Osler's Web: Inside the Labyrinth of the Chronic Fatigue Syndrome Epidemic is a book written by Hillary Johnson, published in 1996 and reissued in 2006. Kirkus Reviews describes it as "A relentless, meticulous, and highly persuasive expose by a journalist who spent nine years investigating the medical research establishment's failure to take seriously chronic fatigue syndrome (CFS)".
Publisher's synopsis[edit | edit source]
(This synopsis was provided by the publisher for promotional purposes. For book reviews, please see Links section below.)
For more than a decade a devastating disease has been allowed to spread through our country—unchecked, insufficiently researched, and all but ignored, if not denied, by the medical establishment. In many circles this disease, still known as Yuppie Flu, is dismissed as a psychological aberration. For the nearly two million people who have endured its traumatic and very real debilitating physical effects, however, Chronic Fatigue Syndrome is no joke.
Journalist Hillary Johnson delivers a shocking indictment of the medical bureaucracy's unwillingness to protect the public from a disease that attacks 300 out of every 100,000 Americans (fifteen times the rate of the polio epidemic at its height). She explodes every myth about CFS, revealing that its victims represent all income levels and backgrounds, that it may be spread through casual contact, and that fewer than one-fifth of CFS sufferers ever fully recover. Combining heartbreaking stories of the irreversible effects this disease has had on its victims' lives with profiles of the scientists who have dedicated themselves to finding the cause and a cure, this dramatic chronology of a frightening new epidemic offers riveting, indisputable evidence that CFS presents a very real threat and is among the most severe of all diseases known to man.
Media coverage[edit | edit source]
- 1996, Osler's Web is included in the 1996 TV segment Sick and Tired - Incline Village Outbreak.
- 1996, A Chronic Fatigue Cover-Up? (21 April 1996)
Reviews[edit | edit source]
Links[edit | edit source]
See also[edit | edit source]
- 1986 Fake CDC letter
- Thirty Years of Disdain is a paper written by Mary Dimmock that documents the history of the disease since Osler's Web was published.
References[edit | edit source]
chronic fatigue syndrome (CFS) - A controversial term, invented by the U.S. Centers for Disease Control, that generally refers to a collection of symptoms as “fatigue”. There have been multiple attempts to come up with a set of diagnostic criteria to define this term, but few of those diagnostic criteria are currently in use. Previous attempts to define this term include the Fukuda criteria and the Oxford criteria. Some view the term as a useful diagnostic category for people with long-term fatigue of unexplained origin. Others view the term as a derogatory term borne out of animus towards patients. Some view the term as a synonym of myalgic encephalomyelitis, while others view myalgic encephalomyelitis as a distinct disease.