Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Pacing
(section)
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit
Edit source
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
=== Pacing for chronic pain patients: === In 2018, Thomson et al., a research team at the University of Manchester, studied pacing in 114 ME/CFS patients using the Chronic Pain Coping Inventory (CPCI).<ref name=":15">{{Cite journal | last = Thompson | first = D. P. | last2 = Antcliff | first2 = D. | last3 = Woby | first3 = S.R. | date = Mar 2018| title = Symptoms of chronic fatigue syndrome/myalgic encephalopathy are not determined by activity pacing when measured by the chronic pain coping inventory|url=https://www.ncbi.nlm.nih.gov/pubmed/28843450|journal=Physiotherapy|volume=104|issue=1|pages=129–135|doi=10.1016/j.physio.2017.07.005|issn=1873-1465|pmid=28843450}}</ref> In 2001, Nielson et al. had added six questions to this questionnaire to assess the use of pacing.<ref>{{Cite journal | last = Nielson | first = W.R. | last2 = Jensen | first2 = M.P. | last3 = Hill | first3 = M.L. | date=Jan 2001| title = An activity pacing scale for the chronic pain coping inventory: development in a sample of patients with fibromyalgia syndrome|url=https://www.ncbi.nlm.nih.gov/pubmed/11166466|journal=Pain|volume=89|issue=2-3|pages=111–115|issn=0304-3959|pmid=11166466}}</ref> As the CPCI was designed for patients with chronic pain, the added pacing section focuses on doing things “slow and steady” and breaking up tasks into manageable pieces, instead on listening to symptom-flare ups and balancing energy expenditure. This form of pacing thus differs significantly form the version promoted by Goudsmit and Jason. Thomson et al. searched for cross-sectional associations between pacing and levels of pain, disability and fatigue, but made a remarkable choice in outcome measures. For fatigue they used the [[Chalder fatigue scale|Chalder Fatigue Scale]] with Likert score, despite detailed criticism of this method.<ref>{{Cite news | url=https://www.s4me.info/threads/s4me-submission-to-the-public-review-on-common-data-elements-for-me-cfs-problems-with-the-chalder-fatigue-questionnaire.2065/| title = S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire|work=Science for ME|access-date=2018-08-20|language=en-US}}</ref> Disability was assessed using the Fibromyalgia Impact Questionnaire (FIQ) physical impairment subscale, on the basis that ME/CFS- and fibromyalgia patients share many symptoms. Using these outcome measures, Thompson et al. found no significant associations between pacing and levels of pain, fatigue or disability. In the second part of the study, a smaller sample of 35 ME/CFS patients followed a graded exercise program. Although participants reported significant reductions in fatigue, these improvements were not explained by pacing as measured with the CPCI. According to the authors “It would therefore seem that factors other than pacing were more important determinants of improvements following treatment.”<ref name=":15" />
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs