Members and Associates[edit | edit source]
- Countess of Mar (Chairman)
- Carol Monaghan (MP) Vice Chairman
- Dr Nigel Speight
- Dr William Weir
- Dr Nina Muirhead
The members all participate in the meetings convened by Forward-ME.
- ME Association
- ME Research UK
- Action for ME
- Invest in ME Research
- The Young ME Sufferers Trust (Tymes Trust)
- Blue Ribbon Awareness for ME (BRAME)
- Neurological Alliance
- ME Trust
Aims[edit | edit source]
Forward-ME consists of charities and voluntary organisations invited by the Countess of Mar to meet several times a year. The aim of Forward-ME is to promote effective joint working by ME and CFS organisations to maximise impact on behalf of all people with ME and CFS in the UK. Forward-ME exists to improve recognition, understanding, research, management, support and information for everyone whose life is affected by ME and CFS.
Minutes[edit | edit source]
The full list of minutes can be found here.
Notable people[edit | edit source]
- The Countess of Mar is the founder and chairman of Forward-ME.
History[edit | edit source]
Forward-ME was first convened by the Countess of Mar in October 2008. Meetings have taken place several times yearly since.
Online presence[edit | edit source]
See also[edit | edit source]
References[edit | edit source]
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.
chronic fatigue syndrome (CFS) - A controversial term, invented by the U.S. Centers for Disease Control, that generally refers to a collection of symptoms as “fatigue”. There have been multiple attempts to come up with a set of diagnostic criteria to define this term, but few of those diagnostic criteria are currently in use. Previous attempts to define this term include the Fukuda criteria and the Oxford criteria. Some view the term as a useful diagnostic category for people with long-term fatigue of unexplained origin. Others view the term as a derogatory term borne out of animus towards patients. Some view the term as a synonym of myalgic encephalomyelitis, while others view myalgic encephalomyelitis as a distinct disease.