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File:Rosa SEID.JPG

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history

Rosa_SEID.JPG (144 × 152 pixels, file size: 12 KB, MIME type: image/jpeg)

TITLE: Rosa age 25 in 1986, when she believes she would have met the SEID criteria developed in 2015.

Source: Image and information contributed by Rosa

Author: Friend of Rosa

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Rosa age 25 in 1986, when she believes she would have met the Systemic Exertion Intolerance Disease (SEID) criteria developed in 2015. She became worse over the years and in 2003 was diagnosed and disabled with chronic fatigue syndrome (CFS). She now meets the Canadian Consensus Criteria (CCC) criteria with PEM "option". ME/CFS onset was age 17 and fibromyalgia since puberty.

In 2015 the SEID criteria were released. Rosa read about PEM and how it is delayed and makes ME/CFS symptoms like CF, OI, and cognition worse. Her life since age 17 fell into place as she never connected her worsening symptoms with increased physical or mental activity 24-72 hours prior. She believes not understanding PEM made her condition worsen over the years and is now disabled meeting the CCC with PEM "option"


She believes not understanding PEM made her condition worsen over the years and is now disabled.

systemic exertion intolerance disease (SEID) - A term for ME/CFS that aims to avoid the stigma associated with the term "chronic fatigue syndrome", while emphasizing the defining characteristic of post-exertional malaise (PEM). SEID was defined as part of the diagnostic criteria put together by the Institute of Medicine (IOM) report of 10 February 2015.

See systemic exertion intolerance disease.

See Canadian consensus criteria.

Canadian Consensus Criteria (CCC) - A set of diagnostic criteria used to diagnose ME/CFS, developed by a group of practicing ME/CFS clinicians in 2003. The CCC is often considered to be the most complex criteria, but possibly the most accurate, with the lowest number of patients meeting the criteria. Led to the development of the International Consensus Criteria (ICC) in 2011.

post-exertional malaise (PEM) - A notable exacerbation of symptoms brought on by small physical or cognitive exertions. PEM may be referred to as a "crash" or "collapse" and can last for days or weeks. Symptoms can include cognitive impairments, muscle pain, trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, and others.

See post-exertional malaise.

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current22:47, September 2, 2018Thumbnail for version as of 22:47, September 2, 2018144 × 152 (12 KB)MEcfsFMS (talk | contribs)TITLE: Rosa age 25 in 1986, when she believes she would have met the SEID criteria developed in 2015. Source: Contributed by Rosa Author: Friend of Rosa Rosa age 25 in 1986, when she believes she would have met the SEID criteria developed in 2015. S...

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