MEpedia:Suggested tasks: Difference between revisions
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*Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? ''Added to pediatric page'' | *Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? ''Added to pediatric page'' | ||
[[Category:User to-dos]] | [[Category:User to-dos]] | ||
[[Category:MEpedia guidelines]] | [[Category:MEpedia guidelines]] |
Revision as of 06:18, February 25, 2019
This page lists suggestions for improvements to MEpedia.
Please feel encouraged to consider making the relevant page or edit yourself (see How to contribute to get started!), as many editors of MEpedia are sick and working hard to improve the content in particular areas. We need your help! But if you can't make the improvement yourself, click Edit below (next to the heading "Suggestions"), add your suggestion to the end, and then click Save page.
Please briefly detail your suggestion, including the name of the MEpedia page(s) that need creating or editing, and web links to sources/citations (e.g., the published study, a source for a quote, etc.) Then sign your suggestion with your name and the date. If you're using the wikitext editor, you can simply type four tildes (this symbol: ~ ) on a line by itself.
If you'd just like to keep track of your own goals on site (but make them visible to others), instead of adding suggestions here you can add a subpage to your user page (add a "/" and subpage, e.g., User:Brettz9/To-dos) and then add the code [[Category:User to-dos]] to your subpage article. It will then show up at Category:User to-dos.
Priority pages for expansion[edit | edit source]
Science: Citric acid cycle, Central nervous system, Nitric oxide hypothesis, Brain, Brain imaging, Microbiome hypothesis, PACE trial
Suggestions - High Priority[edit | edit source]
When a task is complete move it to the COMPLETED section at the bottom of the page
- Female predominant diseases: complete this table of gender ratio + prevalence for chronic illness: Female predominant diseases#List of diseases (will likely be used in advocacy and outreach efforts)
- Add photos of ALL the May (and Belfast in June) Millions Missing protests to the MM page http://me-pedia.org/wiki/Millions_Missing_protests
- Add the Stats.org editorial & 7,000 word criticism to the PACE page :
- Make sure that all the specific significant criticisms they make are covered in the Criticism section if not already
- (IN PROGRESS) Include (and explain) this chart from article https://twitter.com/Katiissick/status/713080268756619264
- Categorize all uncategorized pages (list of uncategorized pages here: http://me-pedia.org/wiki/Special:UncategorizedPages)
- Add a portal on Wikipedia for CFS or umbrella (e.g., auto-immune-related conditions), bringing more awareness and contributions on Wikipedia (also through subpages, such as "B cells and CFS"), and which we could reference here
- CREATE AND POPULATE PAGES FOR genitourinary impairment (ICC requirement) neuroendocrine (CCC requirement) and Ion, part of the Ion transportation page which could use more work (ICC requirement).
- Also, Energy metabolism portal needs more work. Should Metabolic and Metabolomics be included and explained, as a selected article? How about Metabolic features of chronic fatigue syndrome? And exactly what is being defined on the ICC page with the Energy metabolism portal? I can figure out how they correlate and if I can't, how can a patient, caregiver, and even doctors?
- Bacterial disease onset is a stub that needs to be populated and Viral onset hypothesis is in need of cleanup, specifically citations.
High Priority Admin / Bureaucrat Suggestions[edit | edit source]
Admin / Bureaucrat Suggestions[edit | edit source]
- Fix the New User Message as suggested on the User talk:New user message talk page. (Requested by Pyrrhus, Feb 2019)
- Fix the email address "mepedia@meaction.net". (Requested by Pyrrhus, Feb 2019)
- Fix the wiki emailer so that new users can receive the 'autoconfirm' email and so that established users can receive email notifications of changes, etc. (Requested by Pyrrhus, Feb 2019)
- If possible, add the Visual Editor to the “Talk:” and “MEpedia:” namespaces so new contributors don’t need to learn wikitext to edit a page. (Requested by Pyrrhus, Feb 2019)
- Consider adding a Lingo Extension https://www.mediawiki.org/wiki/Special:MyLanguage/Extension:Lingofor generating tooltips for all abbreviations
- Once agreed, change copyright message on footer for all pages to state license actually in use instead of 'our special license'
- Create privacy policy - it's linked to from bottom of all posts
- Can Citation bot extension be installed and enabled for all new users - see Wikipedia for link & institutions
Added to Dev Queue (In process)[edit | edit source]
- Add extra code to Common.css from Notjusttired/common.css (except for the end section that's commented out) - for alternating table rows and minor tweaks
- Whitelist certain websites for references eg on MediaWiki:Captcha-addurl-whitelist see example here - so we don't need to do the Captcha so often, see here eg pubmed, pubmed central, researchgate.net, phoenixrising, taylor francis publisher, Google books (.com and.co.uk and .de), investinme, virology.ws MEAction, sagepub. Longer list of suggestions on discussion page: MediaWiki_talk:Captcha-addurl-whitelist
- Add System Messages from https://www.mediawiki.org/wiki/Extension:WikimediaMessages to show licensing messages on Upload page, including translations
- check why search engine crawls are taking months to reflect updates - Google search console, robots, etc, consider adding site map that including images
- all editors to see visitor stats eg popular pages or searched for terms - it's hard to know what topics to work on
- allow search engines to crawl the Files namespace eg http://me-pedia.org/wiki/File:example.jpg so images come up when doing Google search on images for reuse
Suggestions - Images needed[edit | edit source]
Suggest an image and mark the page it's needed on with {{NeedsImage}}
When a task is complete move to the COMPLETED section
- Add a malaise image to the PEM page. If we can get a volunteer to have an image of them perhaps out at a cafe' (before) and two or three days later at home with the impact showing on their face (after) this would be a very helpful illustration.
Suggestions - Five Minute Tasks[edit | edit source]
When a task is complete move it to the COMPLETED section at the bottom of the page
- Add Talk:Individual_Quotes#Quotes_to_add Simon Wessely quotes and others eg Charles Shepherd to Individual_Quotes
- Add Trudie Chalder ICO FOIA source p36-37 "no direct threats", p30 "activists" as a disparaging term confirming no PACE researchers were threatened to Stigma, Simon Wessely, Trudie Chalder, Esther Crawley and PACE trial pages
- Add https://www.nova.edu/nim/research/mecfs-genes.html to ME/CFS Gene Study page
- Add https://grants.nih.gov/grants/guide/notice-files/NOT-AI-16-046.html
- Add http://www.healthrising.org/blog/2016/04/06/immune-system-fatigue-brain-me-cfs-fibromyalia/
- Make sure MEpedia covers the GETSET study https://spoonseeker.com/2016/05/23/a-few-notes-on-getset/
- Add https://twitter.com/Firestormmer/status/734650703847784449
- Add http://www.freezepage.com/1374761286EFCHIYENBE
- Add http://www.healthrising.org/blog/2016/05/19/25-disease-chronic-fatigue-syndrome-mecfs-unique-many-people-homebound/
- Add http://www.meaction.net/2016/05/18/uk-plans-worlds-biggest-biomedical-mecfs-study/
- Add Bansak's presentation - related research by Banash - Extended B cell phenotype in patients with myalgic encephalomyelitis/chronic fatigue syndrome: a cross‐sectional study source-Clin Exp Immunol. 2016 May; 184(2): 237–247. Published online 2016 Feb 22. doi: 10.1111/cei.12749 PMCID: PMC4837232 PMID: 26646713 License: Fair Usage PMC4837232 ***plus***
Mensah, F.K.F., Bansal, A.S., Ford, B. and Cambridge, G., 2017. Chronic fatigue syndrome and the immune system: Where are we now?. Neurophysiologie Clinique/Clinical Neurophysiology, 47(2), pp.131-138. http://dx.doi.org/10.1016/j.neucli.2017.02.002 Immune system where are we now https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1440524/
- https://twitter.com/Firestormmer/status/733001836186238976
- Add to ketogenic diet page under exogenous ketones https://ketosource.co.uk/exogenous-ketone-supplements-review/
- Add http://www.meassociation.org.uk/2016/05/remember-shine-the-spotlight-on-mecfs-research-and-management-dr-shepherd-recalls-highlights-of-burgess-hill-meeting-14-may-2016/
- Add http://medicalxpress.com/news/2016-05-chronic-fatigue-patients-suppress-emotions.html
- Add to ritux/b-cell pages http://forums.phoenixrising.me/index.php?threads/extended-b-cell-phenotype-in-patients-with-me-cfs-a-cross-sectional-study.41743/#post-674305
- Add http://www.meassociation.org.uk/2016/05/me-associations-contributions-towards-mitochondrial-muscle-research-in-mecfs-17-may-2016/
- Add new page for MEGA UK study https://www.actionforme.org.uk/news/mega-new-me-research-project/#.Vzn9sbBp4gk.twitter
- Add http://www.meaction.net/2016/05/15/brain-connectivity-problems-causing-signalling-problems/
- Add details of new Crawley study to her page, and mention AfME funding it, also mention that on AfME page http://forums.phoenixrising.me/index.php?threads/esther-crawley-paediatric-prevalence-study-funded-by-action-for-me.44622/#post-724857
- Add to MAGENTA page http://apps.who.int/trialsearch/Trial2.aspx?TrialID=ISRCTN23962803
- Add http://www.theestablishment.co/2016/05/13/the-hidden-battle-for-the-rights-of-chronic-fatigue-syndrome-sufferers/
- Add https://cfsremission.wordpress.com/2016/05/14/cortisol-cfs-and-microbiome/
- Add http://www.meassociation.org.uk/2016/05/ive-suffered-with-me-since-i-was-eight-and-the-way-im-treated-hasnt-changed-in-30-years-the-independent-12-may-2016/
- Add https://www.ncbi.nlm.nih.gov/pubmed/27165859
- Add http://phoenixrising.me/archives/28077
- Add http://www.meaction.net/2016/05/11/fluge-and-mellas-search-for-genetic-markers/
- Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/
- Add to Ritux page https://twitter.com/Firestormmer/status/730399214686056448
- Add https://selfhacked.com/2016/05/11/21-proven-science-based-reasons-magnesium-amazing-including-drawbacks/
- Add http://scienmag.com/further-clues-in-the-fight-against-chronic-fatigue-syndrome/
- Add http://www.eurekalert.org/pub_releases/2016-05/bawh-etg050616.php
- Add https://www.ncbi.nlm.nih.gov/pubmed/9771781
- Add http://www.meaction.net/2016/05/09/study-housebound-versus-nonhousebound-patients-with-mecfs/
- Add http://www.healthrising.org/blog/2016/05/09/activated-mast-cell-activation-syndrome-mecfsfm/
- Add https://www.ncbi.nlm.nih.gov/pubmed/9745235
- Add http://healthy-magazines.com/chronic-fatigue-syndrome-mecfs-uncovering-mystery/
- Add https://www.researchgate.net/publication/283476227_Psychogenic_explanations_of_physical_illness_Time_to_examine_the_evidence
- Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.abstract
- Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0873-1
- Add http://www.meaction.net/2016/05/05/progressive-brain-changes-in-patients-with-chronic-fatigue-syndrome-are-our-brains-starved-of-oxygen/
- Add http://www.meactionuk.org.uk/Response-to-Dr-Stuart-Spencer.htm
- Add https://selfhacked.com/2016/05/03/mmp9/
- Add http://forums.phoenixrising.me/index.php?threads/norwegian-professor-in-biology-supportive-of-pace.44177/page-5#post-721234
- Add to NIH page http://www.occupycfs.com/2016/05/03/staying-the-course-to-where/
- Add http://www.huffingtonpost.com/-stephanie-land/patients-with-chronic-ill_b_9818754.html
- Add https://www.ncbi.nlm.nih.gov/pubmed/9292244
- Add https://tipsforme.wordpress.com/2015/10/19/resource-walking-problems/?utm_content=bufferb75ff&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
- Add https://www.researchgate.net/publication/11813965_What_is_Chronic_Fatigue_Syndrome_Heterogeneity_Within_an_International_Multicentre_Study
- Add http://www.meaction.net/2016/05/01/patients-and-professor-publish-biomedical-mecfs-paper/
- Add https://www.ncbi.nlm.nih.gov/pubmed/15784798
- Add http://www.healthrising.org/blog/2016/04/24/nath-nih-chronic-fatigue-syndrome-study-push-back/
- Add https://corsius.wordpress.com/2016/04/23/biased-research-on-cfs/
- Add http://www.itv.com/news/tyne-tees/update/2013-05-08/teenager-with-m-e-says-shes-accused-of-exaggerating-her-illness/
- Add http://www.healthrising.org/forums/threads/can-simple-blood-tests-help-to-identify-chronic-fatigue-syndrome-me-cfs.4228/
- Add http://chi.sagepub.com/content/early/2016/04/22/1742395316644770.long
- Add http://onlinelibrary.wiley.com/doi/10.1002/jmri.25283/full
- Add https://www.ncbi.nlm.nih.gov/pubmed/9018051
- Add http://www.tandfonline.com/doi/full/10.1080/21641846.2016.1160598
- Add http://www.meaction.net/2016/04/27/nih-study-will-bring-new-technology-and-expertise-to-mecfs/
- Add https://www.ncbi.nlm.nih.gov/pubmed/27114901
- Add https://www.ncbi.nlm.nih.gov/pubmed/27116645
- Add https://meagenda.wordpress.com/2009/10/27/dr-nigel-speight-resigns-from-children-and-young-persons-organisation-ayme/
- Add to MS/Ritux pages http://www.gene.com/media/press-releases/14609/2015-10-08/genentechs-ocrelizumab-first-investigati
- Add http://translational-medicine.biomedcentral.com/articles/10.1186/s12967-016-0859-z
- Add http://www.mdpi.com/2075-4418/6/2/16
- Add https://www.ncbi.nlm.nih.gov/pubmed/27095328
- Add http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html
- Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC486360/?page=8
- Add https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2350897/pdf/bmj00539-0053d.pdf
- Add http://bmcinfectdis.biomedcentral.com/articles/10.1186/s12879-016-1497-z
- Add https://twitter.com/LouCorsius/status/719993266876391424/photo/1
- Make sure this article is linked to on the ME page, maybe elsewhere too - citation: Ed BMJ 1978;(3 June):1436-7 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf
- Add this study on cytokines to the cytokines page (and pages for the specific ones affected) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC368231/pdf/cdli00002-0112.pdf
- Add this 1994 article to the Chronic Fatigue Syndrome page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1615008/pdf/amjph00453-0124.pdf
- Add this article to the e-coli page https://cfsremission.wordpress.com/2016/03/29/the-care-and-feeding-of-e-coli-probiotics/
- Add this article to the autoimmunity page http://cellfatigue.blogspot.co.uk/2016/03/autoimmunity-and-self-tolerance-in-mecfs.html
- Make sure this study is mentioned on the ketogenic diet page https://www.ncbi.nlm.nih.gov/pubmed/24847102
- Create a basic outline page about this UK ME support group http://www.mesupport.co.uk/index.php?page=anniversary-statement You can copy-paste an outline from the outlines page http://me-pedia.org/wiki/MEpedia_article_outlines#Patient_Group.2FCharity
- Add new simple protocol article to Ken Lassesen's hypothesis page (probiotics) https://cfsremission.wordpress.com/2016/03/31/best-two-probiotics-to-start-probiotic-approach/ and also add this https://cfsremission.wordpress.com/2016/03/27/pictures-of-cfs/
- Add this interesting anecdote to the MS page http://www.cortjohnson.org/forums/threads/a-chronic-fatigue-syndrome-pots-patient-responds-to-a-multiple-sclerosis-drug-what-does-it-mean.4028/
- Make sure this video about Klimas' gene study is included on her page, and wherever the study is covered (perhaps its own page needed?) https://sharkmedia.nova.edu/media/ME+CFS+Genes+Study/1_06vh90p0
- Add 2006 announcement of fatigue service at Barts UK led by Peter White to White's page, and Shirley Conran page and Maurice Murphy pages. https://web.archive.org/web/20070522194545/http://www.bartsandthelondon.nhs.uk/formedia/press/release.asp?id=1216
- Add ME Advocacy article to NIH study page under Learn more http://www.meadvocacy.org/nih_sidesteps_critical_problems_with_the_me_cfs_study
- Add Cort article to PACE page, Learn more section http://www.cortjohnson.org/forums/threads/pace-trial-gets-most-devastating-critique-yet.4003/#post-15641
- Add to MRI pages https://www.ncbi.nlm.nih.gov/pubmed/8141020
- Add Guardian article to list of articles about ME http://www.theguardian.com/lifeandstyle/2016/apr/04/chronic-fatigue-syndrome-cfs-taken-seriously#comment-71789644 Maybe also to PACE page, and pages for Montoya, Hornig & Dimmock.
- Add study https://www.ncbi.nlm.nih.gov/pubmed/1282370
- Add study https://www.ncbi.nlm.nih.gov/pubmed/1446478
- Add study https://www.ncbi.nlm.nih.gov/pubmed/1337562
- Add NK study https://www.ncbi.nlm.nih.gov/pubmed/1287238
- Add this article to Cort Johnson page http://www.prohealth.com/me-cfs/library/showarticle.cfm?libid=28684
- Add http://carersfight.blogspot.co.uk/2015/12/the-pace-trial-concerns-raised-by.html
- Add https://m.facebook.com/photo.php?fbid=955820941179099&id=100002536068526&set=a.274636879297512.61710.100002536068526&source=57
- Add https://twitter.com/senseaboutsci/status/683616829923831808?s=09
- Add https://en.wikipedia.org/wiki/Chronic_fatigue_syndrome_treatment
- Add http://simmaronresearch.com/2015/12/ian-lipkin-three-to-five-years-to-solve-chronic-fatigue-syndrome-mecfs/
- Add http://www.meassociation.org.uk/2015/12/plenty-of-new-blood-and-enthusiasm-at-the-uk-mecfs-biobank-23-december-2015/
- Add https://pubpeer.com/publications/22870204
- Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4224?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16831
- Add http://my.meaction.net/local_chapters/mepedia/forum_threads/4116?token=9408280d9eecf4e9b52677e3e5d6acd6e397162f#message_16842
- Add http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf
- Add http://www.mrijournal.com/article/S0730-725X(15)00303-3/abstract
- Add https://dl.dropboxusercontent.com/u/23608059/PDW-re-theft.pdf
- Add https://twitter.com/LetsDoIt4ME/status/678983105865195520/photo/1
- Add https://twitter.com/bengoldacre/status/679228319234195456
- Add http://forums.phoenixrising.me/index.php?threads/peter-white-barts-comments-on-draft-nice-guidelines-insight-into-their-views.1239/
- Add http://www.investinme.org/InfoCentre-vaccines-popup-1.htm
- Add http://articles.latimes.com/1986-06-07/news/mn-9956_1_lake-tahoe
- Add https://www.actionforme.org.uk/uploads/pdfs/CMRC-draft-minutes-111115.pdf
- Add http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD011040/full
- Add http://www.cortjohnson.org/forums/threads/severely-ill-chronic-fatigue-syndrome-me-cfs-study-expanded.3432/
- Add https://twitter.com/postersandme/status/677469604348870657/photo/1
- Add http://www.qmul.ac.uk/media/news/items/smd/81841.html
- Add https://en.wikipedia.org/wiki/Controversies_related_to_chronic_fatigue_syndrome
- Add https://twitter.com/TomKindlon/status/677173627532402688
- Add http://www.investinme.org/Article-419%20Professor%20Hooper%20Response%20to%20The%20Observer%20Newspaper%20Aug2011.htmhttp://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx
- Add to Walitt and NIH study pages http://thoughtsaboutme.com/2016/03/21/keep-an-eye-on-your-walitt-nih-study-poses-dramatic-risk-to-long-term-disability-benefits/
- Article to add to Fibromyalgia, Younger and LDN pages http://nationalpainreport.com/fibromyalgia-can-we-crack-the-code-and-put-the-patient-first-8829846.html
- Add this article to Brian Walitt page http://www.cortjohnson.org/forums/threads/brian-walitt-and-the-psychosomaticism-of-fibromyalgia-another-look.3915/
- Add a link to this discussion between Elizabeth Dowsett & P. D. Welsby to her page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2399326/pdf/postmedj00061-0066.pdf
- Add this article (and the study referred to) to Leonard Jason's page (maybe others?) http://www.meaction.net/2016/03/18/study-says-scientists-must-agree-on-classifying-patients/
- Make sure the Ramsay-style criteria created my Shepherd, Goudsmit & Howes is linked to on its own page, and those of the authors http://www.axfordsabode.org.uk/me/mecrit2014.htm
- Pick a page about a person (patient, doctor, researcher, journalist etc) and add a photo to their page.
- Add to NIH page http://www.healthrising.org/blog/2016/05/26/proposal-vastly-increase-funding-mecfs-nih-passes-first-test/
- Make sure this crucial chart of ME quality of life and related study are included and study referenced http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421
- Add to NAC page https://selfhacked.com/2016/05/27/top-25-science-based-health-benefits-n-acetyl-cysteine-nac/
- Add to mitochondria and Eric Gordon pages http://www.gordonmedical.com/unravelling-complex-chronic-illness/gordon-medical-research-center-now-funding-replication-study-on-cfidsme-findings/
- Add to fatigue page http://www.healthrising.org/blog/2016/05/31/fatigue-japanese-way/
- Make sure we have a page on the GETSET trial http://forums.phoenixrising.me/index.php?threads/getset-graded-exercise-therapy-guided-self-help-treatment-getset.44749/
- Make sure the ME Association page link to purple book gets to the latest one http://www.meassociation.org.uk/2016/06/the-eight-edition-of-our-clinical-and-research-masterwork-is-published-today-1-june-2016/
- Add to NK cell and b cell pages and key author pages http://forums.phoenixrising.me/index.php?threads/novel-identification-and-characterisation-of-transient-receptor-potential-melastatin-3-ion-channels.44932/
- Add to Davis page and severely ill study page http://www.meaction.net/2016/06/04/davis-at-invest-in-me-new-severe-patients-data/
- Add to page on Fisetin https://selfhacked.com/2016/06/04/15-science-based-health-benefits-fisetin-1-favorite/
- Add to Davis and mitochondria and severely ill study pages http://www.meaction.net/2016/06/04/ron-davis-errors-metabolism/
- Add to Weardon page, maybe others http://bmcfampract.biomedcentral.com/articles/10.1186/s12875-016-0453-8
- Add to Davis page and list of news articles https://www.thejournal.ie/readme/me-invisible-illness-2792636-Jun2016/
- Add to microbiome page and Simon Carding page https://www.ncbi.nlm.nih.gov/pubmed/27275835
- Add to cognitive dynsfunction page http://www.healthrising.org/blog/2016/06/12/cognition-chronic-fatigue-syndrome-key-findings/
- Add White study http://www.jpsychores.com/article/S0022-3999(16)30327-0/abstract
- Add to vision page http://www.meresearch.org.uk/news/vision-thesis/
- Add to NIH page http://www.occupycfs.com/2016/06/14/responding-to-the-nih-rfi/
- Add to chronic fatigue page, maybe also primer(s)? http://www.self.com/wellness/2016/06/the-difference-between-chronic-fatigue-syndrome-and-extreme-tiredness/
- Add to OMF and/or severely ill study page http://www.openmedicinefoundation.org/expanded-mecfs-metabolomics-study/
- Add to mtDNA page http://www.nytimes.com/2016/06/24/science/mitochondrial-dna-mothers.html
- This appears to be Kew UK Gov archive, add to relevant page for easy access https://valerieeliotsmith.files.wordpress.com/2015/01/natarchbn141dss.pdf
Suggestions[edit | edit source]
When a task is complete move it to the COMPLETED section at the bottom of the page
- Add Margaret Williams article about PACE criticism http://www.investinme.org/IIME-Newslet-1603-01.htm
- Pick a member of the OMF advisory board, and make sure we have a page for them giving a summary of who they are. http://me-pedia.org/wiki/Open_Medicine_Foundation
- Read Osler's Web and document key events/people/documents it refers to, linking to the book for readers to learn more.(please note the page# where she discusses the change in fingerprints, add here http://me-pedia.org/wiki/Fingerprint_change)
- Read Mary Dimmock's "Thirty Years of Disdain" and ensure MEpedia covers the key events/people/resources referred to, with citations.
- Read this summary of ME/CFS research, add details to all relevant pages http://paradigmchange.me/me-abnormalities/
Implement acronyms as a category[edit | edit source]
http://me-pedia.org/wiki/List_of_acronyms
- I don't think this is necessary? The current abbreviations page serves its function perfectly, as it is alphabetized, linked and has explanatory notes. A category seems like an unnecessary duplication. --Samsara (talk) 02:18, 3 November 2016 (PDT)
Historical articles[edit | edit source]
Add these articles:
- http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1584694/pdf/canmedaj00332-0046.pdf
- http://jama.jamanetwork.com/article.aspx?articleid=311962
- http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1277260/
- https://books.google.com/books?id=Yoi11TCZSE8C&pg=PA21&lpg=PA21&dq=Lewis+effort+syndrome+mottle&source=bl&ots=FX5vL0oafQ&sig=oGydqO_vAY5zS6A9JEGPxR6vpBI&hl=en&sa=X&ei=rG46VbzsKcWHsQSTlYCgDg&ved=0CC4Q6AEwAg#v=onepage&q=Lewis%20effort%20syndrome%20mottle&f=false
- https://books.google.com/books?id=jtcCAAAAYAAJ&pg=PA76&lpg=PA76&dq=cardiac+phase+of+the+war+neuroses&source=bl&ots=-EvPo4rQJg&sig=wbuUYp39tiPaA4sLRiTHNsAJwWM&hl=en&sa=X&ei=yLY6VbHAMuKIsQSQ84CgAg&ved=0CCoQ6AEwBA#v=onepage&q=cardiac%20phase%20of%20the%20war%20neuroses&f=false
- https://books.google.com/books?id=1AVHAQAAMAAJ&pg=PA1919&lpg=PA1919&dq=irritable+heart+of+soldiers+dacosta+1871&source=bl&ots=yeXur4uyW0&sig=8boB-L18PKPSpqVJAyk2LO9pC9w&hl=en&sa=X&ei=0oE6VZCQL-SwsAT584HQDQ&ved=0CEoQ6AEwCA#v=onepage&q=irritable%20heart%20of%20soldiers%20dacosta%201871&f=false
There are also a very large number of resources here that need to be added: http://forums.phoenixrising.me/index.php?threads/historical-me-research-literature-and-related-information.10282/
Stem cell treatments[edit | edit source]
Info such as at http://www.bbc.com/news/health-35065905 and http://www.prohealth.com/library/showarticle.cfm?libid=14735 would be interesting to have. Brettz9 (talk) 11:37, 19 January 2016 (PST)
Treatments[edit | edit source]
A great rundown of infections related to ME/CFS and potential treatments. Link can be added to "Further reading" on the List of treatments page. Information here can also be included on the appropriate pages for specific infectious agents and specific antivirals. https://sites.google.com/site/cfstestingandtreatmentroadmap/ --JenB (talk) 09:24, 11 December 2015 (PST)
Basic biochemistry[edit | edit source]
- Cross reference with CFS research to all Vitamin and Mineral pages Also choline and essential fatty acid --JenB (talk) 11:47, 10 December 2015 (PST)
Infectious disease[edit | edit source]
New study shows that EBV can infect neurons. Apparently we didn't know this before! http://www.meaction.net/2015/12/10/study-shows-epstein-barr-virus-can-infect-human-neurons/ Consider updating the Herpesvirus page with any relevant information. I think it would be really great to expand the EBV (and really all the herpesvirus pages) with information on the association of these viruses with both CFS and other diseases, especially those involving B cells and the possible infection of nervous tissue. --JenB (talk) 08:38, 16 March 2016 (PDT)
Completed[edit | edit source]
When a task is complete move it HERE
Dev Queue Completed[edit | edit source]
- Add EmbedVideo extension from https://www.mediawiki.org/wiki/Extension:EmbedVideo to allow us to embed YouTube or Vimeo clips, eg Linda Crowhurst's on Severe M.E., videos for symptoms like muscle twitches, myclonus, and advocacy clips/explanations - the MEAnalysis PACE video for instance - this would help those with photophobia
Tasks completed
- https://www.youtube.com/watch?v=S3CmUJyVBbQ&feature=youtu.be&t=3m1s added to Pregabalin and Lyrica
Completed in 2019[edit | edit source]
- Make sure this Lightning Process study is on the LP page https://www.ncbi.nlm.nih.gov/pubmed/26983138?dopt=Abstract
- Add this UK TV segment about a patient https://www.youtube.com/watch?v=I8lsRlUhRps&feature=youtu.be Where? Added to pediatric page