Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Pediatric myalgic encephalomyelitis/chronic fatigue syndrome
(section)
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit
Edit source
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
== Prognosis == [[Prognosis for myalgic encephalomyelitis and chronic fatigue syndrome|Prognosis]] in adolescents is considered to be better than in adults.<ref name=":22">{{Cite web|url=https://www.cdc.gov/me-cfs/healthcare-providers/presentation-clinical-course/prognosis.html | title = Prognosis {{!}} Presentation and Clinical Course {{!}} Healthcare Providers {{!}} Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | date = 2018-07-10 | website = [[Centers for Disease Control and Prevention]]|language=en-us|access-date=2018-10-28}}</ref><ref name="Rowe2017" /> [[Fred Gill|Gill]] et al. reported that 4.5 years after an initial evaluation almost a quarter of adolescent ME/CFS patients reached “near to complete improvement”. The diagnosis in this study however was made retrospectively (by looking at old charts and test results instead of a clinician’s assessment). A Dutch team followed up on 54 adolescents with ME/CFS. After an average of 2.2 years almost half of the sample said they've had almost completely recovered. [[David Bell]] followed up on 35 ME/CFS patients who fell ill during the [[1985 Lyndonville outbreak|Lyndonville outbreak]] in the 1980s. Prognosis was favorable: 37% said they had "recovered completely" and felt "entirely well.” A further 42.9% agreed with the statement “I have never recovered completely but feel pretty well." Other studies ([[Luiza Rangel|Rangel]] et al., [[Sulheim]] et al., Rimes et al.) have reported similar high improvement/recovery rates in pediatric ME/CFS, though these studies did not use generally accepted diagnostic criteria of ME/CFS. In the Bulletin of the [[International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis|IACFS/ME]], [[Katherine Rowe]] claimed to have data for 256 young ME/CFS patients 12 years after initial evaluation. Eighty-eight percent reported recovery, though this information has not been reported in a [[Peer review|peer-review]] publication. In its 2015 report (p.183, 213), the [[National Academy of Medicine|NAM]] noted a lack of well-designed longitudinal studies on the prognosis of ME/CFS in children and adolescents. However, Dr. Bell notes that if an adolescent spent three months in bed due to ME/CFS they will still be ill at age 35 even if their symptoms were mild in their adult years. Becoming increasingly ill with activity and symptom severity is expected 15-20 years later.<ref name="BellOMF" /><blockquote>One study of young adults followed for fifteen years demonstrated clear improvement in activity, but not illness resolution<sup>8</sup>. The same group of patients continued to do relatively well for a further five to ten years and then became worse in both activity limitation and symptom severity<sup>12</sup>. It is rare for an adolescent to become completely free of the disease<sup>13</sup>.<ref name="BellOMF" /></blockquote>
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs