Science for ME

Science for ME (S4ME) is a British website which states that it is "an independent, patient-led, international forum for people with ME/CFS and the carers, clinicians, scientists and advocates who support us."

S4ME reported that its forum had reached 500 members on December 17th 2017, and 2,646 members as at August 4th 2021.

Notable Forum Members

• Jonathan Edwards
• Tom Kindlon
• Simon McGrath
• Carolyn Wilshire

Researcher Interaction

• Video Q&A with Dr Sadie Whittaker from Solve ME/CFS Initiative, May 2019.
• Written Q&A with Professor Chris Ponting, June 2018.
• Science for ME video Q&A with Dr Jose Montoya, January 2018
• Q&A with team members of the UK ME/CFS biobank, December 14th 2017.

Forum Member Advocacy Projects

• Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire
• Open letter to NICE concerning the Guideline Committee for ME/CFS
• Briefing document - The PACE Trial Controversy: A Summary

Publicly Visible Forums

• Home
• ME/CFS News and Research
• Other News and Research
• Advocacy
• Symptoms
• Treatments
• Doctors and Diagnostics
• Missed, Alternative or Co-existing Diagnoses
• Living with ME/CFS

Online presence

• Website
• Twitter
• Facebook
• YouTube

PACE trial A controversial study which claimed that CBT and GET were effective in treating "CFS/ME", despite the fact that its own data did not support this conclusion. Its results and methodology were widely disputed by patients, scientists, and the peer-reviewed scientific literature.