Mary Burgess, PhD, is a co-author, with Trudie Chalder, of Overcoming Chronic Fatigue, a manual for laypeople that recommends the use of cognitive behavioral therapy and GET for treatment of ME/CFS. She was part of the PACE Trial Management Group which co-authored the PACE trial.
Studies[edit | edit source]
- 2011, Adolescents with severe chronic fatigue syndrome can make a full recovery
- 2011, Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial
- 2019, Psychological and demographic factors associated with fatigue and social adjustment in young people with severe chronic fatigue syndrome/myalgic encephalomyelitis: A preliminary mixed-methods study.
Letters[edit | edit source]
References[edit | edit source]
- Overcoming Chronic Fatigue
- White, PD; Goldsmith, KA; Johnson, AL; Potts, L; Walwyn, R; DeCesare, JC; Baber, HL; Burgess, M; Clark, LV; Cox, DL; Bavinton, J; Angus, BJ; Murphy, G; Murphy, M; O'Dowd, H; Wilks, D; McCrone, P; Chalder, T; Sharpe, M; The PACE Trial Management Group (Mar 5, 2011), "Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial", The Lancet, 377 (9768): 823–836, doi:10.1016/S0140-6736(11)60096-2, PMID 21334061
- Burgess, M.; Chalder, T. (May 10, 2011). "Adolescents with severe chronic fatigue syndrome can make a full recovery". Case Reports. 2011 (may08 1): bcr0120113716–bcr0120113716. doi:10.1136/bcr.01.2011.3716. ISSN 1757-790X. PMC . PMID 22696706.
- Ali, Sheila; Adamczyk, Lucy; Burgess, Mary; Chalder, Trudie (Jan 25, 2019). "Psychological and demographic factors associated with fatigue and social adjustment in young people with severe chronic fatigue syndrome/myalgic encephalomyelitis: a preliminary mixed-methods study". Journal of Behavioral Medicine. doi:10.1007/s10865-019-00010-x. ISSN 0160-7715.
- White, PD; Chalder, T; Sharpe, M; Angus, BJ; Baber, HL; Bavinton, J; Burgess, M; Clark, LV; Cox, DL; DeCesare, JC; Goldsmith, KA; Johnson, AL; McCrone, P; Murphy, G; Murphy, M; O'Dowd, H; Potts, L; Walwyn, R; Wilks, D (Jan 2017). "Response to the editorial by Dr Geraghty". Journal of Health Psychology. 22 (9): 1113–1117. doi:10.1177/1359105316688953.
pacing - The practice of staying within one's "energy envelope" by interspersing periods of activity with periods of rest. ME/CFS patients use pacing to avoid or reduce post-exertional malaise (PEM). Some patients use a heart rate monitor to help with pacing.
graded exercise therapy (GET) - A gradual increase in exercise or activity, according to a pre-defined plan. Focuses on overcoming the patient's alleged unhelpful illness beliefs that exertion can exacerbate symptoms, rather than on reversing physical deconditioning. Considered controversial, and possibly harmful, in the treatment or management of ME. One of the treatment arms of the controversial PACE trial.
chronic fatigue syndrome (CFS) - A controversial term, invented by the U.S. Centers for Disease Control, that generally refers to a collection of symptoms as “fatigue”. There have been multiple attempts to come up with a set of diagnostic criteria to define this term, but few of those diagnostic criteria are currently in use. Previous attempts to define this term include the Fukuda criteria and the Oxford criteria. Some view the term as a useful diagnostic category for people with long-term fatigue of unexplained origin. Others view the term as a derogatory term borne out of animus towards patients. Some view the term as a synonym of myalgic encephalomyelitis, while others view myalgic encephalomyelitis as a distinct disease.
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.