Portal:Myalgic Encephalomyelitis

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Myalgic Encephalomyelitis

Myalgic encephalomyelitis (ME) is a disease of the nervous system and the immune system. Its hallmark symptom is post-exertional malaise, a severe worsening of symptoms after cognitive or physical exertion. Common symptoms of ME include: cognitive dysfunction, orthostatic intolerance, and unrefreshing sleep. Many patients will also have headaches, pain, muscle weakness or muscle fatigability, sensitivities to light, sound, touch, foods, odors, and an array of other symptoms. (more...)

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Primer

Choose a Primer to learn about the disease Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

• Primer for doctors and researchers
• Primer for doctors and researchers/he
• Primer for family, friends and care providers
• Primer for journalists
• Primer for patients
• Primer for the public

Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic is a book written by Hillary Johnson, published in 1996 and reissued in 2006. Kirkus Reviews describes it as "A relentless, meticulous, and highly persuasive expose by a journalist who spent nine years investigating the medical research establishment's failure to take seriously chronic fatigue syndrome (CFS)" more...)

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Topics

• Chronic Fatigue Syndrome
• Myalgic Encephalomyelitis
• Systemic Exertion Intolerance Disease
• Canadian Consensus Criteria
• David Tuller
• Exercise
• List of news articles on ME and CFS
• List of outbreaks
• PACE trial
• Post-exertional malaise
• Primer for journalists
• Primer for family, friends and care providers
• Quotes
• Severe and very severe ME

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In the news

• AXA1125 clinical trial begins for Long COVID - Nov 2021
• Graded exercise therapy advised against in new England and Wales guidelines - Nov 2021
• Public health expert David Tuller reaches crowdfunding goal for another year's work, including ME/CFS and Long COVID - Oct 2021

• Graham McPhee, pwME and critic of the PACE trial passes away - Oct 2021
• Medical neglect and abuse‎‎ page now on MEpedia
• New group Doctors with M.E. (DwME) launches website.

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Diagnostic criteria

Learn more about the diagnosis

If you think you might have ME, read these diagnostic criteria and see how they compare with your symptoms:

• Institute of Medicine Diagnostic Criteria
• Canadian Consensus Criteria
• International Consensus Criteria

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Co-morbidities

Co-morbid diagnoses

Learn more about the diagnoses that are commonly co-morbid with and related to ME. Note: it is possible to both have ME and one of these diagnoses, or to have one of these diagnoses and not have ME.

• Fibromyalgia
• Irritable bowel syndrome
• Multiple chemical sensitivity
• Postural orthostatic tachychardia
• Temporomandibular joint disorder
• Ehlers-Danlos syndrome
• Interstitial cystitis
• Hashimoto's thyroiditis (hypothyroidism)
• Long COVID

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Find a doctor

Find a doctor

• MEAction global directory of physicians, support groups and organizations

Find support

• Join an #MEAction support, social or advocacy group
• Find a UK organization or support group
• Find a US organization or support group
• View all patient groups

Graph showing the impact of Myalgic Encephalomyelitis compared to other chronic illnesses.

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Related portals

Treatments

Immune system

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