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Nigel Speight
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[[File:Nigelspeight.jpg|right]] Doctor '''Nigel Speight''' is a semi-retired British doctor based in the North East of [[UK|England]] who specialises in [[Pediatric]] [[ME/CFS]] and has been involved in fighting many child protection cases in which children with [[ME/CFS]] were at risk of being removed from their parents. He has acted as a voluntary [[Pediatric|paediatric]] medical advisor for many [[ME/CFS]] charities. He features in the film [[Voices from the Shadows]], a documentary about severe [[ME/CFS]]. He has been outspoken about the risks to children with [[ME/CFS]] being misdiagnosed as having a psychiatric condition.<ref name="Speight2012vfs" /> ==Awards== *Jun 29, 2017 - Exceptional Paediatrician Award from [[Tymes Trust]]<ref>https://twitter.com/tymestrust/status/880836099807039488</ref> == Writing committees == ===== 2011 International Consensus Criteria ===== Speight is one of the authors of the 2011 case definition, [[International Consensus Criteria]].<ref>{{Cite journal | last = Carruthers | first = Bruce M. | authorlink = Bruce Carruthers | last2 = van de Sande | first2 = Marjorie I. | authorlink2=Marjorie van de Sande | last3 = De Meirleir | first3 = Kenny L. | authorlink3=Kenny De Meirleir | last4 = Klimas | first4 = Nancy G. | author-link4 = Nancy Klimas | last5 = Broderick | first5 = Gordon | author-link5 = Gordon Broderick | last6 = Mitchell | first6 = Terry | authorlink6 = Terry Mitchell | last7 = Staines | first7 = Donald | author-link7 = Donald Staines | last8 = Powles | first8 = A.C. Peter | author-link8 = A C Peter Powles | last9 = Speight | first9 = Nigel | authorlink9 = Nigel Speight | last10 = Vallings | first10 = Rosamund | authorlink10 = Rosamund Vallings | last11 = Bateman | first11 = Lucinda | authorlink11 = Lucinda Bateman | last12 = Baumgarten-Austrheim | first12 = Barbara | authorlink12 = Barbara Baumgarten-Austrheim | last13 = Bell | first13 = David | author-link13 = David Bell | last14 = Carlo-Stella | first14 = Nicoletta | author-link14 = Nicoletta Carlo-Stella | last15 = Chia | first15 = John | author-link15 = John Chia | last16 = Darragh | first16 = Austin | author-link16 = Austin Darragh | last17 = Jo | first17 = Daehyun | author-link17 = Daehyun Jo | last18 = Lewis | first18 = Donald | author-link18 = Donald Lewis | last19 = Light | first19 = Alan | author-link19 = Alan Light | last20 = Marshall-Gradisnik | first20 = Sonya | author-link20 = Sonya Marshall-Gradisnik | last21 = Mena | first21 = Ismael | author-link21 = Ismael Mena | last22 = Mikovits | first22 = Judy | author-link22 = Judy Mikovits | last23 = Miwa | first23 = Kunihisa | author-link23 = Kunihisa Miwa | last24 = Murovska | first24 = Modra | author-link24 = Modra Murovska | last25 = Pall | first25 = Martin | author-link25 = Martin Pall | last26 = Stevens | first26 = Staci | author-link26 = Staci Stevens | date = 2011-08-22 | title=Myalgic encephalomyelitis: International Consensus Criteria|url=https://onlinelibrary.wiley.com/doi/abs/10.1111/j.1365-2796.2011.02428.x|journal=Journal of Internal Medicine|language=en|volume=270|issue=4|pages=327–338|doi=10.1111/j.1365-2796.2011.02428.x|issn=0954-6820|pmc=3427890|pmid=21777306|via=}}</ref> =====2017 Pediatric Primer===== Dr. Speight was one of the authors of the 2017 Pediatric Primer published in ''Frontiers in Pediatrics.'' * ''Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer'' by [[Peter Rowe|Peter C. Rowe]], [[Rosemary Underhill|Rosemary A. Underhill]], [[Kenneth Friedman|Kenneth J. Friedman]], [[Alan Gurwitt]], [[Marvin Medow|Marvin S. Medow]], [[Malcolm Schwartz|Malcolm S. Schwartz]], Nigel Speight, [[Julian Stewart|Julian M. Stewart]], [[Rosamund Vallings]] and [[Katherine Rowe|Katherine S. Rowe]]<ref name="Rowe, et al, 2017" /> [http://journal.frontiersin.org/article/10.3389/fped.2017.00121/full (Full Text)] ==2016 General Medical Council complaint== In 2016 Dr. Speight was subject of a complaint to the [https://en.wikipedia.org/wiki/General_Medical_Council General Medical Council], the organisation responsible for maintaining the register of doctors licensed to practice medicine in the UK. The substance of the complaint and the identity of the person who made it were not made public. As a result of the complaint, the GMC imposed limits on Dr Speight's medical license, restricting him to working in NHS posts as a consultant general paediatrician but forbidding him to carry out any work in relation to ME/CFS, including unpaid work. The restriction holds until July 2017.<ref name="#MEAction20160423speight" /> The ME Association immediately sent a detailed letter to the GMC in support of Dr Speight, and coordinated a further, joint letter of support from ME/CFS charities, professional colleagues and parents of children with ME/CFS in the UK and abroad.<ref name="MEASSUK201604speight" /> Dr. Speight issued a public statement on the situation.<ref name="MEASSUK201604speight" /> Meanwhile, an e-card<ref name="Speight2016ecard" /> in support of Dr Speight received over 1,000 signatures and messages in less than 48 hours. The limits were overturned on appeal.<ref>[https://meassociation.org.uk/2016/10/dr-nigel-speight-some-excellent-news-from-the-general-medical-council-12-october-2016/ Dr Nigel Speight – some excellent news from the General Medical Council | 12 October 2016] ME Association</ref> ==Background== Dr. Speight was born in [[India]], where his father was a missionary doctor. Dr Speight left India when he was 10 and went to secondary school at Merchant Taylors' School, Crosby (Merseyside). He qualified in 1966 from Cambridge and University College Hospital, worked as a junior doctor in London and then taught at the new medical school in Dar es Salaam, Tanzania. When he returned to the UK four years later, he changed from Adult Medicine to Paediatrics and did his paediatric training in Newcastle. In 1982 he became a consultant and took up his post in Durham, where he worked for 25 years. He developed special interests in childhood asthma, food intolerance, child abuse and neglect, emotional and behavioural problems and ADHD. He retired in 2007 but works in locum posts for several months a year. He is married and has four children and four grandchildren. He is a keen cyclist, and has cycled in Ecuador, Cuba, Jordan, and South India, and from Land's End to John O'Groats in the UK. ==Work in ME/CFS== {{Video|id=https://www.youtube.com/watch?v=kl5EfvzsL88|service=youtube|dimensions=550|description=Dr. Nigel Speight on Paediatric ME/CFS (2014). Stockholm, Sweden.|alignment=right|urlargs=start=20&rel=0&autoplay=0}} Dr. Speight became interested in ME/CFS from around 1984, when he was consulted by a young girl in a wheelchair who announced that she had ME, which at the time, he knew nothing about. Lectures by Dr. Betty Dowsett, Alan Franklin and Dr. [[David Bell]] helped develop his interest in the topic.<ref name="23MEGRPadvisors" /> Over the next 20 years he saw over 500 cases, all over the UK, and gave numerous lectures to medical audiences around the country on the subject.<ref name="23MEGRPadvisors" /> He served on the Chief Medical Officer’s Working Party, which reported in 2002, and on the College of Paediatrics Guidelines group. He gave evidence to the Gibson Inquiry and on three occasions talked to the ME interest group at the Scottish Parliament.<ref name="23MEGRPadvisors" /> He has worked as an honorary paediatric medical adviser for several UK ME/CFS charities, including the [[ME Association]], the [[Tymes Trust]], the [[25 Percent ME Group]], [[Action for ME]], and the [[Association of Young People with ME]]. He resigned from the latter group in 2009 when their “paths diverged”.<ref name="23MEGRPadvisors" /> Writing about his work, he has said: <blockquote>“The most distressing cases I have encountered were those in which families were being subjected to Child Protection proceedings. This was usually due to the failure of the local doctors to officially diagnose ME, or for them to diagnose it but to imply it wasn’t a real, i.e., organic condition. This left the families open to alternative explanations such as neglect, emotional abuse or Munchausen Syndrome by Proxy. I was involved in more than 20 of these cases around the country and am proud to have been instrumental in reversing the proceedings in all but a small handful.”<ref name="23MEGRPadvisors" /></blockquote> ==Open Letter to ''The Lancet''== Two [[open letter to the Lancet | open letters to the editor of ''The Lancet'']] urged the editor to commission a fully independent review of the [[PACE trial]], which the journal had published in 2011. In 2016, Dr. Speight, along with 41 colleagues in the [[ME/CFS]] field, signed the second letter. *10 February 2016, [http://www.virology.ws/2016/02/10/open-letter-lancet-again/ An open letter to The Lancet, again - Virology blog] ==Talks and interviews== Dr Speight has recorded a number of video interviews: *[https://www.youtube.com/watch?v=208JacsB5kM 'Exercise and ME/CFS']: 2014 talk given at Bristol Watershed. *[https://www.youtube.com/watch?v=kl5EfvzsL88 Dr. Nigel Speight: 'Paediatric ME/CFS']: 2014 talk given at Stockholm, Sweden. The following interviews were given (in English) in 2014 with the Dutch group, Wetenschap voor Patienten ("Science for Patients"): (engels gesproken, nederlandse ondertiteling) *2014 [https://www.youtube.com/watch?v=XcRZo1vO53c 28. Interview with Dr Nigel Speight / Interview met Dr. Nigel Speight] *2014 [https://www.youtube.com/watch?v=aMBUN5nQZUc 30. Diagnostic tools for ME / Diagnostische handvatten voor ME - Dr. Nigel Speight] *2014 [https://www.youtube.com/watch?v=xJLxWOqgDoc 34. Future and hope - Toekomst en hoop - Dr. Nigel Speight] *2014 [https://www.youtube.com/watch?v=-W2BSN_Cg-g 32. ME and children - Part 1 - ME en kinderen deel 1 -Dr. Nigel Speight] *2014 [https://www.youtube.com/watch?v=1tWPzdmSKGE 33. ME and children - Part 2 - ME en kinderen deel 2 - Dr. Nigel Speight] *2014 [https://www.youtube.com/watch?v=eBCuwTy6LWM 29. What is ME and what is CFS? - Dr. Nigel Speight] *2014 [https://www.youtube.com/watch?v=XgBSZtc-NpU 31. ME/CFS and the course of the disease - Dr. Nigel Speight] *Feb 18, 2019 - Dr Nigel Speight interviewed on [[The ME Show]] by [[Gary Burgess]] on fighting for families whose parents have been accused of abuse, rather than their child's ME being diagnosed ([https://www.buzzsprout.com/172265/941924-episode-four-dr-nigel-speight Episode Link)] ==Notable articles and publications== *2021, Life-Threatening Malnutrition in Very Severe ME/CFS<ref name="Baxter2021">{{Cite journal | last = Baxter | first = Helen | last2 = Speight | first2 = Nigel | authorlink2 = Nigel Speight | last3 = Weir | first3 = William | authorlink3 = William Weir | date = 2021 | journal=Healthcare|volume=9|issue=4 | page = 459|url=https://www.mdpi.com/2227-9032/9/4/459/htm | title = Life-Threatening Malnutrition in Very Severe ME/CFS|doi=10.3390/healthcare9040459}}</ref> - [https://www.mdpi.com/2227-9032/9/4/459/htm (Full text)] *2021, ME/CFS: Past, Present and Future<ref name="Weir2021future">{{Cite journal | last = Weir | first = William | authorlink= William Weir | last2 = Speight | first2 = Nigel | authorlink2 = Nigel Speight | date = 2021 | title = ME/CFS: Past, Present and Future|journal=Healthcare|volume=9|issue=8 | page = 984|url=https://www.mdpi.com/2227-9032/9/8/984/htm|doi=10.3390/healthcare9080984}}</ref> - [https://www.mdpi.com/2227-9032/9/8/984/htm (Full text)] *2020, Severe ME in Children<ref name="SpeightSevere">{{Cite journal | last = Speight | first = Nigel | authorlink=Nigel Speight | date = 2020 | title = Severe ME in Children|journal=Healthcare|volume=8|issue=3 | page = 211|url=https://www.mdpi.com/2227-9032/8/3/211/htm |doi=10.3390/healthcare8030211 }}</ref> - [https://www.mdpi.com/2227-9032/8/3/211/htm (Full text)] ==Learn more== *[[Sick and Tired - BBC]] (TV show featuring Dr Speight) ==See also== *[[ME Association]] *[[NHS]] *[[25 Percent ME Group]] *[[Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer]] *[[Medical neglect and abuse]] *[[Fabricated Induced Illness]] (Munchausen's by Proxy ==References== <references> <ref name="23MEGRPadvisors">{{citation | author = 25% ME Group | authorlink1 = 25 Percent ME Group | title = Meet our Patrons and Advisors | access-date = 27 Apr 2016 | url = http://25megroup.org/advisors.html }}</ref> <ref name="#MEAction20160423speight">{{citation | last1 = #MEAction | authorlink1 = #MEAction | title = GMC limits Dr Speight's license | website = #MEAction | date = 23 Apr 2016 | url = http://www.meaction.net/2016/04/23/gmc-limits-dr-nigel-speights-license-charities-fight-back/ }}</ref> <ref name="MEASSUK201604speight">{{citation | last1 = ME Association (UK) | authorlink1 = ME Association | title = GMC impose conditions on Dr Nigel Speight’s licence to practice | date = 23 April 2016 | url = http://www.meassociation.org.uk/2016/04/mea-statement-on-gmc-decision-to-impose-conditions-on-dr-nigel-speights-licence-to-practice-23-april-2016/ }}</ref> <ref name="Speight2012vfs">{{citation | last1 = Speight | first1 = Nigel | authorlink1 = Nigel Speight | title = Myalgic Encephalomyelitis (ME) in Childhood | journal = Voices from the Shadows (website) | date = 2012 | url = http://voicesfromtheshadowsfilm.co.uk/nigel-speight-me-handout/ }}</ref> <ref name="Speight2016ecard">{{citation | title = e-Card to Dr. Nigel Speight | date = 27 Apr 2016 | url = http://www.groupcard.com/c/1pOfl_wAToT }}</ref> <ref name="Rowe, et al, 2017">{{Citation | last1 = Rowe | first1 = Peter C. | authorlink1 = Peter Rowe | last2 = Underhill | first2 = Rosemary A. | authorlink2 = Rosemary Underhill | last3 = Friedman | first3 = Kenneth J. | authorlink3 = Kenneth Friedman | last4 = Gurwitt | first4 = Alan | authorlink4 = Alan Gurwitt | last5 = Medow | first5 = Marvin S. | authorlink5 = Marvin Medow | last6 = Schwartz | first6 = Malcolm S. | authorlink6 = Malcolm Schwartz | last7 = Speight | first7 = Nigel | authorlink7 = Nigel Speight | last8 =Stewart | first8 = Julian M. | authorlink8 = Julian Stewart | last9 = Vallings | first9 = Rosamund | authorlink9 = Rosamund Vallings | last10 = Rowe | first10 = Katherine S. | authorlink10 = Katherine Rowe | title = Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: A Primer | journal = Frontiers in Pediatrics | volume = 5 | issue = 121 | page = | date = 2017 | pmid = | doi = 10.3389/fped.2017.00121 }}</ref> </references> [[Category:Clinicians]] [[Category:British clinicians]] [[Category:Psychological paradigm critics]] [[Category:PACE trial critics]]
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