Workwell Foundation: Difference between revisions
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*2010, [http://ptjournal.apta.org/content/90/4/602.full Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]<ref name="Davenport2010" /> | *2010, [http://ptjournal.apta.org/content/90/4/602.full Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis]<ref name="Davenport2010" /> | ||
*2005,[http://iv.iiarjournals.org/content/19/2/387.full.pdf Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)]<ref name="Snell2005" /> | *2005,[http://iv.iiarjournals.org/content/19/2/387.full.pdf Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)]<ref name="Snell2005" /> | ||
*2003, Subclassifying Chronic Fatigue Syndrome through Exercise Testing<ref name="VanNess2003">{{cite journal | last=VanNess | first=J. Mark | | *2003, Subclassifying Chronic Fatigue Syndrome through Exercise Testing<ref name="VanNess2003">{{cite journal | last=VanNess | first=J. Mark | authorlink = J. Mark VanNess | last2 = Snell | first2=Christopher R. | authorlink2 = Christopher Snell | last3 = Strayer | first3=David R. | authorlink3= David Strayer | last4 = Dempsey | first4 = Line | author-link4 = | last5 = Stevens | first5 = Staci R. | authorlink5 = Staci Stevens | title=Subclassifying Chronic Fatigue Syndrome through Exercise Testing | url = https://doi.org/10.1249%2F01.mss.0000069510.58763.e8 |journal=Medicine & Science in Sports & Exercise | volume=35 | issue=6 | year=2003 | issn=0195-9131 | doi=10.1249/01.mss.0000069510.58763.e8 | pages=908–913}}</ref> | ||
==Exercise recommendations for [[ME/CFS]]== | ==Exercise recommendations for [[ME/CFS]]== | ||
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*This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual<ref name="Workwell201512foar" /> | *This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual<ref name="Workwell201512foar" /> | ||
==COVID-19 rehabilitation information== | ==COVID-19 rehabilitation information== | ||
* May 2020, [https://www.physiosforme.com/covid-19 Post Covid-19 Rehabilitation]<ref name="PhysiosforME-COVID19">{{Cite web|url=https://www.physiosforme.com/covid-19|title=Post Covid-19 Rehabilitation|last=Physio for ME|first=|authorlink=Physios for ME|last2=Workwell Foundation|first2= | authorlink2 = Workwell Foundation|date=May 2020 | website = Physiosforme|language=en|archive-url=|archive-date=|url-status=|access-date=2020-05-02|last3=ME Association|author-link3=ME Association}}</ref> - [[Physios for ME]], Workwell Foundation, and [[ME Association]] | * May 2020, [https://www.physiosforme.com/covid-19 Post Covid-19 Rehabilitation]<ref name="PhysiosforME-COVID19">{{Cite web|url=https://www.physiosforme.com/covid-19 | title = Post Covid-19 Rehabilitation | last =Physio for ME | first = |authorlink=Physios for ME | last2 = Workwell Foundation | first2= | authorlink2 = Workwell Foundation | date = May 2020 | website = Physiosforme|language=en|archive-url=|archive-date=|url-status=|access-date=2020-05-02 | last3 = ME Association | author-link3 = ME Association}}</ref> - [[Physios for ME]], Workwell Foundation, and [[ME Association]] | ||
==Open letters== | ==Open letters== | ||
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==References== | ==References== | ||
<references> | <references> | ||
<ref name="Davenport2010">{{citation | last1 | <ref name="Davenport2010">{{citation | last1 = Davenport | first1 = Todd E | authorlink1 = Todd Davenport | last2 = Stevens | first2 = Staci R | authorlink2 = Staci Stevens | last3 = VanNess | first3 = J Mark | authorlink3 = Mark VanNess | last4 = Snell | first4 = Christopher R | authorlink4 = Christopher Snell | last5 = Little | first5 = Tamara | authorlink5 = Tamara Little | title = Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis | journal = Physical Therapy (APTA) | volume = 90 | issue = 4 | page = 602-614 | date = 31 Mar 2010 | pmid = 20185614 | doi = 10.2522/ptj.20090047 | ||
| pmid | |||
| url = http://ptjournal.apta.org/content/90/4/602.full }}</ref> | | url = http://ptjournal.apta.org/content/90/4/602.full }}</ref> | ||
<ref name="Davenport2011">{{citation | last1 | <ref name="Davenport2011">{{citation | last1 = Davenport | first1 = Todd E | authorlink1 = Todd Davenport | last2 = Stevens | first2 = Staci R | authorlink2 = Staci Stevens | last3 = Baroni | first3 = Katie | authorlink3 = Katie Baroni | last4 = VanNess | first4 = J Mark | author-link4 = Mark VanNess | last5 = Snell | first5 = Christopher R | authorlink5 = Christopher Snell | title = Diagnostic accuracy of symptoms characterising chronic fatigue syndrome | journal = Disabil Rehabil | volume = 33 | issue= 19-20 | page = 1768-75 | date = 6 Jan 2011 | pmid = 21208154 | doi = 10.3109/09638288.2010.546936 | ||
| pmid | |||
| url = http://www.tandfonline.com/doi/abs/10.3109/09638288.2010.546936 }}</ref> | | url = http://www.tandfonline.com/doi/abs/10.3109/09638288.2010.546936 }}</ref> | ||
<ref name="JohnsonC20130730busted">{{citation | last1 | <ref name="JohnsonC20130730busted">{{citation | last1 = Johnson | first1 = Cort | authorlink1 = Cort Johnson | title = Busted! Exercise Study Finds Energy Production System is Broken in Chronic Fatigue Syndrome | date = 30 Jul 2013 | ||
| url = http://www.cortjohnson.org/blog/2013/07/30/busted-exercise-study-finds-energy-production-system-is-broken-in-chronic-fatigue-syndrome/ }}</ref> | | url = http://www.cortjohnson.org/blog/2013/07/30/busted-exercise-study-finds-energy-production-system-is-broken-in-chronic-fatigue-syndrome/ }}</ref> | ||
<ref name="Snell2005">{{citation | last1 | <ref name="Snell2005">{{citation | last1 = Snell | first1 = Christopher R | authorlink1 = Christopher Snell | last2 = VanNess | first2 = J Mark | author-link2 = Mark VanNess | last3 = Strayer | first3 = David R | authorlink3 = David Strayer | last4 = Stevens | first4 = Staci R | authorlink4 = Staci Stevens | title = Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS) | journal = In Vivo | volume = 19 | issue =2 |page = 387-390 | date = 2005 | pmid = 15796202 | ||
| pmid | |||
| url = http://iv.iiarjournals.org/content/19/2/387.full.pdf }}</ref> | | url = http://iv.iiarjournals.org/content/19/2/387.full.pdf }}</ref> | ||
<ref name="Snell2013">{{citation | last1 | <ref name="Snell2013">{{citation | last1 = Snell | first1 = Christopher R | authorlink1 = Christopher Snell | last2 = Stevens | first2 = Staci R | authorlink2 = Staci Stevens | last3 = Davenport | first3 = Todd E | authorlink3 = Todd Davenport | last4 = VanNess | first4 = J Mark | author-link4 = Mark VanNess | title = Discriminative Validity of Metabolic and Workload Measurements for Identifying People With Chronic Fatigue Syndrome | journal = Physical Therapy (APTA) | volume = 93 | issue = 11 | page = 1484-1492 | date = 31 Oct 2013 | pmid = 23813081 | doi = 10.2522/ptj.20110368 | ||
| pmid | |||
| url = http://ptjournal.apta.org/content/93/11/1484 }}</ref> | | url = http://ptjournal.apta.org/content/93/11/1484 }}</ref> | ||
<ref name="Stevens20150524video">{{citation | last1 | <ref name="Stevens20150524video">{{citation | last1 = Stevens | first1 = Staci R | authorlink1 = Staci Stevens | last2 = ME/FM Society of British Columbia (Canada) | title = Video: Post-exertional malaise: How to do more with less | date = 24 May 2015 | place = Vancouver, BC, Canada | ||
| url = http://youtu.be/XFz4CK0Js1M }}</ref> | | url = http://youtu.be/XFz4CK0Js1M }}</ref> | ||
<ref name="VanNess2010">{{citation | last1 | <ref name="VanNess2010">{{citation | last1 = VanNess | first1 = J Mark | author-link1 = Mark VanNess | last2 = Stevens | first2 = Staci R | authorlink2 = Staci Stevens | last3 = Bateman | first3 = Lucinda | authorlink3 = Lucinda Bateman | last4 = Stiles | first4 = Travis L | authorlink4 = Travis Stiles | last5 = Snell | first5 = Christopher R | authorlink5 = Christopher Snell | title = Post-exertional malaise in women with chronic fatigue syndrome | journal = J Womens Health (Larchmt) | volume = 19 | issue = 2 | page = 239-244 | date = 4 Jan 2010 | pmid = 20095909 | doi = 10.1089/jwh.2009.1507 | ||
| pmid | |||
| url = http://online.liebertpub.com/doi/abs/10.1089/jwh.2009.1507 }}</ref> | | url = http://online.liebertpub.com/doi/abs/10.1089/jwh.2009.1507 }}</ref> | ||
<ref name="VanNess20140205video">{{citation | last1 | <ref name="VanNess20140205video">{{citation | last1 = VanNess | first1 = J Mark | author-link1 = Mark VanNess | title = Video: A Realistic Approach to Exercise and Rehabilitation in ME/CFS | date = 5 Feb 2014 | place = Bristol Watershed, UK | ||
| url = https://www.youtube.com/watch?v=q_cnva7zyKM }}</ref> | | url = https://www.youtube.com/watch?v=q_cnva7zyKM }}</ref> | ||
<ref name="Workwell20140317video">{{citation | author = Workwell Foundation | title = Video: Cardio-Pulmonary Exercise Test (CPET) | date = 17 Mar 2014 | <ref name="Workwell20140317video">{{citation | author = Workwell Foundation | title = Video: Cardio-Pulmonary Exercise Test (CPET) | date = 17 Mar 2014 | ||
| url = http://youtu.be/xIDFahiCySw }}</ref> | | url = http://youtu.be/xIDFahiCySw }}</ref> | ||
<ref name="Workwell201404rae">{{citation | last1 | <ref name="Workwell201404rae">{{citation | last1 = VanNess | first1 = J Mark | author-link1 = Mark VanNess | last2 = Snell | first2 = Christopher R | authorlink2 = Christopher Snell | last3 = Stevens | first3 = Staci R | authorlink3 = Staci Stevens | title = A Realistic Approach to Exercise for CFS Patients | journal = The CFS Research Review | date = 2000 | volume = 1 | ||
| issue = 4 | pages = 3-8 | | issue = 4 | pages = 3-8 | ||
| url = http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf }}</ref> | | url = http://www.workwellfoundation.org/wp-content/uploads/2014/04/A-Realistic-Approach-to-Exercise-for-CFS-patients.pdf }}</ref> | ||
<ref name="Workwell201404wwodwo">{{citation | last1 | <ref name="Workwell201404wwodwo">{{citation | last1 = Snell | first1 = Christopher R | authorlink1 = Christopher Snell | last2 = VanNess | first2 = J Mark | author-link2 = Mark VanNess | last3 = Stevens | first3 = Staci R | authorlink3 = Staci Stevens | title = When Working Out Doesn't Work Out | journal = The CFIDS Chronicle | volume = 17 |issue = 3 | pages = 6 | date = 2004 | ||
| url = http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf }}</ref> | | url = http://www.workwellfoundation.org/wp-content/uploads/2014/04/When-Working-Out-Doesnt-Work-Out.pdf }}</ref> | ||
<ref name="Workwell201512foar">{{citation | last1 | <ref name="Workwell201512foar">{{citation | last1 = Stevens | first1 = Staci R | authorlink1 = Staci Stevens | last2 = Davenport | first2 = Todd E | authorlink2 = Todd Davenport | ||
| display-authors = | title = Functional Outcomes of Anaerobic Rehabilitation in a Patient with Chronic Fatigue Syndrome: case report with 1-year follow-up | journal = Bulletin of the IACFS/ME | volume = 18 | issue = 3 | page = 93-98 | date = 2010 | | display-authors = | title = Functional Outcomes of Anaerobic Rehabilitation in a Patient with Chronic Fatigue Syndrome: case report with 1-year follow-up | journal = Bulletin of the IACFS/ME | volume = 18 | issue = 3 | page = 93-98 | date = 2010 | ||
| url = http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf }}</ref> | | url = http://www.workwellfoundation.org/wp-content/uploads/2015/12/Functional-Outcomes-of-Anaerobic-Rehabilitation-in-a-Patient-With-Chronic-Fatigue-Syndrome.-Case-Report-With-1-Year-Follow-Up.pdf }}</ref> |
Latest revision as of 08:23, April 2, 2023
Workwell Foundation was founded by Staci Stevens and is based in Ripon, California, US. It specialises in two-day cardiopulmonary exercise test (2-day CPET) for people with ME/CFS, Fibromyalgia and other fatiguing illnesses.
Notable people[edit | edit source]
- Staci Stevens: Founder
- Christopher Snell: Scientific Advisory Committee Chair
- Daniel Peterson: Medical Supervisor
- Mark VanNess: Scientific Advisory Committee Member
- Todd Davenport: Scientific Advisory Committee Member
Notable studies[edit | edit source]
- 2013, Discriminative validity of metabolic and workload measurements to identify individuals with Chronic Fatigue Syndrome[1]
- 2011, Diagnostic accuracy of symptoms characterising chronic fatigue syndrome[2]
- 2010, Post-exertional malaise in women with chronic fatigue syndrome[3]
- 2010, Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis[4]
- 2005,Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)[5]
- 2003, Subclassifying Chronic Fatigue Syndrome through Exercise Testing[6]
Exercise recommendations for ME/CFS[edit | edit source]
Workwell Foundation recommends short periods (eg: 30 seconds) of analeptic exercise, with periods of rest which are 3-6 times longer than the period of exercise. The amount of exercise that the individual undertakes should be guided by VO2 max testing (or a safe heart rate threshold (generally 60% of maximum heart rate)), and the use of a heart rate monitor (both during exercise and to help with pacing) is recommended to ensure that the individual doesn't exceed their capacity. The Foundation also advises against aerobic exercise for people with ME/CFS.[7][8][9]
This approach to exercise differs from graded exercise therapy (GET) in several important ways:
- There is no claim that the exercise program will cure the condition. The aim is to increase functional strength and flexibility, and to improve quality of life[8]
- This program is based on a deep understanding of Post-exertional malaise (PEM), and the importance of staying within the energy envelope in order to not trigger PEM[7]
- There is a recognition that any approach to exercise with people with ME/CFS must be carefully tailored to the individual. There is no one-size fits all[8]
- This approach utilises objective measures such as VO2 max testing and heart rate monitoring to guide the level of activity suitable for the individual[9]
COVID-19 rehabilitation information[edit | edit source]
- May 2020, Post Covid-19 Rehabilitation[10] - Physios for ME, Workwell Foundation, and ME Association
Open letters[edit | edit source]
- 2018, The Workwell Foundation release an open letter to healthcare providers, detailing their concerns about GET.
- 2020, Opposition to Oxford Health NHS Foundation Trust: "Coping with Coronavirus: Fatigue" - joint letter with over 20 UK organisations, professionals and politicians
Funding[edit | edit source]
Talks and interviews[edit | edit source]
- Video: Post-exertional malaise: How to do more with less, Staci Stevens, Vancouver BC Canada, May 2015[11]
- Video: A Realistic Approach to Exercise and Rehabilitation in ME/CFS, Mark VanNess, Bristol UK, Feb 2014[12]
- Video: Cardio-Pulmonary Exercise Test (CPET), Workwell Foundation, Mar 2014[13]
Online presence[edit | edit source]
Learn more[edit | edit source]
- Busted! Exercise study finds exercise production system is broken in Chronic Fatigue Syndrome, Cort Johnson, Jul 2013[14]
- Functional outcomes of anaerobic rehabilitation in a patient with Chronic Fatigue Syndrome: Case report with 1-year follow up, Workwell Foundation, Dec 2015[9]
- When working out doesn't work out, Workwell Foundation, Apr 2014[8]
- A realistic approach to exercise for CFS patients, Workwell Foundation, Apr 2014[7]
See also[edit | edit source]
References[edit | edit source]
- ↑ Snell, Christopher R; Stevens, Staci R; Davenport, Todd E; VanNess, J Mark (October 31, 2013), "Discriminative Validity of Metabolic and Workload Measurements for Identifying People With Chronic Fatigue Syndrome", Physical Therapy (APTA), 93 (11): 1484-1492, doi:10.2522/ptj.20110368, PMID 23813081
- ↑ Davenport, Todd E; Stevens, Staci R; Baroni, Katie; VanNess, J Mark; Snell, Christopher R (January 6, 2011), "Diagnostic accuracy of symptoms characterising chronic fatigue syndrome", Disabil Rehabil, 33 (19–20): 1768-75, doi:10.3109/09638288.2010.546936, PMID 21208154
- ↑ VanNess, J Mark; Stevens, Staci R; Bateman, Lucinda; Stiles, Travis L; Snell, Christopher R (January 4, 2010), "Post-exertional malaise in women with chronic fatigue syndrome", J Womens Health (Larchmt), 19 (2): 239-244, doi:10.1089/jwh.2009.1507, PMID 20095909
- ↑ Davenport, Todd E; Stevens, Staci R; VanNess, J Mark; Snell, Christopher R; Little, Tamara (March 31, 2010), "Conceptual model for physical therapist management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis", Physical Therapy (APTA), 90 (4): 602-614, doi:10.2522/ptj.20090047, PMID 20185614
- ↑ Snell, Christopher R; VanNess, J Mark; Strayer, David R; Stevens, Staci R (2005), "Exercise capacity and immune function in male and female patients with Chronic Fatigue Syndrome (CFS)" (PDF), In Vivo, 19 (2): 387-390, PMID 15796202
- ↑ VanNess, J. Mark; Snell, Christopher R.; Strayer, David R.; Dempsey, Line; Stevens, Staci R. (2003). "Subclassifying Chronic Fatigue Syndrome through Exercise Testing". Medicine & Science in Sports & Exercise. 35 (6): 908–913. doi:10.1249/01.mss.0000069510.58763.e8. ISSN 0195-9131.
- ↑ 7.0 7.1 7.2 VanNess, J Mark; Snell, Christopher R; Stevens, Staci R (2000), "A Realistic Approach to Exercise for CFS Patients" (PDF), The CFS Research Review, 1 (4): 3–8
- ↑ 8.0 8.1 8.2 8.3 Snell, Christopher R; VanNess, J Mark; Stevens, Staci R (2004), "When Working Out Doesn't Work Out" (PDF), The CFIDS Chronicle, 17 (3): 6
- ↑ 9.0 9.1 9.2 Stevens, Staci R; Davenport, Todd E (2010), "Functional Outcomes of Anaerobic Rehabilitation in a Patient with Chronic Fatigue Syndrome: case report with 1-year follow-up" (PDF), Bulletin of the IACFS/ME, 18 (3): 93-98
- ↑ Physio for ME; Workwell Foundation; ME Association (May 2020). "Post Covid-19 Rehabilitation". Physiosforme. Retrieved May 2, 2020.
- ↑ Stevens, Staci R; ME/FM Society of British Columbia (Canada) (May 24, 2015), Video: Post-exertional malaise: How to do more with less, Vancouver, BC, Canada
- ↑ VanNess, J Mark (February 5, 2014), Video: A Realistic Approach to Exercise and Rehabilitation in ME/CFS, Bristol Watershed, UK
- ↑ Workwell Foundation (March 17, 2014), Video: Cardio-Pulmonary Exercise Test (CPET)
- ↑ Johnson, Cort (July 30, 2013), Busted! Exercise Study Finds Energy Production System is Broken in Chronic Fatigue Syndrome