Contents

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Primers

Choose a Primer to learn about the disease Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.


The disease

Infectious agents: Aerobic bacteria, Babesia, Bacterial infection, Bartonella, Borrelia burgdorferi, Brucella, Candida albicans, Chlamydophila pneumoniae, Clostridium difficile, Coxiella burnetii, Coxsackie A virus, Coxsackie B virus, Coxsackie virus, Cyanobacteria, Cytomegalovirus, Echovirus, Enterovirus, Enterovirus B, Epstein-Barr virus, Escherichia coli, Fungal infection, Giardia lamblia, Herpes simplex virus, Herpesviruses, Human herpesvirus 6, Human herpesvirus 7, Human T-lymphotropic virus, Infection, Influenza A virus subtype H1N1, Mycoplasma, Parvovirus B19, Pathogen, Persistent infection, Picornavirus, Poliovirus, Ross River virus, Staphylococcus, Staphylococcus aureus, Staphylococcus xilosus, Streptococcus, Varicella zoster virus, Xenotropic murine leukemia virus-related virus, Category:Bacteria, Category:Enteroviruses, Category:Fungal infections, Category:Funguses, Category:Parasites, Category:Viruses


Triggers and risk factors: Arsenic, Bacterial disease onset, Bacterial infection, Blood donation, Borna disease virus, Brucellosis, Candidiasis, Chickenpox, Chlamydophila pneumoniae, Chronic epipharyngitis, Coxiella burnetii, Coxsackie A virus, Coxsackie B virus, Coxsackie virus, Cytomegalovirus, Ebola virus disease, Echovirus, Enterovirus, Enterovirus B, Epstein-Barr virus, Female predominant diseases, Flu-like illness, Fungal disease onset, Genetics of chronic fatigue syndrome, Giardia lamblia, Gluten, Hepatitis C, Herpes simplex virus, Herpesviruses, Human herpesvirus 6, Human herpesvirus 7, Human T-lymphotropic virus, Infection, Infectious disease, Influenza, Influenza A virus subtype H1N1, Ionizing radiation, Meningitis, Menstrual cycle, Mercury, Mold, Mononucleosis, Mycoplasma, Non-cytolytic enterovirus, Organophosphate, Parvovirus B19, Pathogen, Pediatric myalgic encephalomyelitis/chronic fatigue syndrome, Pesticide exposure link to ME/CFS, Picornavirus, Poliovirus, Pregnancy, Q fever, Ross River virus, Sinusitis, Stress, Trauma, Tung oil, Vaccine, Varicella zoster virus, Viral infection, Viral onset hypothesis, Category:Bacterial diseases, Category:Enteroviruses, Category:Infectious agents, Category:Parasites, Category:Viruses


Signs and symptoms: Abdominal pain, Alcohol intolerance, Allodynia, Anorexia and eating disorders, Anxiety, Aphasia, Arrhythmia, Arthralgia, Ataxia, Attention deficit, Auditory sequencing problems, Aural problems, Balance problems, Basilar invagination, Blackouts, Body temperature, Bradycardia, Brain fog, Cardiac problems in ME/CFS, Carpal tunnel syndrome, Changes in taste, Chemical sensitivities, Chest pain, Chronic fatigue, Chronic pain, Chronotropic incompetence, Cognitive dysfunction, Cold hands and feet, Common symptoms in ME/CFS, Confusion, Constipation, Cough, Depression, Development of new sensitivities, Diarrhea, Difficulty comprehending social cues, Difficulty thinking, Digestive problems, Dizziness, Dry eye syndrome, Dry mouth, Dysbiosis, Dyscalculia, Dyslexia, Dysmenorrhea, Dysphagia, Dysphasia, Dyspnea, Ear pain, Emotional dysfunction, Encephalitis, Excessive irritability, Excessive sweating, Executive function problems, Eye pain, Fatigue, Fever, Fingerprint change, Floaters, Flu-like symptoms, Food sensitivities, Gas, Hair loss, Headache, Heart palpitation, Heart rate variability, Heartburn, Hot flushes, Hyperalgesia, Hypersensitivity, Hypersomnia, Hyperthermia, Hypokalemic periodic paralysis, Hypotension, Inflammation, Insomnia, Intestinal permeability, Irritable bowel syndrome, Joint hypermobility, List of abnormal findings in chronic fatigue syndrome and myalgic encephalomyelitis, Low blood volume, Low motivation, Low-grade fever, Malaise, Medicine sensitivities, Memory problems, Migraine, Mood swings, Multi-tasking problems, Muscle fasciculations, Muscle fatigability, Muscular problems, Myalgia, Myoclonus, Nausea, Neck pain, Neuralgia, Neurally mediated hypotension, Non-celiac gluten sensitivity, Nonepileptic seizure, Nonexudative pharyngitis, Numbness, Odor sensitivities, Oral problems, Orientation in space problems, Orthostatic hypotension, Orthostatic intolerance, Pain, Pallor, Panic attack, Paralysis, Paresis, Paresthesia, Periodic paralysis, Personality change, Photophobia, Planning problems, Post-exertional malaise, Postural hypotension, Postural orthostatic tachycardia syndrome, Premenstrual syndrome, Rare and uncommon symptoms, Rash, Receptive language problems, Scotomata, Seizure, Short QT interval, Sinusitis, Sleep dysfunction, Slowed thought, Small heart syndrome, Small intestinal bacterial overgrowth, Somnolence, Sore throat, Spatial disorientation, Speech difficulties, Swollen lymph nodes, Tachycardia, Telomere shortening, Temporomandibular joint disorder, Tinnitus, Unrefreshing sleep, Urinary frequency, Urticaria, Visual dysfunction, Vomiting, Weather sensitivity, Weight gain, Weight loss, Word-finding problems, Category:Allergy, Category:Aural signs and symptoms, Category:Cardiac signs and symptoms, Category:Cognitive signs and symptoms, Category:Digestive signs and symptoms, Category:Endocrine signs and symptoms, Category:Food intolerances, Category:Genitourinary signs and symptoms, Category:Immune signs and symptoms, Category:Muscular signs and symptoms, Category:Neurological signs and symptoms, Category:Ocular signs and symptoms, Category:Oral signs and symptoms, Category:Pain signs and symptoms, Category:Psychological signs and symptoms, Category:Pulmonary signs and symptoms, Category:Sensitivity signs and symptoms, Category:Sleep signs and symptoms


Medical hypotheses: Acquired immune and mitochondrial dysfunction hypothesis, Amygdala hypothesis, Autoimmune encephalitis, Autoimmune hypothesis, Bacterial disease onset, Biopsychosocial model, Cell danger response hypothesis, Central sensitization, Channelopathy hypothesis, Chronic fatigue syndrome in animals, Co-conditioning theory, Dauer, Deconditioning, Enteroviral infection hypothesis, Glass ceiling effect, Hit and run hypothesis, Hygiene hypothesis, Hypercoagulation hypothesis, Illness beliefs, Immune exhaustion hypothesis, Infectious disease hypotheses, Intracellular immune deregulations, Ken Lassesen's model, Kindling hypothesis, Metabolic trap, Methylation cycle hypothesis, Microbiome hypothesis, Mold hypothesis, Neuroimmune model, Nitric oxide hypothesis, Omega 3 fatty acid hypothesis, Patricia Kane protocol, Persistent infection hypothesis, Personality traits and patient attitudes in ME/CFS, RCCX Genetic Module Theory, The 3Ps model, The Danger Model, The spread of EBV to ectopic lymphoid aggregates may be the final common pathway in the pathogenesis of ME/CFS, Vagus nerve infection hypothesis, Viral onset hypothesis


Body systems: Adaptive immune system, Adrenal gland, Autoantibody, B cell, Blood, Cardiovascular system, Central nervous system, Central sensitization, Chemokine, Cytokine, Dorsal root ganglia, Electrolyte, Encephalitis, Endocrine system, Fibrin, Gastric acid, Gastrointestinal system, Glial cell, Glutamate excitotoxicity, Gut-brain axis, Hippocampus, Hypothalamic-pituitary-adrenal axis, Hypothalamic-pituitary-gonadal axis, Immune system, Inflammation, Innate immune system, Interferon, Interleukin 1, Interleukin 10, Interleukin 16, Interleukin 17, Interleukin 18, Interleukin 2, Interleukin 4, Interleukin 6, Interleukin 7, Interleukin 7 receptor, Interleukin 8, Intestinal permeability, Ion transportation, Leaky brain, Leucocyte, Lymphocyte, Lymphotoxin-alpha, Macrophage, Microbiome, Microgenderome, Microglia, Mucosal immune system, Muscle, Musculoskeletal system, Natural killer cell, Natural killer T cell, Nervous system, Neurogenesis, Neuroinflammation, Neutrophil, Occipital cortex, Olfactory bulb, Parasympathetic nervous system, Red blood cell, Regulatory T cell, Ribonuclease L, RNA, Skeletal muscle, Spinal cord, Sympathetic nervous system, T cell, T helper cell, Thrombosis, Thymus, Thyroid gland, TNF-alpha, Vagus nerve, Vitamin D receptor, Zonulin, Category:Anatomy, Category:Blood components, Category:Cardiology, Category:Digestive system, Category:Endocrine system, Category:Energy system, Category:Immunology, Category:Neurology, Category:Reproductive system


Tests: Ancestry DNA, Autopsy in Myalgic Encephalomyelitis, Bell CFIDS disability scale, CDC 2005 Symptom Inventory for CFS, Diagnostic biomarker, Euroqol 5D, Exercise, Fatigue Severity Scale, Grabb-Oakes measurement, Hospital Anxiety and Depression Scale, Infectious disease testing, Lactulose breath test, List of tests for diagnosis and treatment, MTHFR and other methylation mutations, National Centre for Neuroimmunology and Emerging Diseases, PROMIS F-SF, Short Form 36-Item Health Survey, Category:Laboratory test equipment, Category:Medical tests, Category:Symptom scales


Citizen science: 23andMe, American Gut Project, Ancestry DNA, CH3Nutrigenomics, Genetic Genie, Know Your Genetics, LiveWello, Mendus, MTHFR.net, Simon McGrath, Phoenix Rising, UBiome, WellnessFX


Biochemistry and cell biology: Adenosine diphosphate, Adenosine monophosphate deaminase, Adenosine triphosphate, Adrenergic receptor, AMP-activated protein kinase, Ankyrin Repeat And Death Domain Containing 1B, Antioxidant, Armadillo Like Helical Domain Containing 4, ATP-Dependent RNA Helicase DDX51, B vitamin, Beta-oxidation, Carbohydrate, Carnitine, Cell danger response hypothesis, Cell membrane, Cell signaling, Cellular respiration, Channelopathy, Choline, Citric acid cycle, Cobalamin, Coenzyme Q10, Collagen, Connective tissue growth factor, Creatine, Creatine kinase, Cytochrome P450 2D6, D-lactic acid, Docosanoid, Elastin, Electrolyte, Endocannabinoid, Fibroblast, Gene expression, Glucocorticoid, Glucose, Glutathione, Glycolysis, Histamine, Hydroxyproline, Hypothalamic-pituitary-gonadal axis, Interleukin, Ion transportation, Kynurenine, Lipid raft, Mast cell, Matrix metalloproteinase, Methylation cycle, Mineral, Mitochondria, Muscarinic acetylcholine receptor, Neurotransmitter, Nicotinamide adenine dinucleotide, Nitric oxide, Oxidative phosphorylation, Oxygen, Peripheral blood mononuclear cell, Peroxisome, Peroxynitrite, Phenylalanine, Phosphatidylcholine, Phospholipid, Plasma, Procollagen-proline dioxygenase, Proline-rich transmembrane protein 4, Red blood cell, Resolvin, Serine Protease 56, Single nucleotide polymorphism, Sodium–hydrogen antiporter 1, Stomatocyte, Tetrahydrobiopterin, Transient receptor potential, Tryptase, Tryptophan, Tyrosine, Vascular endothelial growth factor, Category:Amino acids, Category:Blood components, Category:Chemical elements, Category:Coenzymes, Category:Cofactors, Category:Corticosteroids, Category:Cytokines, Category:Eicosanoids, Category:Electrolytes, Category:Enzymes, Category:Glycolipids, Category:Hormones, Category:Lipids, Category:Methylation, Category:Minerals, Category:Neurotransmitters and hormones, Category:Organelles, Category:Peptides, Category:Proteins, Category:Sugars


Nutrients: B vitamin, Bile salt, Biotin, Calcium, Carnitine, Choline, Chromium, Cobalamin, Coenzyme Q10, Copper, Creatine, Deadlock quartet, Dr Lapp’s supplement recommendations, Electrolyte, Fluoride, Folate, Iodine, Magnesium, Malic acid, Manganese, Mineral, Molybdenum, Niacin, Pantothenic Acid, Phosphorus, Potassium, Pyridoxal-5'-phosphate, Riboflavin, Sam-e, Selenium, Sodium, Thiamine, Trimethylglycine, Vitamin A, Vitamin C, Vitamin D, Vitamin E, Vitamin K, Zinc, Category:Electrolytes, Category:Minerals, Category:Vitamins


Neurotransmitters and hormones: 5-androstenediol, Acetylcholine, Adenocorticotropic hormone, Alpha-Melanocyte-stimulating hormone, Calcidiol, Calicitriol, Catecholamine, Cortisol, Dopamine, Endorphin, Epinephrine, Estradiol, Estrogen, Glucocorticoid, Glutamate, Histamine, Hormone, Human growth hormone, Hydrocortisone, Leptin, Melanocyte-stimulating hormone, Melatonin, Neurotransmitter, Norepinephrine, Oxytocin, Progesterone, Prolactin, Prostaglandin, Serotonin, Testosterone, Thyroid hormones, Thyroid-stimulating hormone, Thyroxine, Triiodothyronine, Vasopressin, Category:Corticosteroids, Category:Hormones, Category:Neurotransmitters


Hormones: Adenocorticotropic hormone, Corticosteroid, Cortisol, Dehydroepiandrosterone, Endorphin, Epinephrine, Estradiol, Estrogen, Hormone, Human growth hormone, Hydrocortisone, Leptin, Melatonin, Progesterone, Testosterone, Thyroid hormones, Thyroid-stimulating hormone, Category:Androgens, Category:Estrogens, Category:Sex hormones


Neurotransmitters: Dopamine, Epinephrine, GABA, Norepinephrine, Serotonin


Blood donation

Disease names and definitions


Research

Researchers


Research initiatives


Studies, biobanks, registries, mailing lists

Potential treatments

Disclaimer: The following is a range of some of the interventions (including anecdotal) that have been used by patients to try to treat both individual symptoms and the disease as a whole, some of which have been researched and many which have not. The vast majority lack ANY reliable evidence of efficacy. Many carry significant side-effects and risks. This content is provided for information ONLY. MEpedia is not to be used to diagnose or treat any illness. Patients must consult a clinician before embarking on treatment.

Pharmaceuticals

Antifungal drugs: Antimycotics, Fluconazole, Itraconazole


Other drug treatments: Chelation, Cyclophosphamide, Prednisone, Trazodone, Tramadol

B-cell depletion: Rituximab

Anti-inflammatories: Aspirin, Celecoxib, COX-2 inhibitors, Diclofenac, Ibuprofen, Low dose naltrexone, Mefenamic acid, Meloxicam, Nabumetone, Naproxen, Nonsteroidal anti-inflammatory drug, Prednisone, Rofecoxib, Sulfasalazine


Immunomodulators: Ampligen, Cyclophosphamide, Imunovir, Interferon, Intravenous immunoglobulin, Marketing History of Ampligen, Nexavir, Rituximab, Staphylococcus vaccine, Category:Immunostimulants


Immunostimulants: Imunovir


Antivirals: Aciclovir, Ampligen, Antiviral, Famciclovir, Gancyclovir, Marketing History of Ampligen, Oseltamivir, Pleconaril, Raltegravir, Ribavirin, Umifenovir, Valaciclovir, Valganciclovir, Viread, Category:Antiretrovirals


Pain relief (analgesics): Acetaminophen, Aloe vera, Analgesics, Aspirin, Celecoxib, Codeine, COX-2 inhibitors, Cymbalta, Diclofenac, Gabapentin, Ibuprofen, Mefenamic acid, Meloxicam, Morphine, Nabumetone, Naproxen, Nonsteroidal anti-inflammatory drug, Opioids, Pregabalin, Rofecoxib, Tramadol, Category:Anti-inflammatories, Category:Opioids


Herbs, supplements and nutraceuticals

Supplements: 5-Hydroxytryptophan, Active Hexose Correlated Compound, Adaptogens, Adenosyl-methionine, Arginine, Ashwagandha, Astragalus membranaceus, B vitamin, Bile salt, Biotin, Black tea, Blueberries, Boron, Caffeine, Calcium, Capsaicin, Carnitine, Chamomile, Choline, Citrulline, Cobalamin, Coenzyme Q10, Colostrum, Creatine, Curcumin, D-Ribose, Dehydroepiandrosterone, Diamine oxidase, Docosahexaenoic acid, Dr Lapp’s supplement recommendations, Echinacea, Eicosapentaenoic acid, Electrolyte, Eleuthero, Essential fatty acid, Evening primrose oil, Fish oil, FlaviNOx, Flavonoids, Folate, GcMAF, Ginseng, Glutamine, Glutathione, Green tea, Hydrochloric acid, Iron, Licorice, Lomatium, Lysine, Magnesium, Magnesium malate, Malic acid, Manganese, Mangosteen, Melatonin, MitoQ, Mushrooms, Mutaflor, N-acetylcysteine, Nexavir, Nicotinamide, Nicotinamide adenine dinucleotide, NT Factor, Omega 3 fatty acid, Omega 6 fatty acid, Oxymatrine, Pantothenic Acid, Potassium, PrescriptAssist, Probiotic, Pyridoxal-5'-phosphate, Quercetin, Resveratrol, Rhodiola rosea, Riboflavin, Selenium, Sophora flavescens, St. John’s Wort, Superoxide dismutase, Symbioflor-2, Taurine, Thiamine, Traditional medicine, Transfer factors, Tulsi, Turmeric, Uva ursi, Valerian, Vitamin, Vitamin A, Vitamin C, Vitamin D, Vitamin E, Vitamin K, Vitex trifolia, Whey products, Zinc, Category:B vitamins, Category:Electrolytes, Category:Fatty acids, Category:Herbs, Category:Minerals, Category:Vitamins


Supplement articles to be created: Vegan/non-whey Protein Powders with Amino Acid Complex, Greens powders

Supplement sources: Pure Formulas, Be Well By Dr Frank Lipman, Seeking Health, MITOQ, Aloha, ProHealth, Thrive Marketplace, HolisticHeal, Vitacost.com

Herbs: Adaptogens, Ashwagandha, Astragalus membranaceus, Ayurvedic medicine, Black tea, Blueberries, Caffeine, Capsaicin, Chamomile, Curcumin, Echinacea, Eleuthero, Equilibrant, Garlic, Ginger, Ginseng, Green tea, Kampo, Kava, Licorice, Lomatium, Medical marijuana, Oregano, Oroxylin A, Oxymatrine, Protandim, Resveratrol, Rhodiola rosea, Schisandra chinensis, Silymarin, Sophora flavescens, St. John’s Wort, Traditional medicine, Tulsi, Turmeric, Uva ursi, Valerian, Vitex trifolia


Alternative interventions

Diets: Autoimmune protocol diet, Black tea, Caffeine, Caloric restriction, Candida diet, Curcumin, Elemental diet, Fasting, Flavonoids, GAPS diet, Intermittent fasting, Ketogenic diet, Leaky gut diet, Low FODMAP diet, Low histamine diet, Omega 3 fatty acid, Paleo diet, Resveratrol, RPAH elimination diet, RPAH Elimination Diet, Specific carbohydrate diet, Traditional medicine, Vegan diet, Vegetarian diet, Whole foods plant-based diet


Medicinal foods: Blueberries, Cocoa, Coffee, Emodin, Garlic, Ginger, Ginseng, Licorice, Mangosteen, Mushrooms, Oregano


Probiotic treatments: Clostridium butyricum, Fecal matter transplant, Helminthic therapy, Miyarisan, Mutaflor, PrescriptAssist, Probiotic


Environmental treatments: Altitude, Cryotherapy, Electromagnetic avoidance, Hyperbaric oxygen therapy, Hypoxia, Mold avoidance


Management strategies: Activity management based on 2-day cardiopulmonary exercise testing results, Bed rest, Energy Envelope Theory, User talk:Kmdenmark/EET, Pacing, Pacing with a heart rate monitor, Spoon theory


Uncategorized interventions: Traditional Chinese medicine, Exercise, Vagus nerve stimulation, Exercise based on 2-day CPET

Potential treatments: 5-Hydroxytryptophan, A Regime for Antiretroviral Treatment of Myalgic Encephalomyelitis, Acceptance and commitment therapy, Acetaminophen, Acetylcholinesterase, Aciclovir, Actifolate, Active Hexose Correlated Compound, Activity management based on 2-day cardiopulmonary exercise testing results, Acupuncture, Adaptogens, Adderall, Adenosyl-methionine, Aloe vera, Altitude, Amitriptyline, Ampligen, Analgesics, Antibiotic, Anticonvulsants, Antimycotics, Antioxidant, Antiviral, Artesunate, Ashwagandha, Aspirin, Astragalus membranaceus, Ayurvedic medicine, Azadirachta indica, B vitamin, Bed rest, Bifidobacteria, Bifidobacterium infantis, Biotin, Black tea, Blueberries, Boron, Brain training, Butyrate, Caffeine, Calcium, Caloric restriction, Candida diet, Cannabinoid, Capsaicin, Carnitine, Celecoxib, Chamomile, Chelation, Cholestyramine, Choline, Cinnarazine, Cistus Incanus, Clomipramine, Clonazepam, Cobalamin, Cocoa, Codeine, Coenzyme Q10, Coffee, Cognitive behavioral therapy, Colostrum, Copaxone, Corticosteroid, COX-2 inhibitors, Creatine, Cromolyn sodium, Cryotherapy, CT38, Curcumin, Cyclophosphamide, Cymbalta, D-Ribose, Dehydroepiandrosterone, Diamine oxidase, Dichloroacetic acid, Diclofenac, Docosahexaenoic acid, Dr Lapp’s supplement recommendations, Echinacea, Eicosapentaenoic acid, Electrolyte, Electromagnetic avoidance, Elemental diet, Eleuthero, Emodin, Energy Envelope Theory, Epimedium, Equilibrant, Essential fatty acid, Evening primrose oil, Exercise, Famciclovir, Fasting, Fecal matter transplant, Fibromyalgia drugs, Fish oil, FITNET trial, FlaviNOx, Flavonoids, Fludrocortisone, Fluoxetine, Folate, Gabapentin, Gamma-linolenic acid, Gancyclovir, GAPS diet, Garlic, GcMAF, Ginger, Ginseng, Glucocorticoid, Glutamine, Glutathione, Graded exercise therapy, Green tea, Gupta programme, Helminthic therapy, Heparin, Hormesis, Huperzine A, Hydrochloric acid, Hydrocortisone, Hydroxychloroquine, Hyperbaric oxygen therapy, Hyperthermia, Hypoxia, Ibuprofen, Immunoadsorption, Imunovir, Interferon, Intermittent fasting, Intravenous immunoglobulin, Kampo, Kava, Ketogenic diet, User talk:Kmdenmark/EET, Leaky gut diet, Licorice, Lightning Process, Lipid replacement therapy, List of treatments, Lithium, Locations effect, Lomatium, Loratadine, Low dose naltrexone, Low FODMAP diet, Low histamine diet, Lysine, Magnesium, Malic acid, Manganese, Mangosteen, Marketing History of Ampligen, Mastic gum, Medical marijuana, Mefenamic acid, Melatonin, Meloxicam, Mestinon, Methylphenidate, Mickel therapy, Mindfulness and meditation, Mirtazapine, MitoQ, Miyarisan, Modafinil, Mold avoidance, Morphine, Mushrooms, Mutaflor, N-acetylcysteine, Nabumetone, Naproxen, Nexavir, Nicotinamide, Nicotinamide adenine dinucleotide, Non-benzodiazepine hypnotic, NT Factor, Ocrelizumab, Omalizumab, Omega 3 fatty acid, Omega 6 fatty acid, Oseltamivir, Oxymatrine, Ozone, Pacing, Pacing with a heart rate monitor, Paleo diet, Pantothenic Acid, Pentadecapeptide BPC 157, Phenylalanine, Placenta, Pleconaril, Potassium, Prednisone, Pregabalin, PrescriptAssist, Probiotic


Clinicians

Clinicians by country:


Clinicians by US state: Alabama clinicians, Alaska clinicians, Arizona clinicians, Arkansas clinicians, California clinicians, Colorado clinicians, Connecticut clinicians, Delaware clinicians, District of Columbia clinicians, Florida clinicians, Georgia clinicians, Hawaii clinicians, Idaho clinicians, Illinois clinicians, Indiana clinicians, Iowa clinicians, Kansas clinicians, Kentucky clinicians, Louisiana clinicians, Maine clinicians, Maryland clinicians, Massachusetts clinicians, Michigan clinicians, Minnesota clinicians, Mississippi clinicians, Missouri clinicians, Montana clinicians, Nebraska clinicians, Nevada clinicians, New Hampshire clinicians, New Jersey clinicians, New Mexico clinicians, New York clinicians, North Carolina clinicians, North Dakota clinicians, Ohio clinicians, Oklahoma clinicians, Oregon clinicians, Pennsylvania clinicians, Rhode Island clinicians, South Carolina clinicians, South Dakota clinicians, Tennessee clinicians, Texas clinicians, Utah clinicians, Vermont clinicians, Virginia clinicians, Washington clinicians, West Virginia clinicians, Wisconsin clinicians, Wyoming clinicians


Management guides: Taming the Gorilla (Action for ME), Notes for Carers (Greg Crowhurst), The Purple Booklet (ME Association), Spoon theory, Dental Leaflet for ME Sufferers (The Grace Charity for M.E.), CFS - A Roadmap for Testing and Treatment, Information for Patients and Hospital Staff Regarding Treatment of Patients with M.E. (The Grace Charity for M.E.)

Psychological paradigm

Psychological paradigm: Acceptance and commitment therapy, An Introduction to the Lightning Process, Biopsychosocial model, Bodily distress syndrome, Borderline Personality Disorder, Chronic Fatigue and its Syndromes, Chronic Fatigue Syndrome (The Facts), Chronic Fatigue Syndrome, ME and Fibromyalgia - The Long Awaited Cure, Cognitive behavioral therapy, Deconditioning, Exhaustion: A History, FINE trial, FITNET trial, Functional somatic syndrome, GETSET trial, Graded exercise therapy, Gupta programme, Hospital Anxiety and Depression Scale, Hysteria, Illness beliefs, It's All in Your Head: True Stories of Imaginary Illness, Lightning Process, M.E., Chronic Fatigue Syndrome and Fibromyalgia - The Reverse Therapy Approach, MAGENTA trial, Medically unexplained physical symptoms, Mickel therapy, Neurasthenia, Overcoming Chronic Fatigue, PACE trial, PACE trial documents, Pain catastrophizing, Persistent physical symptoms, Personality traits and patient attitudes in ME/CFS, Pervasive Refusal Syndrome, Psychologization, Psychoneuroimmunology, Psychosomatic illness, Reverse therapy, SMILE trial, The 3Ps model, The association between borderline personality disorder, fibromyalgia and chronic fatigue syndrome: systematic review, Category:Psychological paradigm critics, Category:Psychological paradigm proponents


Proponents: Alicia Deale, Anna Katharina Schaffner, Anthony Cleare, Anthony David, Anthony Johnson, Anthony Pelosi, Arlene Gallagher, Ben Goldacre, Boudewijn Van Houdenhove, Brian Angus, Brian Walitt, Carolyn Chew-Graham, Chantal Bleeker-Rovers, Clare Gerada, Colin McEvedy, Cuno Uiterwaal, David Wilks, Diane Cox, Edward Shorter, Elise van de Putte, Esther Crawley, Francis Creed, Gabrielle Murphy, Gijs Bleijenberg, Hazel O'Dowd, Hugo Critchley, Isaac Marks, Jan Kimpen, Jeannine Hautvast, Jessica Bavinton, Jim Bolton, Jo Daniels, Jos van der Meer, Julia DeCesare, Kate Kelland, Kimberley Goldsmith, Korine Scheeres, Laura Potts, Leone Ridsdale, Leszek Borysiewicz, Lieke de Jong, Lillebeth Larun, Loudy Priesterbach, Lucy Clark, Maja Stulemeijer, Mansel Aylward, Mary Burgess, Max Pemberton, Michael Sharpe, PACE Trial Management Group, Paul McCrone, Per Fink, Peter Manu, Peter White, Rebecca Walwyn, Richard Edwards, Rod Liddle, Rona Moss-Morris, Royal College of General Practitioners, Sanne Nijhof, Sean Lynch, Sense About Science, Sigrid Hoogveld, Simon Collin, Simon Wessely, Suzanne O'Sullivan, Theo Fiselier, Tim Peto, Tom Feilden, Trudie Chalder, Wessely school, William Beard, William Reeves, Category:PACE trial proponents


Critics: Alan Gurwitt, Alan Light, Alem Matthees, Alison Bested, Angela Kennedy, Anil van der Zee, Arthur Reingold, Betsy Keller, Brian Hughes, Bruce Levin, Caroline Struthers, Carolyn Wilshire, Charles Lapp, Charles Shepherd, Christopher Snell, David Bell, David Kaufman, David Tuller, Derek Enlander, Dharam Ablashi, Donald Acheson, Donald Staines, Eleanor Stein, Elisa Oltra, Ellen Goudsmit, Frank Twisk, Frans Visser, Fred Friedberg, Gordon Broderick, Graham McPhee, Ian Gibson, James Baraniuk, James Coyne, James Oleske, Joan Crawford, John Chia, John Peters, Jonathan Edwards, Katrina Berne, Keith Geraghty, Keith Kahn-Harris, Keith Laws, Kenneth Friedman, Leonard Jason, Lily Chu, Lisa Barcellos, Lubov Nathanson, Lucinda Bateman, Malcolm Hooper, Marcie Zinn, Mark Vink, Mark Zinn, Mary Ann Fletcher, Maureen Hanson, Michael Maes, Michael VanElzakker, Mike Godwin, Molly Brown, Nancy Klimas, Nigel Speight, Nina Muirhead, Peter Rowe, Philip Lee, Richard Podell, Ronald Davis, Ronald Tompkins, Rosamund Vallings, Rosemary Underhill, Sally Burch, Sam Carter, Sarah Myhill, Sonya Marshall-Gradisnik, Staci Stevens, Steve Topple, Steven Lubet, Susan Levine, Terry Mitchell, Vincent Lombardi, Vincent Racaniello, William Weir, Zaher Nahle, Category:PACE trial critics


Patient mental health

By country: diagnosis, treatments, insurance, disability, etc.

  • Africa:

Kenya, Nigeria, Category:Kenya, Category:Nigeria, Category:Outbreaks in Sierra Leone, Category:Outbreaks in the Republic of South Africa, Category:Sierra Leone, Category:South Africa


  • Asia:

China, India, Indonesia, Iran, Israel, Japan, Russia, South Korea, Category:China, Category:India, Category:Indonesia, Category:Iran, Category:Israel, Category:Japan, Category:Philippines, Category:Russia, Category:South Korea


  • Europe:

Austria, Belarus, Belgium, Bulgaria, Czech Republic, Denmark, Finland, France, Germany, Greece, Hungary, Ireland, Italy, Latvia, Netherlands, Norway, Poland, Portugal, Romania, Russia, Serbia, Slovakia, Slovenia, Spain, Sweden, Switzerland, Ukraine, United Kingdom, Category:Austria, Category:Belarus, Category:Belgium, Category:Bulgaria, Category:Croatia, Category:Czech Republic, Category:Denmark, Category:European research initiatives, Category:Finland, Category:France, Category:Germany, Category:Hungary, Category:Iceland, Category:Ireland, Category:Italy, Category:Latvia, Category:Netherlands, Category:Norway, Category:Poland, Category:Portugal, Category:Romania, Category:Russia, Category:Serbia, Category:Slovakia, Category:Slovenia, Category:Spain, Category:Sweden, Category:Switzerland, Category:Ukraine, Category:United Kingdom


  • Oceania:

Australia, New Zealand, Category:Australia, Category:New Zealand


  • North America:

Canada, Mexico, United States, Category:Canada, Category:Mexico, Category:United States


  • South America:

Argentina, Brazil, Category:Argentina, Category:Brazil, Category:Chile


History

Important events timeline

Historical records: Osler's Web, Thirty Years of Disdain

Outbreaks: 1934 Los Angeles atypical polio outbreak, 1936 Fond-du-Lac outbreak, 1937 Erstfeld outbreak, 1937 St. Gallen outbreak, 1939 Degersheim outbreak, 1939 Middlesex outbreak, 1945 Pennsylvania outbreak, 1946-47 Iceland outbreak, 1948-49 Akureyri outbreak, 1949-53 Adelaide outbreak, 1950 Louisville outbreak, 1950 New York State outbreak, 1952 Copenhagen outbreak, 1952 Florida outbreak, 1952 London Middlesex Hospital outbreak, 1953 Coventry outbreak, 1953 Jutland outbreak, 1953 Maryland outbreak, 1954 Berlin outbreak, 1954 Florida outbreak, 1954 Johannesburg outbreak, 1954 Liverpool outbreak, 1954 Seward outbreak, 1955 Dalston outbreak, 1955 Durban outbreak, 1955 Iceland outbreak, 1955 London outbreak, 1955 North of England outbreak, 1955 Perth outbreak, 1955 Royal Free Hospital outbreak, 1955 Segbwema outbreak, 1955 Wales outbreak, 1956 Coventry outbreak, 1956 Lancashire outbreak, 1956 Massachusetts outbreak, 1956 Punta Gorda outbreak, 1956 Ridgefield outbreak, 1957 South Australia outbreak, 1958 Athens outbreak, 1958 London SW outbreak, 1959 England outbreak, 1959 London NW outbreak, 1959 Newcastle outbreak, 1961 Basel outbreak, 1961 New York State outbreak, 1964 Franklin outbreak, 1964 London NW outbreak, 1965 Galveston outbreak, 1967 Edinburgh outbreak, 1968 Fraidek outbreak, 1969 New York outbreak, 1970 Lackland outbreak, 1970 London outbreak, 1975 Sacramento outbreak, 1976 Ireland SW outbreak, 1977 Dallas outbreak, 1979 Southampton outbreak, 1980 Helensburgh outbreak, 1980-81 Ayrshire outbreak, 1981 Gunnedah outbreak, 1981 Stirlingshire outbreak, 1984 Chapel Hill outbreak, 1984 Incline Village chronic fatigue syndrome outbreak, 1984 Montreal outbreak, 1984 Tapanui & West Otago Outbreak, 1984 Truckee outbreak, 1985 Lyndonville outbreak, 1985 Yerington outbreak, 1986 Placerville outbreak, 1988 Narrabeen outbreak, 1988 Sonora CA outbreak, 1989 Roseville CA outbreak, 1990 Elk Grove CA outbreak, 1996 Mohave Valley region, Arizona, 2004 Bergen, Norway outbreak, Epidemic myalgic encephalomyelitis, List of myalgic encephalomyelitis and chronic fatigue syndrome outbreaks, Category:Outbreaks by country, Category:Outbreaks by decade


Deceased people with ME/CFS and/or FMS: Brynmor John, Chardale Dotson Irvine, Elizabeth Barrett Browning, Emily Collingridge, Florence Nightingale, Frank Carrone, Henry Percy, 11th Duke of Northumberland, Jodi Bassett, Justin Noble, Lynn Gilderdale, Memorial lists, Merryn Crofts, Oliver Coles, Roger Cicero, Sophia Mirza, Thomas Hennessy, Jr., Vanessa Li, Victoria Elsbury-Legg


Major developments/controversies: PACE trial, XMRV

ME and CFS in popular culture

Psychosomatic explanations for disease - History of misdiagnosis of illnesses [[1]]

Patient advocacy

Patient groups


How To Advocate: Community and System Change

Advocacy/Fundraising Initiatives: Famous people with ME, CFS, and/or FMS: Alan W. Lear, Amy Peterson, Ann Bannon, Blake Edwards, Brenton Brown, Brynmor John, Charles Darwin, Cher, Claire Jones, David Provan, David Puttnam, Elizabeth Barrett Browning, Emma Blackery, Flea, Florence Nightingale, Frank Carrone, Glenn Beck, Henry Percy, 11th Duke of Northumberland, Howard Bloom, John Rutter, Jonathan Ansell, Katie Flynn, Keith Jarrett, Lady Gaga, Laura Hillenbrand, Laurie Walker, Leila Pahlavi, List of famous people with ME, CFS, and/or FMS, Margaret of Mar, 31st Countess of Mar, Martin Lev, Martin Phillips, Martine McCutcheon, Michael Crawford, Michael Mayne, Michelle Akers, Miriam Defensor Santiago, Morgan Fairchild, Neil Codling, Nicola Blackwood, Olaf Bodden, Oriah Mountain Dreamer, Paul Atherton, Peter Marshall, Randy Newman, Rich Carson, Richie Barnett, Roger Cicero, Sabine Moussier, Shirley Conran, Stevie Nicks, Stuart Murdoch, Susan Blackmore, Susan Harris, Tom Clarke, Toni Bernhard, Vicky Beeching, Yvette Cooper, Category:Famous people with ME, CFS, and/or FMS by country


People living with ME, CFS, and/or FMS: "Joanne", Adam Lowe, Adrienne Dellwo, Alan Gurwitt, Alan W. Lear, Alem Matthees, Ali Smith, Amy Peterson, Andrew Chia, Angus Mackay, Anil van der Zee, Ann Bannon, Beth French, Beth Mazur, Blake Edwards, Brenton Brown, Brian Vastag, Brynmor John, Cara Tomas, Carol Head, Catherine Hale, Chardale Dotson Irvine, Charles Shepherd, Cher, Chris Willsher, Claire Jones, Claire Wade, Clark Ellis, Cort Johnson, Courtney Craig, Dan Neuffer, David Provan, David Puttnam, Dean Brantley Taylor, Deborah Waroff, Donna Pearson, Ean Proctor, Eddy Keuninckx, Elizabeth Barrett Browning, Ellen Piro, Emily Collingridge, Emma Blackery, Emma Shorter, Erica Verrillo, Erik Johnson, Erin B. Fromkes, Flea, Florence Nightingale, Frank Carrone, Frank Twisk, Gabby Klein, Gary Burgess, Geoffrey Hallmann, Giada Da Ros, Giles Meehan, Glenn Beck, Graham McPhee, Guido den Broeder, Hayley Green, Henry Percy, 11th Duke of Northumberland, Hillary Johnson, Howard Bloom, Jacqueline Rose, Jaime Seltzer, Jamison Hill, Jane Colby, Janelle Wiley, Jeannette Burmeister, Jennie Spotila, Jennifer Brea, Jessica Taylor-Bearman, Jo Moss, Jodi Bassett, John Peters, John Rutter, Jon Kaiser, Judy Basso, Julie Rehmeyer, Justin Noble, Karina Hansen, Katie Flynn, Katrina Berne, Keith Geraghty, Keith Jarrett, Keith Kahn-Harris, Ken Lassesen, Kim Snyder, L.A. Cooper, Lady Gaga, Laura Hillenbrand, Laura Vitale, Leonard Jason, Lily Chu, Lisa Petrison, Lucy Saxon, Lydia Neilson, Lynn Gilderdale, Maija Haavisto, Maik Speedy, Marc Iverson, Marcie Zinn, Margaret of Mar, 31st Countess of Mar, Margaret Williams, Marion Michell, Marjorie van de Sande, Mark Berry, Mark Guthridge, Mark Vink, Martin Lev, Martin Pall, Martine McCutcheon, Mary Ann Kindel, Mary Gelpi, Mary Schweitzer, Maryann Spurgin, Merryn Crofts, Michael Crawford, Michael Mayne, Michelle Akers, Michelle Wyatt, Miriam Defensor Santiago, Morgan Fairchild, Nancy Blake, Nancy Butler, Nancy Kaiser, Naomi Whittingham, Nasim Marie Jafry, Nathalie Wright, Neil Codling, Nicola Blackwood, Nina Muirhead, Olaf Bodden, Oliver Coles, Oriah Mountain Dreamer, Paul Atherton, Peter Kemp, Randy Newman, Rebecca Artman, Rich Carson, Richie Barnett, Rivka Solomon, Robert Courtney, Robert Miller, Roberta Pelletta, Robin Brown, Roger Cicero, Russell Logan, Ryan Prior, Sally Burch, Sally Jones, Sam Carter, Scott Simpson, Shirley Conran, Simon Del Favero, Simon McGrath, Sophia Mirza, Staci Stevens, Steven Lubet, Stevie Nicks, Stuart Murdoch, Susan Blackmore, Susan Harris, Susan Kreutzer, Tanya Harrison, Tanya Marlow, Thomas Hennessy, Jr., Tom Clarke, Tom Kindlon, Toni Bernhard, Valentina Bodina Cohen, Valerie Eliot Smith, Vance Spence, Vanessa Li, Vicky Beeching, Victoria Elsbury-Legg, Wendy Boutilier, Whitney Dafoe, Yvette Cooper, Category:Citizen scientists, Category:Deceased people with ME, CFS, and/or FMS, Category:Famous people with ME, CFS, and/or FMS


Notable advocates: Adam Lowe, Adrian Bailey, Adrienne Dellwo, Alan Gurwitt, Alem Matthees, Alex Chalk, Alexandra Heumber, Amy Carlson, Andrew Selous, Angela Kennedy, Anil van der Zee, Annette Whittemore, Ben Lake, Beth French, Beth Mazur, Brian Hughes, Carol Head, Carol Monaghan, Caroline Lucas, Caroline Struthers, Charles Shepherd, Charmian Proskauer, Christine Hunter, Clark Ellis, Cort Johnson, Courtney Miller, Darren Jones, David Drew, David Puttnam, David Tuller, Deborah Waroff, Don Tannenbaum, Donna Pearson, Ed Burmeister, Eddy Keuninckx, Eileen Holderman, Ellen Goudsmit, Ellen Piro, Emily Collingridge, Emma Lewell-Buck, Emma Reinhold, Emma Shorter, Erica Verrillo, Erik Johnson, Faith Newton, Farhad Dalal, Frank Twisk, Gabby Klein, Gary Burgess, Geoffrey Hallmann, Giada Da Ros, Graham McPhee, Graham Stringer, Greg Crowhurst, Ian Gibson, Jaime Seltzer, Jamison Hill, Jane Colby, Janelle Wiley, Janet Dafoe, Jason Newfield, Jeannette Burmeister, Jennie Spotila, Jennifer Brea, Jessica Taylor-Bearman, Jim Cunningham, Jim Shannon, Joan Crawford, Jodi Bassett, John Nicols, John Peters, Jon Campling, Judy Basso, Jørgen Jelstad, Keith Kahn-Harris, Kelvin Hopkins, Ken Lassesen, Kenneth Friedman, Kerry McCarthy, Kim McCleary, Kim Snyder, Kjersti Krisner, L.A. Cooper, Lena Dunham, Lily Chu, Linda Tannenbaum, Lisa Petrison, List of Chronic Fatigue Syndrome Advisory Committee Members, Llewellyn King, Luciana Berger, Lydia Neilson, Lyle Lieberman, Maik Speedy, Malcolm Hooper, Margaret of Mar, 31st Countess of Mar, Margaret Williams, Marjorie van de Sande, Mark Berry, Mark Guthridge, Mark Vink, Mary Ann Kindel, Mary Dimmock, Mary Gelpi, Mary Glindon, Mary Schweitzer, ME activists and advocates, Mike Godwin, Mike Harley, Mindy Kitei, Morgan Fairchild, Nancy Butler, Nicky Morgan, Nicole Castillo, Nina Muirhead, Norman Lamb, Orvalene Prewitt, Peter Kemp, Philippa Whitford, Pia Simpson, Rebecca Artman, Rich Carson, Richard Simpson, Rivka Solomon, Robert Courtney, Robert Miller, Robin Brown, Ryan Prior, Sally Burch, Sam Carter, Sarah Myhill, Scott Ludlam, Scott Simpson, Simon Duffy, Simon McGrath, Sonya Chowdhury, Stephanie Land, Stephen Pound, Steve Topple, Steven Krafchick, Susan Kreutzer, Tanya Harrison, Tanya Marlow, Thomas Hennessy, Jr., Tom Clarke, Tom Kindlon, Tom Whittingham, Valentina Bodina Cohen, Valerie Eliot Smith, Wendy Boutilier, Yvette Cooper, Category:Advocates or allies by country, Category:CFSAC members, Category:Citizen scientists


Notable quotes: List of quotes, Individual quotes

Illuminated landmarks

Journals, TV, articles, books, film, interviews, blogs, discussion forums

Journals: Diagnostics, Fatigue: Biomedicine, Health & Behavior, Journal of Chronic Fatigue Syndrome, Journal of Nuclear Medicine, PLOS ONE, The BMJ, The Journal of Nuclear Medicine, The Lancet, The Lancet Psychiatry, Category:Journal editors, Category:Journals with all articles using CC licenses, Category:Journals with other licenses, Category:Journals with some articles using CC licenses


TV: Chronic Fatigue: Missing Millions (Carte Blanche DSTV), House, I Remember Me, Inside Out: Six years in bed, List of television segments on ME and CFS, Sick and Tired - BBC, Sick and Tired - Incline Village Outbreak, Susan Harris, The Golden Girls, The Middle, Toxic Tiredness, Unrest


Books: Deutsche books, English books, Italiano books, Nederlandse books, Norsk books, Suomalainen books, Svenska books


Film: Forgotten Plague, I Remember Me, Invisible Illness - Stories of Chronic Fatigue Syndrome, Living with M.E., M.E. and Me, ME The Hidden Truth, Perversely Dark, The Last Great Medical Cover Up, Unrest, Voices from the Shadows, What About ME, Wild Horses


Video interviews: Beyond the Data – Chronic Fatigue Syndrome: Advancing Research and Clinical Education, ME/CFS Alert, Science for Patients


Blogs: 25pillsaday, A Dream Deferred, A Journey Through The Fog, A Life Hidden, Aroga Yoga, Blonde Voyage, Cell Fatigue, CFS Central, CFS Patient Advocate, CFS Remission, CFSGraphics, Chronic Fatigue Survivor's Blog, Chronically Hopeful, ChronicallyME, Constant F****** S***, Courtney Craig, Disabled in Tory Britain, Get Well From ME, Health Rising, Holistic Myalgic Encephalomyelitis, Intelligent Medicine, JayTay, Just ME, Limited Capability, Living With Chronic Fatigue Syndrome, ME Association, ME/CFS Alert, ME/CFS Ghost, MEadvocacy, My World, Nice guidelines blog, Occupy M.E., Onward Through the Fog, Paolo Maccallini, Phoenix Rising, Quixotic My ME Blog, Rag and Bone Shop of the Heart: E.M. and M.E., Shoutout About ME, Spoonie Radio, Spoonseekerdotcom, Stonebird, The Blue Ribbon Fellowship, The Blue Ribbon Foundation, The MEAction Network, The Self-Taught Author, The World of One Room, Thoughts About M.E., Trial By Error, Utting-Wolff Spouts, Valerie Eliot Smith Blog, Verywell FMS/CFS, Virology blog


Discussion forums: CFS Reddit, Health Rising, MDJunction, ME/CFS Forums, MEAction Reddit, Phoenix Rising, ProHealth, Science for ME


Podcasts: Intelligent Medicine, Spoonie Radio, The ME Show


Articles: List of news articles on ME and CFS, In the Expectation of Recovery

Open letters

Category:Open letters: An open letter to Psychological Medicine about “recovery” and the PACE trial, List of open letters from other interested parties, List of open letters from patient advocates and advocacy organizations, List of open letters from researchers, Open letter to the Lancet


The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.