Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Stigma and discrimination
(section)
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit
Edit source
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
==Examples of stigma and discrimination of ME/CFS == *2011, The Sun, best selling [[UK]] newspaper - [http://www.investinme.org/Article-505%20PCC%20Complaint%20Aug%202011%20I03.shtml Invest in ME Research Complaint] : By [[Rod Liddle]]: "ME, which used to be known as yuppie flu", "stigmatised as malingering mentals", "foaming paranoia" (which he claimed could be found on the [[ME Association]] website) *2011, ''The Times'' newspaper - [https://www.meassociation.org.uk/2011/08/interview-with-professor-simon-wessely-the-times-6-august-2011/ An interview with Professor Simon Wessely] [http://www.investinme.org/Article-505%20PCC%20Complaint%20Aug%202011%20I03.shtml Invest in ME Research Complaint] : By Stefanie Marsh: "Such was the vitriol and the constant ratcheting up of the threats emanating from the fringes that, ten years ago, Professor Wessely chose to give up his research." :''Untrue: This was 7 months after the [[PACE trial]] was published, which [[Simon Wessely |Wessely]] helped design the [[PACE trial]] and was a PACE trial center manager for several years, and still researchs ME/CFS'' :Professor [[Simon Wessely|Wessely]] comments "―They‘re (ME activists) not as bad as the animal liberation people ... ―But they‘re just as fanatical. It‘s constant stalking, harassment, attempts at intimidation." *2012, ''The Sun'' newspaper, [[UK]] [https://www.meassociation.org.uk/2012/01/that-nice-mr-liddle-in-todays-sun-viewspaper-26-january-2012/ ‘Pretend disabled’ really ARE sick] : By [[Rod Liddle]] started with: "My New Year’s resolution for 2012 was to become disabled. Nothing too serious, maybe just a bit of bad luck or one of those newly invented illnesses which make you a bit peaky for decades – fibromyalgia, or M.E." : [https://www.meassociation.org.uk/2012/02/the-sun-newspaper-and-their-columnist-rod-liddle-mea-complains-press-complaints-commission/ ME Association complaint], [https://www.meassociation.org.uk/2012/05/press-complaints-commission-uk-fibromyalgia-me-association-v-the-sun-2-may-2012/ Press Complaints Commission response] *2014, [[BMJ|The BMJ]] journal rapid response [https://forums.phoenixrising.me/threads/bmj-rapid-response-is-chronic-fatigue-syndrome-a-meme-18-june-2014.30944/ Is Chronic Fatigue Syndrome a meme?] : By Anthony Collings and David Newton, Essex CFS Service, UK. : [https://www.meassociation.org.uk/2014/06/shock-anger-and-concern-from-people-with-mecfs-we-write-to-the-essex-cfs-service-20-june-2014/ ME Association complaint], [https://www.meassociation.org.uk/2014/06/essex-cfs-service-apologise-for-letter-to-the-bmj-naive-of-authors-not-to-consider-wider-implications-20-june-2014/ Essex CFS Service apologises] *2015, [[MEAction| #MEAction]] - [https://www.meaction.net/2015/12/03/debunking-the-myth-of-the-militant-minority/ Debunking the myth of the militant minority] *2018, Somerset Live (UK) - [https://www.somersetlive.co.uk/news/somerset-news/bridgwater-woman-speaks-dealing-me-1543864 Bridgwater woman speaks of dealing with M.E. after GP tells her 'It’s not as if you are disabled or anything'] * 2018, [[MEAction| #MEAction]] - [https://www.meaction.net/2018/09/18/afflicted-open-letter-solidarity-petition/ Open letter demands removal of Netflix's "AFFLICTED"] :[https://docs.google.com/document/d/1DGtVMTkyzpVfXYar7oz99_xVjebkMeI6e-lYAWWAh4U/mobilebasic ME patients and other disabled people tweet their dismay at Netflix's Afflicted] : Individuals who were lied to and misrepresented by Netflix’s [[Afflicted]] include Jake, Pilar, [[Jamison Hill|Jamison]], Bekah, Jill and Janine :* 2018, Dr [[Keith Geraghty]] [https://www.twitter.com/keithgeraghty/status/968064492025405443 tweeted]: :* "I have written a paper with a colleague at Harvard on whether or not Militancy has been used by researchers to downplay the legitimate concerns of ME/CFS sufferers; {we have FOI case] - awaiting final acceptance - we tackle this important point/issue (hope to see paper out soon)"
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs