MEpedia:Suggested tasks: Difference between revisions

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
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When a task is complete move to the COMPLETED section  
When a task is complete move to the COMPLETED section  
* Add a malaise image to the [[Post-exertional malaise|PEM]] page. If we can get a volunteer to have an image of them perhaps out at a cafe' (before) and two or three days later at home with the impact showing on their face (after) this would be a very helpful illustration.
* If this image from the Commons https://commons.wikimedia.org/wiki/File:Bayes_theorem.png could please be added to [[Bayesian_reasoning#Bayes_Theorum]], I'd much appreciate it! [[User:Canele|Canele]] ([[User talk:Canele|talk]]) 23:42, 25 February 2019 (EST)
* If this image from the Commons https://commons.wikimedia.org/wiki/File:Bayes_theorem.png could please be added to [[Bayesian_reasoning#Bayes_Theorum]], I'd much appreciate it! [[User:Canele|Canele]] ([[User talk:Canele|talk]]) 23:42, 25 February 2019 (EST)


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*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract
*Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be  Where? ''Added to pediatric page''
*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be  Where? ''Added to pediatric page''
 
*Add a malaise image to the [[Post-exertional malaise|PEM]] page. If we can get a volunteer to have an image of them perhaps out at a cafe' (before) and two or three days later at home with the impact showing on their face (after) this would be a very helpful illustration. (Done with #TwoFacesofME Tweets)


[[Category:User to-dos]]
[[Category:User to-dos]]
[[Category:MEpedia guidelines]]
[[Category:MEpedia guidelines]]

Revision as of 03:59, February 28, 2019

This page lists suggestions for improvements to MEpedia.

Please feel encouraged to consider making the relevant page or edit yourself (see How to contribute to get started!), as many editors of MEpedia are sick and working hard to improve the content in particular areas. We need your help! But if you can't make the improvement yourself, click Edit below (next to the heading "Suggestions"), add your suggestion to the end, and then click Save page.

Please briefly detail your suggestion, including the name of the MEpedia page(s) that need creating or editing, and web links to sources/citations (e.g., the published study, a source for a quote, etc.) Then sign your suggestion with your name and the date. If you're using the wikitext editor, you can simply type four tildes (this symbol: ~ ) on a line by itself.

If you'd just like to keep track of your own goals on site (but make them visible to others), instead of adding suggestions here you can add a subpage to your user page (add a "/" and subpage, e.g., User:Brettz9/To-dos) and then add the code [[Category:User to-dos]] to your subpage article. It will then show up at Category:User to-dos.

Priority pages for expansion[edit | edit source]

Science: Citric acid cycle, Central nervous system, Nitric oxide hypothesis, Brain, Brain imaging, Microbiome hypothesis, PACE trial

Suggestions - High Priority[edit | edit source]

When a task is complete move it to the COMPLETED section at the bottom of the page

High Priority Admin / Bureaucrat Suggestions[edit | edit source]

Admin / Bureaucrat Suggestions[edit | edit source]

  • Fix the New User Message as suggested on the User talk:New user message talk page. (Requested by Pyrrhus, Feb 2019)
  • Fix the email address "mepedia@meaction.net". (Requested by Pyrrhus, Feb 2019)
  • Fix the wiki emailer so that new users can receive the 'autoconfirm' email and so that established users can receive email notifications of changes, etc. (Requested by Pyrrhus, Feb 2019)
  • If possible, add the Visual Editor to the “Talk:” and “MEpedia:” namespaces so new contributors don’t need to learn wikitext to edit a page. (Requested by Pyrrhus, Feb 2019)
  • Consider adding a Lingo Extension https://www.mediawiki.org/wiki/Special:MyLanguage/Extension:Lingofor generating tooltips for all abbreviations
  • Once agreed, change copyright message on footer for all pages to state license actually in use instead of 'our special license'
  • Create privacy policy - it's linked to from bottom of all posts
  • Can Citation bot extension be installed and enabled for all new users - see Wikipedia for link & institutions

Added to Dev Queue (In process)[edit | edit source]

  • Add extra code to Common.css from Notjusttired/common.css (except for the end section that's commented out) - for alternating table rows and minor tweaks
  • Whitelist certain websites for references eg on MediaWiki:Captcha-addurl-whitelist see example here - so we don't need to do the Captcha so often, see here eg pubmed, pubmed central, researchgate.net, phoenixrising, taylor francis publisher, Google books (.com and.co.uk and .de), investinme, virology.ws MEAction, sagepub. Longer list of suggestions on discussion page: MediaWiki_talk:Captcha-addurl-whitelist
  • Add System Messages from https://www.mediawiki.org/wiki/Extension:WikimediaMessages to show licensing messages on Upload page, including translations
  • check why search engine crawls are taking months to reflect updates - Google search console, robots, etc, consider adding site map that including images
  • all editors to see visitor stats eg popular pages or searched for terms - it's hard to know what topics to work on
  • allow search engines to crawl the Files namespace eg http://me-pedia.org/wiki/File:example.jpg so images come up when doing Google search on images for reuse

Suggestions - Images needed[edit | edit source]

Suggest an image and mark the page it's needed on with {{NeedsImage}}

When a task is complete move to the COMPLETED section

Suggestions - Five Minute Tasks[edit | edit source]

When a task is complete move it to the COMPLETED section at the bottom of the page

Mensah, F.K.F., Bansal, A.S., Ford, B. and Cambridge, G., 2017. Chronic fatigue syndrome and the immune system: Where are we now?. Neurophysiologie Clinique/Clinical Neurophysiology, 47(2), pp.131-138. http://dx.doi.org/10.1016/j.neucli.2017.02.002 Immune system where are we now https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1440524/


Suggestions[edit | edit source]

When a task is complete move it to the COMPLETED section at the bottom of the page

Implement acronyms as a category[edit | edit source]

http://me-pedia.org/wiki/List_of_acronyms

I don't think this is necessary? The current abbreviations page serves its function perfectly, as it is alphabetized, linked and has explanatory notes. A category seems like an unnecessary duplication. --Samsara (talk) 02:18, 3 November 2016 (PDT)

Historical articles[edit | edit source]

Add these articles:

There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/

Stem cell treatments[edit | edit source]

Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. Brettz9 (talk) 11:37, 19 January 2016 (PST)

Treatments[edit | edit source]

A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the List of treatments page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --JenB (talk) 09:24, 11 December 2015 (PST)

Basic biochemistry[edit | edit source]

Infectious disease[edit | edit source]

New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the Herpesvirus page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both CFS and other diseases, especially those involving B cells and the possible infection of nervous tissue. --JenB (talk) 08:38, 16 March 2016 (PDT)

Completed[edit | edit source]

When a task is complete move it HERE

Dev Queue Completed[edit | edit source]

  • Add EmbedVideo extension from https://www.mediawiki.org/wiki/Extension:EmbedVideo to allow us to embed YouTube or Vimeo clips, eg Linda Crowhurst's on Severe M.E., videos for symptoms like muscle twitches, myclonus, and advocacy clips/explanations - the MEAnalysis PACE video for instance - this would help those with photophobia

Tasks completed

Completed in 2019[edit | edit source]

PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.

B cell B lymphocyte, or a type of white blood cell, which is involved in the immune response by secreting antibodies to ward off infections. In mammals, they are mostly matured in the bone marrow.

International Consensus Criteria (ICC) - A set of diagnostic criteria, based on the Canadian Consensus Criteria, that argued for the abandonment of the term "chronic fatigue syndrome" and encouraged the sole use of the term "myalgic encephalomyelitis".

Canadian Consensus Criteria (CCC) - A set of diagnostic criteria used to diagnose ME/CFS, developed by a group of practicing ME/CFS clinicians in 2003. The CCC is often considered to be the most complex criteria, but possibly the most accurate, with the lowest number of patients meeting the criteria. Led to the development of the International Consensus Criteria (ICC) in 2011.

B cell B lymphocyte, or a type of white blood cell, which is involved in the immune response by secreting antibodies to ward off infections. In mammals, they are mostly matured in the bone marrow.

Action for ME (AfME) - Action for ME is a British non-profit organization that was set up in 1987 as The M.E. Action Campaign. Its founders were Martin Lev, Sue Findlay and Clare Francis. In September 1993 it changed its name and logo to Action for ME and Chronic Fatigue. It then changed its name in 1993 to Action for ME.

National Institutes of Health (NIH) - A set of biomedical research institutes operated by the U.S. government, under the auspices of the Department of Health and Human Services.

BMJ The BMJ (previously the British Medical Journal) is a weekly peer-reviewed medical journal.

cytokine any class of immunoregulatory proteins secreted by cells, especially immune cells. Cytokines are small proteins important in cell signaling that modulate the immune system. (Learn more: me-pedia.org)

microbiome The full collection of microscopic organisms (especially bacteria and fungi) which are present in a particular environment, particularly inside the human body.

cognition Thought processes, including attention, reasoning, and memory.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

myalgic encephalomyelitis (M.E.) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.

photophobia Light intolerance, including feeling pain from strong light. (Learn more: www.merriam-webster.com)

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