Anonymous
Not logged in
Talk
Contributions
Create account
Log in
Search
Editing
Primer for family, friends and care providers
(section)
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Namespaces
Page
Discussion
More
More
Page actions
Read
Edit
Edit source
History
Warning:
You are not logged in. Your IP address will be publicly visible if you make any edits. If you
log in
or
create an account
, your edits will be attributed to your username, along with other benefits.
Anti-spam check. Do
not
fill this in!
== Recommended reading == ====Government health organizations==== :'''US''' :[[Centers for Disease Control]] (CDC) :*[https://www.cdc.gov/me-cfs/me-cfs-children/factsheets.html Factsheets - Pediatric]<ref>{{Cite web|url=https://www.cdc.gov/me-cfs/me-cfs-children/factsheets.html | title = ME/CFS in Children Fact Sheets {{!}} Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | date = 2017-07-14 | website = [[Centers for Disease Control and Prevention]]|language=en-us|access-date=2018-09-07}}</ref> Fact sheets for Healthcare Professionals, Parents/Guardians, and Education Professionals. (2017) :[[National Institutes of Health]] (NIH) :*[[Moving Toward Answers in ME/CFS - NIH Director's Blog (2017)]] :[[Institute of Medicine]] (IOM) :*[https://www.nap.edu/resource/19012/MECFS_KeyFacts.pdf Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Key Facts]<ref name="facts"/> From the [[Institute of Medicine report]]. (2015) :*[https://www.nap.edu/resource/19012/MECFS_ReportBrief.pdf Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Redefining an Illness - Report brief]<ref name="brief">{{Cite web|url=https://www.nap.edu/resource/19012/MECFS_ReportBrief.pdf | title = Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Redefining an Illness {{!}} Report Brief | last = | first = | date = Feb 2015 | website = National Academies|archive-url=|archive-date=|access-date=}}</ref> Report Brief on the Institute of Medicine report. (2015) ==== ME/CFS research foundations ==== :'''UK''' :[[Invest in ME]] :*[http://www.investinme.org/faqs.shtml Frequently Asked Questions]<ref>{{Cite web|url=http://www.investinme.org/faqs.shtml | title = Invest in ME Research - UK Charity for Myalgic Encephalomyelitis FAQs|last = Invest in ME Research | website = [[Invest in ME Research]] |access-date=2018-09-07}}</ref> :'''US''' :[[Open Medicine Foundation]] (OMF) :*[https://www.omf.ngo/what-is-mecfs/ What is ME/CFS?]<ref name="whatis" /> ==== ME/CFS organizations ==== :'''Australia''' :[[Emerge Australia]] :*[https://emerge.org.au/about-mecfs/diagnosis/mecfs/ What is ME/CFS?]<ref>{{Cite news | url=https://emerge.org.au/mecfs/ | title = What is ME/CFS? - Emerge Australia|work=Emerge Australia|access-date=2018-09-07|language=en-US}}</ref> :'''UK''' :[[ME Association]] :*[http://www.meassociation.org.uk/about/what-is-mecfs/ What is ME/CFS?]<ref>{{Cite web|url=https://www.meassociation.org.uk/about/what-is-mecfs/ | title = What is ME/CFS?|website=[[The ME Association]]|language=en-US|access-date=2018-09-07}}</ref> :[[Tymes Trust]] (Pediatric) :*[http://www.tymestrust.org/pdfs/mecfsseid.pdf Pediatric ME, CFS, SEID for Families and their GPs]<ref>{{Cite web|url=https://www.tymestrust.org/pdfs/mecfsseid.pdf | title = Paediatric ME, CFS, SEID for Families and their GPs | last = | first = | date = |website=tymestrust.org|publisher=The Young ME Sufferers Trust|archive-url=|archive-date=|access-date=}}</ref> (2016) :'''US''' :[[Massachusetts CFIDS/ME & FM Association]] :*[https://www.masscfids.org/cfids-me-cfs About ME/CFS]<ref>{{Cite web|url=https://www.massmecfs.org/cfids-me-cfs | title = ME/CFS|website=massmecfs.org|access-date=2019-01-24}}</ref> :[[Solve ME/CFS]] :*[https://drive.google.com/file/d/0B6UlcglLsyp7WkgxbmdaWXVhbVU/view What, Exactly, is a Biomarker Anyway? And Why Don't We Have One for ME/CFS?]<ref>{{Cite web|url=https://drive.google.com/file/d/0B6UlcglLsyp7WkgxbmdaWXVhbVU/view | title = What, Exactly, Is a Biomarker Anyway? And Why Don't We Have One for ME/CFS? | last = | first = | date = |website=drive.google.com|publisher=Solve ME/CFS Initiative|archive-url=|archive-date=|access-date= | authorlink = }}</ref> :*[http://solvecfs.org/what-is-mecfs/ Get the Facts about ME/CFS]<ref>{{Cite news | url=https://solvecfs.org/what-is-mecfs/ | title = Get the Facts about ME/CFS - Solve ME/CFS Initiative|work=Solve ME/CFS Initiative|access-date=2018-09-07|language=en-US}}</ref> (2016) :*[http://solvecfs.org/wp-content/uploads/2013/06/SMCI_MECFS_FactSheet.pdf What is ME/CFS?]<ref>{{Cite web|url=http://solvecfs.org/wp-content/uploads/2013/06/SMCI_MECFS_FactSheet.pdf | title = What is ME/CFS? | last = | first = | date = 2013 | website = solvecfs.org|archive-url=|archive-date=|access-date=}}</ref> (2013) :'''International''' :[[MEAction]] :*[https://drive.google.com/file/d/1h_ZwdR4567k-mSoWahnC_id0F_fAA3Fb/view Caring for People with Myalgic Encephalomyelitis]<ref name=":14" /> (2018) Guide for Caretakers :*[http://www.meaction.net/wp-content/uploads/2015/10/ME-Facts-v2-1.pdf Facts about Myalgic Encephalomyelitis (ME) (Also called chronic fatigue syndrome or CFS)]<ref>{{Cite web|url=http://www.meaction.net/wp-content/uploads/2015/10/ME-Facts-v2-1.pdf | title = Facts about Myalgic Encephalomyelitis (ME) - (Also called chronic fatigue syndrome or CFS) | last = | first = | date = |website=MEAction|archive-url=|archive-date=|access-date=}}</ref> (2015) :*[http://www.meaction.net/reports-and-fact-sheets/? Reports and Fact Sheets]<ref>{{Cite web|url=https://www.meaction.net/resources/ | title = Learn about ME. Find educational tools for your advocacy. | last = | first = | date = |website=meaction.net|archive-url=|archive-date=|access-date=}}</ref> (2015) ==== Other organizations ==== :[https://rarediseases.org/ National Organization for Rare Disorders] (NORD) :*[https://rarediseases.org/rare-diseases/myalgic-encephalomyelitis/ Myalgic Encephalomyelitis]<ref>{{Cite news | url=https://rarediseases.org/rare-diseases/myalgic-encephalomyelitis/ | title = Myalgic Encephalomyelitis - NORD (National Organization for Rare Disorders)|work=NORD (National Organization for Rare Disorders)|access-date=2018-09-07|language=en-US}}</ref> ==== Other reading==== :*[http://thirdage.com/what-do-you-do-when-a-loved-one-becomes-chronically-ill/ What Do You Do When a Loved One Becomes Chronically Ill?]<ref>{{Cite news | url=https://thirdage.com/what-do-you-do-when-a-loved-one-becomes-chronically-ill/ | title = What Do You Do When a Loved One Becomes Chronically Ill? | last= Jackson | first = Suzan | date = 2016-10-28|work=thirdAGE|access-date=2018-09-07|archive-url=|archive-date=|language=en-US}}</ref>
Summary:
Please make sure your edits are consistent with
MEpedia's guidelines
.
By saving changes, you agree to the
Terms of use
, and you irrevocably agree to release your contribution under the
CC BY-SA 3.0 License
and the
GFDL
. You agree that a hyperlink or URL is sufficient attribution under the Creative Commons license.
Cancel
Editing help
(opens in new window)
Navigation
Navigation
Skip to content
Main page
Browse
Become an editor
Random page
Popular pages
Abbreviations
Glossary
About MEpedia
Links for editors
Contents
Guidelines
Recent changes
Pages in need
Search
Help
Wiki tools
Wiki tools
Special pages
Page tools
Page tools
User page tools
More
What links here
Related changes
Page information
Page logs