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Maeve Boothby-O'Neill
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== Illness == [[medical neglect and abuse|Medical neglect]] was a major contributing factor in her death: Boothby O'Neill became too unwell to consume enough calories and became progressively malnourished and dehydrated, but NHS hospital doctors refused to weigh the risk of death with the risks from tube feeding.<ref name="Somerset-2022-hearbreak" /> After eventually inserting a [[Feeding tube|NG tube]], medical staff then insisted on attempting to feed her triple what she had previously been taking orally, compounding post-exertional malaise that then prevented all forms of activity, including taking any nourishment or speech.<ref name=":0">{{Cite web|url=https://mecfs-med-ed.org/2023/05/31/a-life-cut-short-by-medical-neglect-interview-with-sarah-boothby-whose-daughter-maeve-died-at-27-of-severe-me-cfs/|title=A life cut short by medical neglect: interview with Sarah Boothby, whose daughter Maeve died at 27 of severe ME/CFS|last=Johnstone|first=Katie|date=2023-05-31|website=ME/CFS Medical Education Campaign|language=en-GB|access-date=2023-08-13}}</ref><ref>{{Cite web|url=https://www.codastory.com/waronscience/chronic-fatigue-syndrome-long-covid-unexplained-symptoms/|title=When the doctor doesnโt listen|last=Tuller|first=David|authorlink=David Tuller|date=2023-01-27|website=Coda Story|language=en-US|access-date=2023-08-13}}</ref> The hospital had already refused to consider alternative types of feeding tube such as a [[Feeding_tube#Total_parenteral_nutrition|TPN]], continuing to wrongly believe blood tests which showed she was physically fit and therefore capable of spontaneous recovery.<ref name=":0" /> NHS hospital doctors were blind to her physical illness, ignoring her inability to move, chew, or swallow more than 15ml at a sip. An inquest was opened immediately by Exeter and Devon Coroners. At a pre inquest hearing in November 2023 it emerged that the NHS has no policy and no facilities for treating severe (housebound) or very severe (bedbound) patients anywhere in the United Kingdom. The inquest continues to gather evidence. Two full weeks of daily hearings are expected from 22 July 2024, with approximately 3 witnesses each day. The public are welcome to attend. A video link may be requested from the Devon Coroners office.
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