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Donna Pearson
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{{NeedsImage}} '''Donna M. Pearson''' is a patient advocate from Holland, Massachusetts. She became ill with [[myalgic encephalomyelitis]] ([[myalgic encephalomyelitis|ME]]) in 2003 following a flu, that in her words, "was far worse than anything I had ever experienced." Prior to becoming ill she worked as the Vice President for a real estate syndication firm, established her own management company, raised a family, and led a full and active life.<ref>http://www.hhs.gov/advcomcfs/meetings/presentations/pearson_donna_100312.pdf</ref> ==Massachusetts CFIDS/ME & FM Association== Pearson is an officer of the [[Massachusetts CFIDS/ME & FM Association]], a large and respected patient advocacy group.<ref>https://www.masscfids.org/newsletters/542-2014-06-june-summer-has-finally-come-to-new-england</ref> ==Chronic Fatigue Syndrome Advisory Committee== Pearson serves as a voting member of the [[HHS]]'s [[Chronic Fatigue Syndrome Advisory Committee]] ([[CFSAC]]) for the term: 06/16/14 to 06/16/18 and chairs the [[IOM]]/[[P2P]] Working Group for [[CFSAC]].<ref>http://www.hhs.gov/advcomcfs/meetings/agendas/cfsac20160517-agenda.html</ref> ==Questions to NIH during Advocacy Call== *2 Nov 2016, [https://www.nih.gov/nih-me/cfs-advocacy-call-0 NIH ME/CFS Advocacy Call - (Recorded call and Transcript)] with Dr. Walter Koroshetz, Dr. [[Vicky Whittemore]], Dr. Joseph Breen, and Dr. [[Avindra Nath]] - During the question and answer session, Pearson challenges Dr. Koroshetz's statements that the illness needed champions. She stated that we do have champions. And theyโve been working for years and that we needed the [[NIH]] to become our champion.<ref>https://www.nih.gov/nih-me/cfs-advocacy-call-0</ref> ==Talks and interviews== *[http://www.hhs.gov/advcomcfs/meetings/presentations/pearson_donna_100312.pdf Testimony during the [[CFSAC]] Meeting] ==References== {{Reflist}} [[Category:People with ME, CFS, and/or FMS]] [[Category:Advocates or allies]][[Category:American advocates or allies]][[Category:CFSAC members]]
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