updating renamed pages or categories. Requested by User:Notjusttired The following addition to the robots.txt file may also be useful as described in https://www.mediawiki.org/wiki/Manual:Robots.txt Pyrrhus (talk) 23:23, 16 May 2019 (EDT) # Allow the Internet Archiver to index action=raw and thereby store the raw wikitext of pages User-agent: ia_archiver Allow: /*&action=raw UPDATE - how do we test this? (User:Notjusttired, May 22,2019) Tested and workin notjusttired (talk) 18:48, May 24, 2019 (EDT) Add the following to https://www.me-pedia.org/robots.txt to prevent Google from crawling Talk pages: (requested by Pyrrhus May 2019) Disallow: /wiki/Talk: Create a user right group that automatically turns off the CAPTCHA after the user has made 50 edits - requested by Canele (talk) 18:26, 30 March 2019 (EDT) One way to accomplish this is to add the following to LocalSettings.php. This will require 50 edits before a user is given the "autoconfirmed" role. (which is different from the "emailconfirmed" role) Pyrrhus (talk) 22:10, 16 May 2019 (EDT) $wgAutoConfirmCount = 50; $wgGroupPermissions['autoconfirmed']['skipcaptcha'] = true; Upgrade EmbedVideo extension to latest stable one to fix errors in new skins and add facebook video support User:Notjusttired AddThis sharing extension installed Fix double redirects setting set on LocalSettings.php Configure Lingo extension to specify that each term should be annotated only (Requested by Notjusttired) Installs of Pivot and Timeless dark skins Use OneColumnAllPages extension to configure web archive access, or other Web Archive solution - requested by User:Notjusttired

Withdrawn editing tasks

content hidden

Add http://www.qmul.ac.uk/media/news/items/smd/81841.html - dead link, probably covered already Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/ - study published now Add to ketogenic diet page under exogenous ketones ketosource.co.uk/exogenous-ketone-supplements-review/ - does not meet science guidelines Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/ - Grand Challenge project from 2016 - no longer relevant Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/ duplicate Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/ - press release for Huth 2016 study already on list Add to OMF and/or severely ill study page https://web.archive.org/web/20170119115049/http://www.openmedicinefoundation.org/expanded-mecfs-metabolomics-study/ - dead link and results already covered Add to vision page meresearch.org.uk/news/vision-thesis/ - does not meet science guidelines Add to Davis and mitochondria and severely ill study pages http://www.meaction.net/2016/06/04/ron-davis-errors-metabolism/ - preliminary data but finished data already added Add 2015 https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf - can't see the relevance Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831 - dead link Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842 - dead link, may no longer be relevant Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/ - dead link, opinion article Add The PACE TRIAL : Concerns raised by Stonebird 2015 http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html Add Sense about Science saying that they support the release of the PACE trial data https://twitter.com/senseaboutsci/status/683616829923831808?s=09 - not particularly relevant Add meme on PACE trial https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57 - copyright unknown Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216 - cane see the relevance Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/ - doesn't meet science guidelines Add this article to the autoimmunity page cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html - dead link, does not meet science guidelines Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/ - does not meet science guidelines Add this article to the e-coli page cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/ - does not meet science guidelines Add https://twitter.com/postersandme/status/677469604348870657/photo/1 - tweet now gone Add tipsforme.wordpress.com/2015/10/19/resource-walking-problems/ - does not meet science guidelines Add healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/ - dead link, does not meet science guidelines dead link - Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803 GETSET trial page more up to date than link - Add https://forums.phoenixrising.me/threads/getset-graded-exercise-therapy-guided-self-help-treatment-getset.44749/ - GETSET Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/ - duplicate task for Amolak Bansal

Completed in 2022

• create pages for Carmen Scheibenbogen and Klaus Wirth's Unifying hypothesis and endothelial dysfunction pages

Completed in 2021 (includes admin tasks)

content hidden

Start page for Metabolic trap, Kynurenine pathway, Indoleamine-2,3-dioxygenase (IDO), Update the List of news articles on ME and CFS, especially including any on Post-COVID-19 ME/CFS. (Added by Njt, Aug 2020) News: add Covid-19 PVFS / CFS articles to List of news articles on ME and CFS, see its talk page for suggestions. Withdrawn - A research portal would may prove very popular Portal:Research suggested by Notjusttired 18:57, May 24, 2019 (EDT) Creating all remaining comorbidity pages for those suggested by ICC and CCC - myofascial pain syndrome, interstitial cystitis, Raynaud's phenomenon, prolapsed mitral valve, and painful bladder syndrome. (Requested by Notjusttired Aug 2019) High usage page Fibromyalgia needs a cleanup, mostly adding citations meeting the Science guidelines A Mild myalgic encephalomyelitis or chronic fatigue syndrome page would be useful. This is an under represented group, who face a great deal of stigma due to the invisibility of the illness, combined with the fact that little cab be found medically. A 50% decrease in functioning from normal is a devastating rather than mild illness. Photos may be tricky unless people describe themselves as mildly ill. There may be photos of those moderately or severely ill who were initially mildly ill but declined, or the opposite, but I wouldn't want to imply that people normally get worse - or that they normally get better. (Suggested by: Notjusttired Jan 2020) Add these terms to the Glossary (Suggested by: Notjusttired Oct 2021) Created neuroendocrine system and neuroendocrine symptoms pages (CCC requirement) ~Njt (talk) 01:25, November 17, 2021 (UTC) Add the findings from the new papers in the Special issue: Severe and very severe ME of Healthcare to all the relevant pages - not just to the "notable studies" sections (Added by Njt Aug 2020) Make sure the ME Association page link to purple book gets to the latest one https://meassociation.org.uk/2020/08/now-available-the-2020-me-association-me-cfs-pvfs-clinical-and-research-guide/ Add Emotional Suppression in Chronic Fatigue Syndrome: Experimental Study," - added to Katharine Rimes, already on Trudie Chalder page. Add details of new Crawley paediatric prevalence study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857 https://www.actionforme.org.uk/reso...ic-me-surveillance-study-youre-funding-about/ (dead link) Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html - Notice of Availability of Administrative Supplements on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Completed in 2020 (includes admin tasks)

content hidden

Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf Add Shan Progressive brain changes in patients with chronic fatigue syndrome: A longitudinal MRI study http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full - duplicate - see Notable studies Add Avindra Nath webinar 2016 - subset of patients fit viral hypothesis http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/ - already covered - link added to NIH Post-Infectious ME/CFS Study Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract - duplicate of housebound vs nonhousebound Add Housebound versus nonhousebound duplicate http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/ - already on Severe and very severe ME Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/ - duplicate of A Solvable Problem by Jonathan Edwards Add The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598 - duplicate Add The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem (editorial) - done in 2020 Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/ Add https://www.nova.edu/nim/research/mecfs-genes.html to ME/CFS Gene Study page

Completed in 2019 (includes admin tasks)

content hidden

Categorize all uncategorized pages (list of uncategorized pages here: http://me-pedia.org/wiki/Special:UncategorizedPages) Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Added to pediatric page Add a malaise image to the PEM page. If we can get a volunteer to have an image of them perhaps out at a cafe' (before) and two or three days later at home with the impact showing on their face (after) this would be a very helpful illustration. (Done with #TwoFacesofME Tweets) Fix the email address "mepedia@meaction.net". It currently rejects emails with a "Google Groups Error". (Requested by Pyrrhus, Feb 2019) Add significant ME/CFS (or related) Facebook groups to the Social media page. Canele (talk) 15:35, 29 March 2019 (EDT) Fix the New User Message as suggested on the User talk:New user message talk page. The New User Message has already been moved to Template:Welcome, all that remains to be done is to delete the MediaWiki:Newusermessage-template page. (Requested by Pyrrhus, Feb 2019) Add extra code to Common.css from Notjusttired/common.css (except for the end section that's commented out) - for alternating table rows and minor tweaks Add these Google fonts to Common.css to make them available for all skins: Oswald, Oswald italic, Oswald italic small-caps, Oswald small-caps, Oswald bold italic, Oswald bold italic small-caps, Oswald bold, Oswald bold small-caps, Permanent marker, Permanent marker bold, use Oswald small-caps for MEpedia logo text. Let us know the CSS font family names for all fonts above. - notjusttired (talk) 10:58, May 25, 2019 (EDT) Adapt/copy Wikipedia's general disclaimer to replace our current general disclaimer at MEpedia:General_disclaimer. The specific copy of Wikipedia's disclaimer to use is https://en.wikipedia.org/w/index.php?title=Wikipedia:General_disclaimer&oldid=860114216 Be sure to note that full URL address in the edit summary in a brief acknowledgement that our disclaimer has been adapted from theirs. (Requested by JaimeS June 2019) Rewrite MEpedia:About according to the ideas raised on MEpedia talk:About. (Requested by Pyrrhus April 2019) Mark all pages in the Category:MEpedia documentation and Category:MEpedia help categories as "semiprotected" by marking them as "Allow only autoconfirmed users" to edit them. Except for the "Sample page", which needs to be editable by all users. (And except for any talk pages, or any pages that are already protected and editable only by Administrators.) (Requested by Pyrrhus May 2019) Not sure how/who needs to do this - is it a LocalSettings.php request that's outstanding? Should a semi-protection message by added to all first? notjusttired (talk) 16:12, August 11, 2019 (EDT) An admin needs to mark those pages as “semiprotected”. That is all. Pyrrhus (talk) 16:25, August 11, 2019 (EDT) Review, update, and approve MEpedi:Copyright_policy. these have been updated, are you happy that is this done now? (Njt Aug 2019) It doesn't matter if I'm happy, just whether MEAction is happy. Since these are policy pages, they must be reviewed/approved by MEAction before they can be considered "final". Until then, they're just "drafts"... Hope this helps. Pyrrhus (talk) 22:41, August 10, 2019 (EDT) Right, just waiting for MEAction to review then notjusttired (talk) 16:12, August 11, 2019 (EDT) Create MEpedia:Terms of use - it's linked to from bottom of all pages. Add it to “MEpedia documentation” category. Make it protected so that only admins can edit it. (Requested by Pyrrhus May 2019) Create MEpedia:Privacy policy - it's linked to from bottom of all pages. Add it to “MEpedia documentation” category. See Talk:Wmf:Privacy policy for details. Make it protected so that only admins can edit it. Also make Wmf:Privacy policy protected because that is an important redirect. (Request last updated by Pyrrhus April 2019) Create MEpedia:Cookie statement - it's linked to from bottom of all pages. Add it to “MEpedia documentation” category. Make it protected so that only admins can edit it. Also make Wmf:Cookie statement protected because that is an important redirect. Requested by Pyrrhus April 2019) Wmf redirect protected thanks to User:Kmdenmark notjusttired (talk) 16:12, August 11, 2019 (EDT) check why search engine crawls are taking months to reflect updates - Google search console, robots, etc, consider adding site map that including images requested by User:Notjusttired (Recrawl of key pages requested Jul 2019) - Confirmed completed by Njt ~Njt (talk) 10:07, April 7, 2020 (PDT) Make sure we have a page on the GETSET trial http://forums.phoenixrising.me/index.php?threads/getset-graded-exercise-therapy-guided-self-help-treatment-getset.44749/ Add this article (and the study referred to) to Leonard Jason page (maybe others?) 2015, Case definitions integrating empiric and consensus perspectives https://doi.org/10.1080/21641846.2015.1124520 - done already Add Cochrane exercise review http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full - already covered

Centers for Disease Control and Prevention (CDC) - The Centers for Disease Control and Prevention is a U.S. government agency dedicated to epidemiology and public health. It operates under the auspices of the Department of Health and Human Services.

International Consensus Criteria (ICC) - A set of diagnostic criteria, based on the Canadian Consensus Criteria, that argued for the abandonment of the term "chronic fatigue syndrome" and encouraged the sole use of the term "myalgic encephalomyelitis".

Canadian Consensus Criteria (CCC) - A set of diagnostic criteria used to diagnose ME/CFS, developed by a group of practicing ME/CFS clinicians in 2003. The CCC is often considered to be the most complex criteria, but possibly the most accurate, with the lowest number of patients meeting the criteria. Led to the development of the International Consensus Criteria (ICC) in 2011.

PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

antibodies Antibody/immunoglobulin refers to any of a large number of specific proteins produced by B cells that act against an antigen in an immune response.

membrane The word "membrane" can have different meanings in different fields of biology. In cell biology, a membrane is a layer of molecules that surround its contents. Examples of cell-biology membranes include the "cell membrane" that surrounds a cell, the "mitochondrial membranes" that form the outer layers of mitochondria, and the "viral envelope" that surrounds enveloped viruses. In anatomy or tissue biology, a membrane is a barrier formed by a layer of cells. Examples of anatomical membranes include the pleural membranes that surrounds the lungs, the pericardium which surrounds the heart, and some of the layers within the blood-brain barrier.

B cell B lymphocyte, or a type of white blood cell, which is involved in the immune response by secreting antibodies to ward off infections. In mammals, they are mostly matured in the bone marrow.

human leukocyte antigen complex (HLA) - A set of genes responsible for a given person's immune response to potential threats. Specifically, HLA genes encode proteins which help the immune system to distinguish the body's own proteins from proteins which are made by foreign invaders like bacteria and viruses. The HLA complex can vary greatly from person to person, generating unique immune and allergic responses. (Learn more: mecfsresearchreview.me)

metabolite A chemical compound produced by, or involved in, metabolism. The term is often used to refer to the degradation products of drugs in the body.

central nervous system (CNS) - One of the two parts of the human nervous system, the other part being the peripheral nervous system. The central nervous system consists of the brain and spinal cord, while the peripheral nervous system consists of nerves that travel from the central nervous system into the various organs and tissues of the body.

cognition Thought processes, including attention, reasoning, and memory.

neuroendocrine relating to hormones that influence the nervous system

enterovirus A genus of RNA viruses which typically enter the body through the respiratory or gastrointestinal systems and sometimes spread to the central nervous system or other parts of the body, causing neurological, cardiac, and other damage. Since the first reports of myalgic encephalomyelitis (ME), enteroviruses have been suspected as a cause of ME. Enteroviruses have also been implicated as the cause of Type I diabetes, congestive heart failure, and other conditions. Enteroviruses include poliovirus, coxsackieviruses, and many others. New enteroviruses and new strains of existing enteroviruses are continuously being discovered. (Learn more: viralzone.expasy.org)

brainstem Region of the midbrain in adults, includes midbrain, pons, and medulla oblongata and develops.

randomized controlled trial (RCT) - A trial in which participants are randomly assigned to two groups, with one group receiving the treatment being studied and a control or comparison group receiving a sham treatment, placebo, or comparison treatment.

Association of Young People with ME (AYME) - AYME was a UK national charity supporting children and young people affected by ME/CFS with members under 25. It's lead medical advisor was Doctor Esther Crawley. In April 2017 the charity merged with Action for ME, forming its Children's Services department run by Mary-Jane Willows.

cognition Thought processes, including attention, reasoning, and memory.

BMJ The BMJ (previously the British Medical Journal) is a weekly peer-reviewed medical journal.

cytokine any class of immunoregulatory proteins secreted by cells, especially immune cells. Cytokines are small proteins important in cell signaling that modulate the immune system. (Learn more: me-pedia.org)

cytokine any class of immunoregulatory proteins secreted by cells, especially immune cells. Cytokines are small proteins important in cell signaling that modulate the immune system. (Learn more: me-pedia.org)

cerebral 1. of or relating to the brain or the intellect 2. of, relating to, affecting, or being the cerebrum.

National Institutes of Health (NIH) - A set of biomedical research institutes operated by the U.S. government, under the auspices of the Department of Health and Human Services.

plasma The liquid part of blood, lymph, or milk after removing any suspended material. Most of the time, "plasma" simply refers to blood, after all the blood cells have been removed. If you also remove the clotting factors, then the plasma is referred to as "serum".

Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) - Chronic Fatigue and Immune Dysfunction Syndrome is another term for Chronic Fatigue Syndrome, but one which emphasizes the immunological aspects of the disease. Popular in the 1990s, this term has apparently fallen into disuse.

NICE guidelines Clinical guidelines used in the UK.

virome The human virome is the collection of all viruses that are found in or on humans.

cognition Thought processes, including attention, reasoning, and memory.

mitochondria Important parts of the biological cell, with each mitochondrion encased within a mitochondrial membrane. Mitochondria are best known for their role in energy production, earning them the nickname "the powerhouse of the cell". Mitochondria also participate in the detection of threats and the response to these threats. One of the responses to threats orchestrated by mitochondria is apoptosis, a cell suicide program used by cells when the threat can not be eliminated.

B cell B lymphocyte, or a type of white blood cell, which is involved in the immune response by secreting antibodies to ward off infections. In mammals, they are mostly matured in the bone marrow.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

photophobia Light intolerance, including feeling pain from strong light. (Learn more: www.merriam-webster.com)

indoleamine (IDO) - any derivatives of an indole (e.g., serotonin, tryptophan) that contain an amine group

indole (IDO) - a signalling molecule produced by bacteria as a result of metabolising tryptophan, found in the intestines

Action for ME (AfME) - Action for ME is a British non-profit organization that was set up in 1987 as The M.E. Action Campaign. Its founders were Martin Lev, Sue Findlay and Clare Francis. In September 1993 it changed its name and logo to Action for ME and Chronic Fatigue. It then changed its name in 1993 to Action for ME.