ME/CFS Alert

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Source: ME/CFS Alert

ME/CFS Alert is an online video production presented by Llewellyn King, a reporter and broadcaster, and Deborah Waroff, a patient advocate who lives with ME/CFS. Most episodes consist of a filmed interview with an ME/CFS researcher, clinician, or advocate. The program was started in 2011 and continues to this day with the mission to comfort the sick, educate doctors, and raise awareness in the government about ME/CFS.

Episodes[edit | edit source]

2011[edit | edit source]

Date Episode Title
Jun 17, 2011 Episode 01-1 Part 1 - Welcome to MECFS Alert
Jun 17, 2011 Episode 01-2 Part 2 - Interview with Dr. Derek Enlander
Jun 29, 2011 Episode 02 The Disease Washington Forgot
Aug 1, 2011 Episode 03 Deborah's Story, the Holmes Criterion, and the Whittemore Peterson Institute
Aug 1, 2011 Episode 04 Annette Whittemore, President of the Whittemore Peterson Institute
Aug 31, 2011 Episode 05 Dr. Vincent Lombardi and The Role of Interferons in ME
Sep 9, 2011 Episode 06 Andrea Whittemore-Goad, MECFS Patient and Patient Advocate
Sep 28, 2011 Episode 07 Dr. Robert Fredericks on Redefining Health
Oct 11, 2011 Episode 08 Dr. Leonard Jason, Pt. 1
Oct 19, 2011 Episode 09 Leonard Jason, Pt. 2
Oct 26, 2011 Episode 10 Dr. Leonard Jason, Pt. 3
Nov 11, 2011 Episode 11 Rituxan and ME
Nov 18, 2011 Episode 12 Hope in B-Cell Depletion Agents for ME Patients?
Nov 28, 2011 Episode 13 MECFS Skit
Dec 2, 2011 Episode 14 Patient Perspectives - Mary Schweitzer
Dec 10, 2011 Episode 15 Pat Fero's Story
Dec 26, 2011 Episode 16 Marie-Laure's Story

2012[edit | edit source]

Date Episode Title
Jan 24, 2012 Episode 17 Llewellyn King Asks: What Gets YOU Through the Day?
Feb 3, 2012 Episode 18 Llewellyn King Reads Your Tips and Tricks
Feb 17, 2012 Episode 19 Exclusive Interview with Tom Harkin; U.S. Congressional Hearing on Pain
Feb 27, 2012 Episode 20 Shake the Bars of Congress, NOT the NIH/CDC
Mar 6, 2012 Episode 21 Llewellyn King Reads Your Letters, Pt. 2
Mar 14, 2012 Episode 22-1 Dr. Andreas Kogelnik, Part 1
Mar 29, 2012 Episode 22-2 Interview with Dr. Andreas Kogelnik, Part 2
Apr 3, 2012 Episode 22-3 Interview with Dr. Andreas Kogelnik, Part 3
Apr 10, 2012 Episode 23-1 The Open Medicine Institute, Part 1
Apr 18, 2012 Episode 23-2 The Open Medicine Institute, Part 2
Apr 23, 2012 Episode 23-3 The Open Medicine Institute, Part 3
May 08, 2012 Episode 24 How Has YOUR Insurance Company Treated You?
May 26, 2012 Episode 25 Insurance Stories and the Lack of Money in ME
Jun 13, 2012 Episode 26 Interview with Dr. Daniel Peterson
Jun 21, 2012 Episode 27 Patient Perspectives - Lynda Haight
Jul 6, 2012 Episode 28 Patient Perspectives - Christina Wyckhouse
Jul 13, 2012 Episode 29 Patient Perspectives - Anita Patton
Jul 21, 2012 Episode 30 Gunnar Gottschalk on MECFS Research and Challenges
Jul 26, 2012 Episode 31 Dr. Konstance Knox, Chairwoman of Simmaron
Aug 6, 2012 Episode 32 Staci Stevens, Director of the Pacific Fatigue Lab
Sep 4, 2012 Episode 33 Interview with Courtney Miller
Sep 20, 2012 Episode 34 Dr. Jon Shurberg - Link Between ME and Irritable Bowel Syndrome?
Oct 7, 2012 Episode 35 Patient Perspectives - Deborah Waroff
Oct 16, 2012 Episode 36 Patient Perspectives - Joe Landson
Nov 4, 2012 Episode 37 Deborah Waroff's testimony at Oct 2012 CFSAC meeting
Dec 22, 2012 Episode 38 Interview with Dr. John Chia, Part 1

2013[edit | edit source]

Date Episode Title
Jan 11, 2013 Episode 39 Interview with Dr. John Chia, Part 2
Jan 30, 2013 Episode 40 Interview with Dr. John Chia, Part 3
Feb 17, 2013 Episode 41 Interview with Dr. John Chia, Part 4
Apr 20, 2013 Episode 42 Interview with Dr. Kenny de Meirleir
May 9, 2013 Episode 43 Interview with Dr. Kenny de Meirleir, Part 2
May 27, 2013 Episode 44 Interview with Dr. Kenny de Meirleir, Part 3
Jun 14, 2013 Episode 45 Interview with Dr. Kenny de Meirleir, Part 4
Jul 6, 2013 Episode 46 Interview with Rob Wijbenga, Chairman of ME/CFS Vereniging
Jul 15, 2013 Episode 47-1 Interview with Annette Whittemore, President of Whittemore Peterson Institute
Jul 15, 2013 Episode 47-2 Interview with Annette Whittemore, Part 2
Jul 28, 2013 Episode 48 Interview with Dr. Daniel Peterson, "Father of ME/CFS Medicine"
Jul 30, 2013 Episode 48-1 Interview with Dr. Vince Lombardi, Part 1
Aug 4, 2013 Episode 48-2 Interview with Dr. Vince Lombardi, Part 2
Aug 18, 2013 Episode 49 Interview with Gunnar Gottschalk
Aug 29, 2013 Episode 50 Interview with Dr. Daniel Peterson
Oct 22, 2013 Episode 51 Interview with Dr. Alan Pocinki, Internal Medicine Specialist
Dec 14, 2013 Episode 52 Llewellyn King On ME and the Holidays

2014[edit | edit source]

Date Episode Title
Jan 14, 2014 Episode 53 Llewellyn King on the "Moving Pawns" of ME/CFS Research
Feb 3, 2014 Episode 54 Washington Conference on ME/CFS
Feb 11, 2014 Episode 55 Interview with Dr. Andreas Kogelnik
Feb 18, 2014 Episode 56 Dr. Andreas Kogelnik on the "Real Thrust" of ME/CFS Research
Mar 12, 2014 Episode 57 Patient Perspectives - Ryan Prior and the Blue Ribbon Fellowship
Mar 23, 2014 Episode 58 Ryan Prior and the Blue Ribbon Foundation
Apr 17, 2014 Episode 59 The Need for ME's "Presence in Washington"
Apr 25, 2014 Episode 60 Interview with Dr. Anthony Komaroff, Harvard Medical School
May 22, 2014 Episode 61 Interview with Dr. Anthony Komaroff, Part 2
Jun 3, 2014 Episode 62 Dr. Anthony Komaroff, Part 3
Jun 14, 2014 Episode 63 Dr. Anthony Komaroff Offers Advice for the Department of Health
Jul 16, 2014 Episode 64 Llewellyn King Calls for the US Government to "Do Its Duty"
Aug 10, 2014 Episode 65 Dr. Jose Montoya Interviewed by Deborah Waroff
Sep 6, 2014 Episode 66 Llewellyn King, "You Are Not Alone"
Sep 18, 2014 Episode 67 Llewellyn King with Sean O'Neill - Lobbying
Oct 8, 2014 Episode 68 Jarred Younger Interviewed by Deborah Waroff
Oct 14, 2014 Episode 69-1 Carol Head interviewed by Llewellyn King
Nov 3, 2014 Episode 69-2 Carol Head interviewed by Llewellyn King, Part 2
Nov 13, 2014 Episode 70 Interview with Dr. Suzanne Vernon
Nov 21, 2014 Episode 71 Deborah Waroff Speaks Out
Dec 14, 2014 Episode 72 Llewellyn King: "Misery Doubles Down"

2015[edit | edit source]

Date Episode Title
Mar 16, 2015 Episode 73 Interview with Dr. Mady Hornig (Part 1)
May 10, 2015 Episode 74 Interview with Dr. Mady Hornig (Part 2)
May 15, 2015 Episode 75 Read For M.E.
Sep 10, 2015 Episode 76 The Search for a M.E. Champion Continues

2016[edit | edit source]

Date Episode Title
Mar 9, 2016 Episode 77 Interview with Dr. Derek Enlander
Apr 14, 2016 Episode 78 Interview with Mary Dimmock
May 8, 2016 Episode 79 Interview with Linda Tannenbaum
May 25, 2016 Episode 80 Call for a ME/CFS organization to be centered in Washington, DC for lobbying, pastoral care, national physician referral, and other needs
Aug 11, 2016 Episode 81 Tom Kuhn and the Importance of Advocacy Organization
Oct 9, 2016 Episode 82 Interview with Erica Verrillo
Oct 17, 2016 Episode 83 Lighting Up a Hidden World by Valerie Free
Dec 2, 2016 Episode 84 Dr Nancy Klimas on ME/CFS Research, Treatment
Nov 18, 2016 Episode 85 Dr Anthony Komaroff on ME/CFS Treatment and Research
Dec 23, 2016 Bonus Episode A Holiday Message from MECFS Alert 2017

2017[edit | edit source]

Date Episode Title
Mar 29, 2017 Episode 86 The work of the Massachusetts CFIDS/ME & FM Association with Charmian Proskauer
Apr 12, 2017 Episode 87 ME/CFS Diagnosis, children with ME, the medical community with Alan Gurwitt, M.D.
May 3, 2017 Episode 89 2017 ME/CFS Advocacy Week, Florence Nightingale
Jun 1, 2017 Episode 90 Libby's experience with ME
Jun 26, 2017 Episode 91 Release of the Pediatric ME/CFS Primer
Aug 8, 2017 Episode 92 Mold, Mildew, and Illness, Dr Lisa Lavine Nagy
Aug 18, 2017 Episode 93 Tom Camenzind's Story
Oct 20, 2017 Episode 95 Interview with Dr. W. Ian Lipkin
Oct 20, 2017 Episode 94 Chronic Fatigue Syndrome: a disease hidden in plain sight, Dr. Walter Koroshetz and Dr. Zaher Nahle
Dec 2, 2017 Episode 95 Interview with Dr. W. Ian Lipkin
Dec 22, 2017 Episode 96 A Holiday Message 2017

2018[edit | edit source]

Date Episode Title
Mar 30, 2018 Episode 97 ME/CFS Research with Michael VanElzakker, Vagus Nerve, triggers
Jul 2, 2018 Episode 98 Advancements in ME/CFS Research, David M. Systrom, MD; Brigham and Women's Hospital
Aug 26, 2018 Episode 99 Living with ME/CFS: Robie's Story
Sep 13, 2018 Episode 100 Disability and Social Security with ME/CFS, Interview with Robert Robitaille
Sep 25, 2018 Episode 101 Dr. Susan Levine Interview
Nov 15, 2018 Episode 102 David Tuller Interview

2019[edit | edit source]

Date Episode Title
Jan 14, 2019 Episode 103 Inflammation, Neural Function and ME/CFS Ronald G. Tompkins, M.D., Sc.D.
Feb 26, 2019 Episode 104 Is it ME? One man's struggle to find a diagnosis
Apr 1, 2019 Episode 105 Lake Tahoe Interview with Erik Johnson
Apr 12, 2019 Episode 106 Interview with Sadie Whittaker, Chief Scientific Officer, Solve ME/CFS Initiative
May 17, 2019 Episode 107 Interview with Colleen Steckel, MEadvocacy.org
Jul 27, 2019 Episode 108 MECFS Research at NIH with Vicky Whittemore, PhD
Sep 14, 2019 Episode 109 Finding an ME/CFS Biomarker, Ronald Davis, Stanford University