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Primer for patients
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== Recommended reading == ====Government health organizations==== :'''US''' :[[Centers for Disease Control]] (CDC) :*[https://www.cdc.gov/me-cfs/me-cfs-children/factsheets.html ME/CFS in Children Fact Sheets] (2017) Fact Sheets for Healthcare Professionals, Parents/Guardians, Education Professionals :[[National Institutes of Health]] (NIH) :*[[Moving Toward Answers in ME/CFS - NIH Director's Blog (2017)]] :[[Institute of Medicine]] (IOM) :*[https://www.nap.edu/resource/19012/MECFS_KeyFacts.pdf Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Key Facts] From the [[Institute of Medicine report]]. (2015) :*[https://www.nap.edu/resource/19012/MECFS_ReportBrief.pdf Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Redefining an Illness] Report Brief on the Institute of Medicine report. (2015) ==== ME/CFS research foundations ==== :'''UK''' :[[Invest in ME]] :*[http://www.investinme.org/faqs.shtml Frequently Asked Questions] :'''US''' :[[Open Medicine Foundation]] (OMF) :*[http://www.openmedicinefoundation.org/what-is-mecfs/ What is ME/CFS?] ==== ME/CFS organizations ==== :'''Australia''' :[[Emerge Australia]] :*[https://www.emerge.org.au/what-is-mecfs/ What is ME/CFS?] :'''UK''' :[[ME Association]] :*[http://www.meassociation.org.uk/ ME Association] :[[Tymes Trust]] (Children and young people) :*[http://www.tymestrust.org/ Tymes Trust] :*[http://www.tymestrust.org/pdfs/mecfsseid.pdf Pediatric ME, CFS, SEID for Families and their GPs] (2016) :'''US''' :[[Massachusetts CFIDS/ME & FM Association]] :*[https://www.masscfids.org/ Massachusetts CFIDS/ME & FM Association] :[[Solve ME/CFS]] :*[https://solvecfs.org/ Solve ME/CFS Initiative] :*[https://solvecfs.org/me-cfs-long-covid/about-the-disease/ What is ME/CFS?] - Solve ME/CFS Initiative (2017) :*[http://solvecfs.org/what-is-mecfs/ Get the Facts about ME/CFS] (2016) :*[https://drive.google.com/file/d/0B6UlcglLsyp7WkgxbmdaWXVhbVU/view What, Exactly, is a Biomarker Anyway? And Why Don't We Have One for ME/CFS?] (2017) :*[http://solvecfs.org/wp-content/uploads/2013/06/SMCI_MECFS_FactSheet.pdf What is ME/CFS?] (2013) :'''International''' :[[MEAction]] :*[https://drive.google.com/file/d/1h_ZwdR4567k-mSoWahnC_id0F_fAA3Fb/view Caring for People with Myalgic Encephalomyelitis] (2018) Guide for Caretakers :*[http://www.meaction.net/wp-content/uploads/2015/10/ME-Facts-v2-1.pdf Facts about Myalgic Encephalomyelitis (ME) (Also called chronic fatigue syndrome or CFS)] (2015) :*[http://www.meaction.net/reports-and-fact-sheets/? Reports and Fact Sheets] (2015) ==== Other organizations ==== :[https://rarediseases.org/ National Organization for Rare Disorders] (NORD) :*[https://rarediseases.org/rare-diseases/myalgic-encephalomyelitis/ Myalgic Encephalomyelitis] ==== Other reading==== :*[http://thirdage.com/what-do-you-do-when-a-loved-one-becomes-chronically-ill/ What Do You Do When a Loved One Becomes Chronically Ill?] By: Suzan Jackson
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