Phil Murray was diagnosed with ME/CFS in 1997, and has been mainly in remission since 2007. Phil has worked extensively with Westcare UK, sat on the ME patient advisory group for the ME/CFS Epidemiology and Genomics Alliance (MEGA), sponsored by ME Research UK, attended the NICE guidelines scoping meeting in 2018, and is co-organiser for the Bristol Millions Missing protests, in 2018 & 2019. Phil has appeared in local radio & TV speaking for the need for more biomedical research into the illness, and remains on the Patient Advisory group to the UK CFS/ME Research Collaborative (CMRC).
An interview from Phil's 1998 appointment at Bristol's Royal Infirmary was featured in the medical training app Speaking Clinically, under "General Medicine, "Chronic Fatigue Syndrome," and "The Exhausted Athlete". It featured the clear reasons for post-exertional malaise, and the delay before the effects are felt.
Talks and interviews[edit | edit source]
Online presence[edit | edit source]
See also[edit | edit source]
Learn more[edit | edit source]
References[edit | edit source]
- "Phil Murray, Trustee, Action for ME at Action for M.E." LinkedIn. Dec 26, 2019.
- "#MillionsMissing: the campaign for ME equality". The Bristol Cable. May 10, 2018. Retrieved Dec 26, 2019.
- ME, Action for. "Improving lives, inspiring change: AGM & annual report". Action for ME. Retrieved Dec 26, 2019.
- ME, Action for. "Board of Trustees". Action for ME. Retrieved Dec 26, 2019.
chronic fatigue syndrome (CFS) - A controversial term, invented by the U.S. Centers for Disease Control, that generally refers to a collection of symptoms as “fatigue”. There have been multiple attempts to come up with a set of diagnostic criteria to define this term, but few of those diagnostic criteria are currently in use. Previous attempts to define this term include the Fukuda criteria and the Oxford criteria. Some view the term as a useful diagnostic category for people with long-term fatigue of unexplained origin. Others view the term as a derogatory term borne out of animus towards patients. Some view the term as a synonym of myalgic encephalomyelitis, while others view myalgic encephalomyelitis as a distinct disease.
myalgic encephalomyelitis (ME) - A disease often marked by neurological symptoms, but fatigue is sometimes a symptom as well. Some diagnostic criteria distinguish it from chronic fatigue syndrome, while other diagnostic criteria consider it to be a synonym for chronic fatigue syndrome. A defining characteristic of ME is post-exertional malaise (PEM), or post-exertional neuroimmune exhaustion (PENE), which is a notable exacerbation of symptoms brought on by small exertions. PEM can last for days or weeks. Symptoms can include cognitive impairments, muscle pain (myalgia), trouble remaining upright (orthostatic intolerance), sleep abnormalities, and gastro-intestinal impairments, among others. An estimated 25% of those suffering from ME are housebound or bedbound. The World Health Organization (WHO) classifies ME as a neurological disease.
Action for ME (AfME) - Action for ME is a British non-profit organization that was set up in 1987 as The M.E. Action Campaign. Its founders were Martin Lev, Sue Findlay and Clare Francis. In September 1993 it changed its name and logo to Action for ME and Chronic Fatigue. It then changed its name in 1993 to Action for ME.