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New Jersey Legislation
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==Project Plan == Bills passed successfully for other diseases were studied as models during the planning phase. NJMECFSA Trustee and Librarian Elizabeth “Betty” McConnell also assembled books, articles and other helpful resources describing required steps in the legislative process. Ultimately a three-stage project plan evolved and was carried out as follows. One, Attorney and NJMECFSA member Jeffrey Pompeo drafted a CFS Bill and used his legal expertise and knowledge of the disease’s devastating impact on patients and families to see it through the legislative process.<ref>Pompeo, JW, “Chronic Fatigue Syndrome Invades the Law,” New Jersey Law Journal, July, 1995, (141 N.J.L.J. 1296)</ref><ref>Pompeo, JW, “Heal Thyself: Chronic Fatigue Syndrome—How To Lessen the Pain and Learn to Live With Its Ravaging Effects,” Health Confidential, New York, 1994 </ref> Two, NJMECFSA President Jon Sterling secured Senate and Assembly sponsors for the Bill and used his leadership skills and knowledge of the disease’s impact on the state’s estimated 17,000 patients to present expert testimony to the Health Committees. And three, Ellen McNamara applied her corporate experience to organize and direct a grassroots lobbying campaign which enabled large numbers of patients, family members, and other interested parties to contact legislators particularly Health Committee members asking them to support the CFS Bill. Hundreds of pre-printed, pre-addressed “postcards” were produced on a home computer and dot matrix printer then sent to county leaders in NJMECFSA’s statewide support group network for distribution.
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