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The ME CFS Foundation South Africa
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[[File:MECFSSA.png|right|thumb|'''MECFSSA''']] '''The ME CFS Foundation South Africa''' (MECFSSA) is a national South African patient group for people with [[ME/CFS]]. ==Aims== The foundation's objectives are: #To raise awareness of ME/CFS by informing and educating the public and medical practitioners about the illness and its devastating effects on patients and their loved ones. #To get experts on the field of ME/CFS to contribute meaningfully to the education process and to diagnose those affected and provide some form of basic treatment. #To provide information of available resources when patients suspect they have ME/CFS. #To provide comprehensive support to those affected in South Africa. #To contribute to research being done globally. #To build on the work previously done by the [[ME Association of South Africa]] led by the late Arlene Vermaak.<ref>[https://www.facebook.com/pg/MECFSFoundationSA/about/ MECFSSA - Facebook page (About)]</ref><ref>[http://mecfssa.org/about-us/ MECFSSA - About Us]</ref><ref>[http://mecfssa.org/brief-summary-mecfs-mecfssa-millionsmissing/ MECFSSA - Brief Summary of ME/CFS, MECFSSA and the #MillionsMissing Campaign]</ref> ==Services== The foundation provides a website and facebook page with information and support. The MECFSSA is currently fundraising in order to raise awareness across South Africa via social media, local newspapers, information pamphlets on ME/CFS for medical practitioners, and to assist patients who can’t afford treatment.<ref name="hych">[http://mecfssa.org/how-you-can-help/ MECFSSA - How You Can Help]</ref> ==History== The ME CFS Foundation South Africa was founded by [[myalgic encephalomyelitis|ME]] patient [[Retha Viviers]] in 2016.<ref name="Ngcobo" /> The foundation participated in the 27 September [[Millions Missing]] protest virtually, raising awareness through the media and social media.<ref>11 Oct 2016, [https://cfstreatment.blogspot.co.uk/2016/10/millions-missing-day-of-protest-draws.html Millions Missing Day of Protest Draws Attention to Plight of ME/CFS Patients All Over the Globe.] ''Onward Through The Fog''.</ref><ref>[http://sandtonchronicle.co.za/165664/shoes-for-a-syndrome. Shoes for a syndrome.] ''Sandton Chronicle''.</ref> ==Funding== The ME CFS Foundation South Africa is registered as a non-profit company (registration number: 2015/394378/08). Its funding comes entirely from individual donations.<ref name="hych" /> ==Interviews and articles== *20 Feb 2017, [[Chronic Fatigue: Missing Millions (Carte Blanche DSTV)]] *27 May 2016, [http://benonicitytimes.co.za/257890/theyre-sick-not-just-tired-or-woman-home-bound-by-invisible-disease/ Woman home-bound by invisible disease.] ''Benoni City Times''.<ref>{{citation | last = van Dijk | first = Erik | date = 27 May 2016 | title = Woman home-bound by invisible disease |url= http://benonicitytimes.co.za/257890/theyre-sick-not-just-tired-or-woman-home-bound-by-invisible-disease/ |newspaper= Benoni City Times |location= South Africa |access-date= 2016-11-28}}</ref> *25 May 2016, [http://northeasterntribune.co.za/182223/foundation-seeks-help-raising-funds-for-invisible-illness/ Foundation seeks help raising funds for ‘invisible’ illness.] ''North Eastern Tribune''.<ref name="Ngcobo">{{citation | last = Ngcobo | first = Khanyisile | date = 25 May 2016 | title = Foundation seeks help raising funds for ‘invisible’ illness |url= http://northeasterntribune.co.za/182223/foundation-seeks-help-raising-funds-for-invisible-illness/ |newspaper= North Eastern Tribune |location= South Africa |access-date= 2016-11-28}}</ref> ==Online presence== *[http://mecfssa.org MECFSSA Website] *[https://www.facebook.com/MECFSFoundationSA/ MECFSSA Facebook page] *[https://twitter.com/mecfs_sa MECFSSA Twitter] *[https://www.instagram.com/mecfssa/ MECFSSA Instagram] *[https://www.youtube.com/channel/UClakqhmCILJ57bjMq5yiwuw MECFSSA YouTube channel] ==References== {{Reflist}} [[Category:Patient groups]] [[Category:South African patient groups]]
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