ME/CFS Canadian Collaborative Team Conference

From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history
Jump to: navigation, search

The ME/CFS Canadian Collaborative Team Conference is sponsored by the ME/CFS Canadian Collaborative Team.

2018[edit | edit source]

The first conference was held May 3-5, 2018, in Montreal, Canada.[1]

Day 1 Speakers[edit | edit source]

Session 1 - ME/CFS: Spectrum of a Complex and Chronic Disease[edit | edit source]

  • Alison C. Bested, M.D., FRCP(C), Clinical Director, Institute for Neuro Immune Medicine, Nova Southeastern University, Fort Lauderdale, US- Review of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Clinicians
  • Byron Hyde, M.D., Nightingale Research Foundation, Ottawa, Canada - Brain Imaging and How to Examine a Prospective ME/CFS Patient
  • Peter C. Rowe, M.D., Director, Children’s Center Chronic Fatigue Clinic, John-Hopkins University, Baltimore, US - Orthostatic Intolerance in ME/CFS
  • Ric Arseneau, M.D., FRCP(C), MA(Ed), MBA, FACP, CGP, Clinical Associate Professor, Division of General Internal Medicine, St. Paul’s Hospital, Women’s Hospital, University of British Columbia, Canada - ME/CFS: Central Sensitivity Syndromes and the Complex Chronic Diseases Program at BC Women’s Hospital
  • Lucinda Bateman, M.D., Founder and Medical Director, Bateman Horne Center, Salt Lake City, US - Objective Diagnosis of ME/CFS
  • Roland Staud, M.D., Professor of Medicine, University of Florida, US - Peripheral and Central Mechanisms of Chronic Fatigue Syndrome

Session 2a - How to Differentiate and Manage ME/CFS[edit | edit source]

  • Eleanor Stein, M.D., FRCP(C), Calgary, Canada - Differentiating ME/CFS from Psychiatric Disorders
  • Peter C. Rowe, M.D., Director, Children’s Center Chronic Fatigue Clinic, John-Hopkins University, Baltimore, US - Management of Pediatric ME/CFS
  • Betsy Keller, PhD, Professor, Department of Exercise and Sport Sciences, Ithaca College, Ithaca, US - What Do We Learn About ME/CFS From a Cardiopulmonary Exercise Test?
  • Riina I. Bray, BASc, MSc, M.D., FCFP, MHSc, Medical Director, Environmental Health Clinic, Women’s College Hospital, Toronto, Canada - Diagnostic Dilemmas: Etiology and Treatment of the Fatigued Patient
  • Kevin Mejo, BPharm, Montréal, Canada - ME/CFS Pharmacotherapies and Drug Interactions
  • Alain Moreau, Chair, Scientific Committee, Professor, University of Montreal, Canada - Closing Remarks

Session 2b - Pre-Conference Workshop on Meeting Unmet Needs[edit | edit source]

Day 2 Speakers[edit | edit source]

Session 1a - Genetics, Genomics and Epigenetics[edit | edit source]

  • Wilfred de Vega, PhD, University of Toronto, Canada - The Epigenetic Landscape of ME/CFS: Deciphering Complex Phenotypes
  • Ronald Davis, PhD, Director, Stanford Genome Center, Stanford University, Palo Alto, US - An Integrative, Molecular, Data and Technology-Driven Approach to ME/CFS
  • Alain Moreau, Professor, University of Montreal, Canada - Genetic and Nutriepigenetic Regulation of Plasma Homocysteine Levels in ME/CFS
  • Alexis Goth, M.D., and Tara Sampalli, PhD, Integrated Chronic Care Service in Primary Health Care at the Nova Scotia Health Authority, Canada - Cultivating Change: Leveraging Epigenetics via Lifestyle Modification: An Integrative Multidisciplinary Treatment Model in ME/CFS

Session 2a - Biochemistry, Metabolomics and Proteomics[edit | edit source]

  • Maureen Hanson, M.D., Cornell University, Ithaca, US - Metabolism in ME/CFS
  • Jonas Bergquist, M.D., PhD, Uppsala University, Sweden - The Biochemistry to Support the Evidence of Neuroinflammatory Involvement in ME/CFS
  • Cara Tomas, PhD candidate, Institute of Cellular Medicine, Newcastle University, UK - Cellular Bioenergetics is Impaired in Patients with ME/CFS
  • Peter C. Rowe, M.D., Director, Children’s Center Chronic Fatigue Clinic, John-Hopkins University, Baltimore, US - Connective Tissue Laxity and Adverse Neural Tension in ME/CFS

Session 3a - Infection, Immunity and Clinical Research[edit | edit source]

  • Amir Landi, M.D., PhD, University of Alberta, Edmonton, Canada - Diagnosis of ME/CFS: Can Immune Modulators Play a Role?
  • Luis Nacul, M.D., PhD, Faculty of Infectious and Tropical Diseases, CURE-ME Team, London School of Hygiene and Tropical Medicine Disability and Eye Health Group, UK - Epidemiological and Clinical Research in ME/CFS: How Can They Support Hypothesis Generation and Testing?
  • Carmen Scheibenbogen, M.D., Professor and Deputy Chair, Institute of Medical Immunology, Charité – Universitätsmedizin, Berlin, Germany - Clinical Trial on Immunoadsorption in ME/CFS
  • Derya Unutmaz, M.D., The Jackson Laboratory, Farmington, US - Fine-Tuned Interaction Between Human Immune System and Gut Microbiota: Potential Impact on ME/CFS
Session 4a - Biomarkers, Biobanking, and Clinical Trials[edit | edit source]

Session 1b - What We Know and Still Don’t Know About ME/CFS Etiology and Pathomechanism[edit | edit source]

Session 2b - Advancing ME/CFS Research and Treatments[edit | edit source]

  • Margaret Parlor, President of the National ME/FM Action Network, Ottawa, Canada - ME/CFS Research Landscape in Canada: How Can Science/Innovation Address Unmet Needs?
  • Betsy Keller, PhD, Professor, Department of Exercise and Sport Sciences at Ithaca College, Ithaca, US - Is Heart Rate a Valid Exertional Index in ME/CFS?
  • Eleanor Stein, MD, FRCP(C), Calgary, Canada and Judy-Anne Wilson, representative of Edmonton ME Society and Alison Rae, Board Chair and CEO, Action CIND - Alberta Healthy Living Program: The Role of ME/CFS Education

Session 3b - Panel Discussion 1: Meet the Experts[edit | edit source]

  • Kevin Mejo, BPharm - Medication and ME
  • Valérie Marcil, PhD, DtP - Nutrition and ME
  • Alexis Goth, MD, CCFP(C) - Genetics and ME

Session 4b - Panel Discussion 2: Creating a Transformative Research Agenda for ME/CFS[edit | edit source]

Panellists / Experts: Diane Ching, President, ME Society of Edmonton; Kati Debelic, Board Member, ME/FM Myalgic Encephalomyelitis and Fibromyalgia Society of BC, Canada; Barbara Fifield, Co-founder, Millions Missing Canada; Bev Friesen, Chairperson of the Board, Manitoba ME/CFS Support Group, Canada, Gloria Gray, President, M.E. Victoria Association, BC, Canada, Carol Head, Solve ME/CFS Initiative; Kimberly Hicks, Board Member and Treasurer, Open Medicine Foundation, Los Angeles, US; Valérie Miller, General Coordinator of Association Québécoise de l’Encéphalomyélite Myalgique (AQEM), Canada; Margaret Parlor, President, The National ME/FM Action Network, ON, Canada; Alison Rae, Board Chair and CEO, Action CIND, ON, Canada; Elizabeth Sanchez, President, ME/FM Myalgic Encephalomyelitis and Fibromyalgia Society of BC, Canada; Linda Tannenbaum, CEO/President, Open Medicine Foundation, Los Angeles, US

Day 2 Speakers[edit | edit source]

  • Alain Moreau, PhD, Chairman of the Scientific Committee, Full Professor, University of Montreal, Canada - Introduction and Objectives

Session 1 - Developing ME/CFS Networks and International Collaboration[edit | edit source]

  • Raeka Aiyar, PhD, Stanford University and Open Medicine Foundation, Palo Alto, CA, US - Moderator: Developing ME/CFS Networks and International Collaboration
  • Margaret Parlor, President of the National ME/FM Action Network, Ottawa, Canada - Report from the ME/CFS Patient Community about Creating a Transformative Agenda for ME/CFS
  • Becky McNeil, PhD, Biostatistics and Epidemiology Division, RTI International, Research Triangle Park, NC, US - The Common Data Element Challenge in Establishing ME/CFS Research Consortia

Session 2 - Development of International Working Groups on ME/CF[edit | edit source]

Event program[edit | edit source]

Articles[edit | edit source]

Learn more[edit | edit source]

References[edit | edit source]

  1. "ME/CFS Canadian Collaborative Team Conference" (PDF). Retrieved Mar 11, 2019. 

Myalgic encephalomyelitis or chronic fatigue syndrome, often used when both illnesses are considered the same.

Myalgic encephalomyelitis or M.E. has different diagnostic criteria to chronic fatigue syndrome; neurological symptoms are required but fatigue is an optional symptom.Cite error: Closing </ref> missing for <ref> tag

The information provided at this site is not intended to diagnose or treat any illness.
From MEpedia, a crowd-sourced encyclopedia of ME and CFS science and history.