Beth Mazur

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

Beth Mazur (1976-2023) was an American patient advocate and co-founder of #MEAction with Jennifer Brea, and HealClick, a website for patients with chronic illnesses. Beth Mazur died suddenly on December 22nd, 2023, at the age of 47, while visiting close friend and patient advocate Julie Rehmeyer.[1] She had previously taken a leave of absence due to her health.

Education[edit | edit source]

Mazur attended MIT, earning a Bachelor’s in Computer Science and Electrical Engineering.[2]

Career[edit | edit source]

Mazur was a technologist for non-profits and start-ups.[2] Prior to developing ME and POTS, she worked as a developer and technical product manager for organizations including HealClick, Grameen Foundation, and Jaspersoft.[2] She served on San Francisco’s Voting Systems Task Force, advising the city on its voting system.[2]

ME/CFS[edit | edit source]

Beth Mazur developed M.E. in the late 2000s, when she was in her early 30s. She tried hundred of different treatments to try to cure her illness or to improve her symptoms and quality of life, and was described as having an unsurpassed level of scientific understanding of ME by fellow patient advocate Julie Rehmeyer. Beth had profound cognitive dysfunction and neurocognitive symptoms, and she found all speech, listening, and thinking extremely difficult. Beth Mazur lived with ME for fifteen years, and developed secondary depression and anxiety, which she also had treatment for, in addition to both ME and POTS. Beth passed away by suicide in December 2023, and was reported to have planned her passing long before that, but without sharing her plans.[1]

Writing[edit | edit source]

• With Brian Vastag. "Researchers warn covid-19 could cause debilitating long-term illness in some patients". The Washington Post. May 30, 2020.

Online presence[edit | edit source]

  • LinkedIn (PSA the LinkedIn will be removed since they do NOT keep nonliving profiles in their database, so please take a screenshot if Beth's online presence meant a lot to you!)

News articles and blogs[edit | edit source]

- #MEAction

Obituary[edit | edit source]

Resources[edit | edit source]

References[edit | edit source]

  1. 1.0 1.1 Tuller, David (24-12-2023). "Trial By Error: Julie Rehmeyer on the Heartbreaking Loss of Beth Mazur". Virology blog. |first= missing |last= (help); Check date values in: |date= (help)
  2. 2.0 2.1 2.2 2.3 "#MEAction Board & Advisors". #MEAction Network. Retrieved December 22, 2023.